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Author Topic: My report  (Read 4115 times)
GoingThere
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« on: August 02, 2010, 11:19:10 AM »
Hi all!

It's been almost 3 weeks since I joined the D club. Apparently I cope with D very good as I'm not tired at all.
Here you can see pictures prior joining the D club and post.

Notes:
1. Picture taken 6 days prior D. Me riding bike at the coast. At the back you can see fields of salt :)
2. Picture of me and my ex in the mountains 3 days prior D.
3. My very first session.
4. Me and my niece at the sea side. She holds Lollipop (my gift to her:)). Picture was taken 3 days ago.
5. Me with my bike in the mountains. My very first ike ride since D. Picture was taken today.


Yes, I can tell you, I am good person and my ex has a big loss.
Another question: why are so many D patients yellow?

GT
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
MooseMom
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« Reply #1 on: August 02, 2010, 11:38:00 AM »
Outstanding!!!  I love to see people on D being able to just get on with life.  Well done!

Listen, try not to expend any more energy thinking about your ex.  D has given you a new lease on life, so from now on, don't look back, only look forward.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cariad
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What's past is prologue
« Reply #2 on: August 02, 2010, 12:28:41 PM »
Long may it continue, Uros! I am so happy for you, and I love your high self-esteem. :2thumbsup;

Sounds like both your physical and mental health are in superb condition! :yahoo; Great pics, too!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Zach
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"Still crazy after all these years."
« Reply #3 on: August 02, 2010, 12:51:39 PM »
Quote from: GoingThere on August 02, 2010, 11:19:10 AM

Another question: why are so many D patients yellow?

GT


In many cases, the yellow or sometimes grayish look is from being underdialyized.

8)
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
natnnnat
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« Reply #4 on: August 02, 2010, 08:27:28 PM »
I love these pictures GT and I am absolutely delighted to see you back on your bike, literally as well as metaphorically.
 :thumbup; :thumbup; :thumbup; :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
galvo
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« Reply #5 on: August 02, 2010, 09:26:24 PM »
Looking and sounding good, Uros!
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Galvo
Jean
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« Reply #6 on: August 03, 2010, 01:17:49 AM »
Good for you guy, getting on with it already. Keep it up.
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One day at a time, thats all I can do.
GoingThere
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« Reply #7 on: August 18, 2010, 11:59:23 AM »
Hi all!

Today my fistula lost virginity.    :shy;  No pain at all.  :rofl; Though, only one needle was used. Tomorrow 2 needles will be put in my arm.
I enclose 2 photos.

Bye....
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #8 on: August 18, 2010, 12:01:56 PM »
 :2thumbsup; Good to hear!
Did you use the Emla cream, lidocanie or no numbing at all?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
GoingThere
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« Reply #9 on: August 18, 2010, 12:17:08 PM »
Okarol, no numbing at all  :thumbup;
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
Jean
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« Reply #10 on: August 18, 2010, 04:31:06 PM »
WOW!!!! Or, as they say in Australia, Good on ya!!!
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One day at a time, thats all I can do.
Riki
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« Reply #11 on: August 18, 2010, 04:58:32 PM »
you're a stronger man that I'd be.. *LOL*

No numbing?  I swear by emla cream.  it makes it easier for the nurses to find the vessel, because you're not flinching with the needle going in.  They wouldn't put two needles in so early with me.  They put one needle in, used at the artery, and this was done twice, then the one needle was used as the vein.  Then the 2 needles were tried, after it had been used 6 times.  From there it was smooth sailing for me.  I've been using my fistula since March, and it's still developing.  I expect that soon, I'll have more than just the 2 needling sites.
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
LoneHighway
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OTR Trucker, Off-Grid in New Mexico
« Reply #12 on: August 18, 2010, 05:04:47 PM »
Yes, your ex is foolish. I wouldn't doubt she may change her mind when she sees you getting on normally, especially now that you are off the cath.
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monrein
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Might as well smile
« Reply #13 on: August 18, 2010, 08:43:30 PM »
Glad to see your attitude so positive and strong.  I never used numbing either and you look like an excellent candidate for doing your own needles...no going back if you can get your head around this possibility. 
I loved seeing all your pics and although I'm sorry that your ex wasn't able to stay the course, I hope that you'll get past that and continue to live your life as interestingly as possible.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #14 on: August 19, 2010, 12:11:42 AM »
Good to hear.
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Galvo
jbrock
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« Reply #15 on: August 19, 2010, 06:54:38 PM »
GT,

You give me so much hope and comfort seeing your pics and hearing how well you are doing!!!

Keep it up!! Thanks for sharing with us!!

Joy :)
Logged
Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
RichardMEL
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« Reply #16 on: August 19, 2010, 08:03:47 PM »
dude! you got a 500B! *envy* and I spot that bottle of Renagel. Very good! Can't forget those darn binders!  :rofl;

So glad you lost your virginity without pain! I don't use any numbing stuff either. First time a local, nothing since then. It's really not that bad.

 :2thumbsup; :yahoo; :clap;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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"Still crazy after all these years."
« Reply #17 on: August 20, 2010, 09:52:06 AM »
 :beer1;
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Zog
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« Reply #18 on: August 20, 2010, 10:54:49 AM »
Good luck with the two needles today.
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My wife is JDHartzog. In 1994 she lost her kidneys to complications from congenital VUR.
1994 Hydronephrosis, Double Nephrectomy, PD
1994 1st Transplant
1996 PD
1997 2nd Transplant
1999 In Center Hemo
2004 3rd Transplant
2007 Home Hemo with NxStage
2008 Gave birth to our daughter (the first NxStage baby?)
Hubbs
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when they ask how i feel , I just say; Drained.
« Reply #19 on: August 22, 2010, 06:44:17 PM »
I live in Central FL.  i keep my house at 76° .  Anyways,  since i been on the D thing for almost a yr,  I've lost alot of motivation to do things around my house. mostly cuz i'm too damn tired. and the heat is over whelming.  i'm thinking of getting a housekeeper too. if i can find it in my budget.  so I ivy you dude. way to go.. keep it up!  :2thumbsup;
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Blindness separates you from things,
but Deafness separates you from people.
-- Helen Keller --
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