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Author Topic: Quick Question Regarding "The Committee"...  (Read 2073 times)
kellyt
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« on: August 11, 2010, 12:45:39 PM »

I'm working on my narrative for the application to start my nonprofit organization, Etta's Gift, and I want to be correct when I say who "the committee" consists of.  Doctors, Surgeons and who else????

Thanks.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MooseMom
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« Reply #1 on: August 11, 2010, 12:49:11 PM »

Transplant recipients?
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kellyt
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« Reply #2 on: August 11, 2010, 01:29:23 PM »

I don't know.  I don't think so, but you might be right.   ???
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #3 on: August 11, 2010, 04:52:27 PM »

Do you mean your transplant center's committee?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #4 on: August 12, 2010, 10:04:43 PM »

If you are talking about the group that decides who is eligible for a transplant, it's usually docs, surgeons, social workers, sometimes a psychiatrist, and a financial coordinator.   (If you can't pay, then no listing!)
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RichardMEL
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« Reply #5 on: August 12, 2010, 10:19:02 PM »

yes, the comittee includes the nephrologists - both your primary one and at least one other independant one for a balanced view, the potential transplant surgeons, the psych, social worker and any others that may be involved(eg: dialysis co-ordinator). In my hospital I think they basically convene the whole renal department, most of whom have had some sort of dealings with the patients and make a consentual decision. I think the more opinions they get to form a consensus the more measured a decision they can get and I think, in theory, the fairer it is supposed to be.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cariad
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« Reply #6 on: August 13, 2010, 12:57:19 PM »

Kelly, I think this will vary from centre to centre. UCSF listed me so quickly, I don't think they even had time for a meeting.

Anyway, for your application, I would just cover yourself by wording it generally, such as "Transplant committees usually consist of nephrologists, surgeons, social workers, nurse coordinators, and other hospital professionals." A few of the social workers I talked to had to act as financial coordinators as well. Oh, and at Cedars, the nutritionist was on the committee. I did not even have a nutritionist meet with me at Northwestern, although I think the social worker was also trying to fill this role by asking me how I am with following diets.
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kellyt
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« Reply #7 on: August 13, 2010, 08:45:15 PM »

Thanks, that's the info I was looking for.  I didn't mean specific people.  lol  I know my post transplant Dr. was on the committe that helped determine my donor (and deny my others), but I wasn't sure who else.  But you all answered my question!  Thanks so much!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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