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Author Topic: On PD and working 45 hours a week!  (Read 7573 times)
KevinSherwin
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New to the group and yes I HATE DIALYSIS

« on: December 19, 2010, 04:27:33 PM »

Im a 37 yr old male on PD for 6 months now and I'm working 45 hours a week at Costco.  It is exhausting and I sleep alot but I have to earn a paycheck so It's time to man up and do work.  My job is not phsically demanding but Im on my feet for 9.5 hours 5 days a week and it takes a toll.  For all of you that are wondering if it can be done Im here to say yes!  Its not easy but possible.  If I can help anybody get through their day just ask.
Kevin Seattle WA
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Have a great day the choice is yours!
kitkatz
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« Reply #1 on: December 21, 2010, 08:09:34 PM »

Hurray for you!  Take care of yourself.

I have been working the past twelve years as a teacher and on hemodialysis.  It is a challenge.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
sutphendriver
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« Reply #2 on: December 22, 2010, 07:48:52 PM »

Kevin, I too am a 37 year old PD patient.  I am a full time professional firefighter on a 56 hour work week.  I see alot of dialysis patients at work on emergency calls....I always get a chuckle when they tell me they cant work because of dialysis.  I use alot of Red Bull and coffee, keep fighting the good fight!
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KevinSherwin
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New to the group and yes I HATE DIALYSIS

« Reply #3 on: December 23, 2010, 12:11:47 AM »

WOW firefighter on PD thats impressive.  You are awesome man keep it going.  Hopefully you can get a transplant and be 100%.   :bandance;
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Have a great day the choice is yours!
Bill Peckham
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WWW
« Reply #4 on: December 23, 2010, 02:21:31 PM »

Check out Jean Louis Clemendot (newest posts are in French at the bottom of the page, copy and paste into Google Translate) he uses PD and is busy sailing around the world in stages mostly alone, he leaves from Singapore on January 13th! He's already been across the Atlantic, through the canal and across the Pacific.
« Last Edit: December 23, 2010, 02:24:41 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #5 on: December 23, 2010, 05:51:12 PM »

even though I am one of the folks that work while on D please don't make light of the folks who don't work. some folks have a really hard time on D and are in and out of the hospital a lot fighting for their lives. I am blessed that I have had an "easier" time, but there are days I would love to quit my job and just focus 100% on myself.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
sutphendriver
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« Reply #6 on: December 31, 2010, 08:17:13 AM »

rsudock- I agree that there are some D patients that truly need disability, I have seen and worked with them and it puts things in focus for me, and reminds me to not miss meds or treatments.  This small percentage of D patients I have delt with are fighting an uphill battle for sure and I have no problem with them using the system to survive, that is what its for.  But there are more that just give up and use D as an excuse for everything.  I have asked a few of out "regulars" why they are not on a transplant list....answer.....If i get a transplant, I loose my disability!  OMG they might have to earn a living!!! NOOOOOOOO!!!!
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #7 on: December 31, 2010, 01:37:44 PM »

I have asked a few of out "regulars" why they are not on a transplant list....answer.....If i get a transplant, I loose my disability!  OMG they might have to earn a living!!! NOOOOOOOO!!!!

It is sad and unfortunate that so many people who end up on the system can't envison what their life could be like if they were healthy...it is like they are scared or something of change. Some of us are so fortunate to dream of a different life. A life full of hope and promise....even if it means finding a J O B.  :)


xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
GraphicBass
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« Reply #8 on: December 31, 2010, 02:22:28 PM »

I wonder the same thing about some of the people in my dialysis center. Knowing that everyone responds to treatment differently, I know not everyone can handle work and dialysis together.

But aside from the physical impact of kidney failure, I wonder if "attitude" is the prevailing factor.

Some folks just give in to their misery. Some folks decide it's nice to not have to work. Others can't envision a different life once they fall ill.

Others, like myself, and many on this board, embrace every bit of life that's there. I own and operate a very busy business, servicing clients with magazine graphic design and marketing work (with my wife), am launching a new information product this month, play bass guitar, and participate as much as possible with family activities, including a Bahamas cruise in November. My time in dialysis is spent catching up on my reading and planning, and once I buy my new laptop, working on projects (I do the graphic design).

Occasionally, I'll have a "bad day" on the machine, such as yesterday, when they challenged me a bit too hard. But it's a rare occasion when I am not doing something during treatments.

Others on the early shift work and read as well. No one on my shift does.

So many sleep, and lose valuable time that could be spent in LIVING! — even while hooked up.

I don't mean to seem unsympathetic, and I'm not, because I know how bad they feel. But there were times, pre-D, when I felt so bad, all I wanted to do was stay in bed, moan and groan, and feel sorry for myself. But I dragged my anemic butt out of bed and proceeded to serve my clients, earn an income, be with my family, and be a part of life, rather than give in to the diseases I have (such as diabetes for 30 years and congestive heart failure for the last five — both of which will kick your back end if you let them).

It's a personal decision, and I never say anything to those who give in to the disease or just cannot do more than exist.

But it's not the way I would do it, and I respect others of the same opinion.

gary
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sutphendriver
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« Reply #9 on: January 01, 2011, 09:01:48 AM »

Quote
I don't mean to seem unsympathetic, and I'm not, because I know how bad they feel. But there were times, pre-D, when I felt so bad, all I wanted to do was stay in bed, moan and groan, and feel sorry for myself. But I dragged my anemic butt out of bed and proceeded to serve my clients, earn an income, be with my family, and be a part of life, rather than give in to the diseases I have (such as diabetes for 30 years and congestive heart failure for the last five — both of which will kick your back end if you let them).

It's a personal decision, and I never say anything to those who give in to the disease or just cannot do more than exist.

But it's not the way I would do it, and I respect others of the same opinion.


Well said, Its a matter of personal character and moral standards.  Keep on Truckin!
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #10 on: February 24, 2011, 11:01:56 AM »

Kevin, I too am a 37 year old PD patient.  I am a full time professional firefighter on a 56 hour work week.  I see alot of dialysis patients at work on emergency calls....I always get a chuckle when they tell me they cant work because of dialysis.  I use alot of Red Bull and coffee, keep fighting the good fight!

No red bull..... not good LOL :-)
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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