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Author Topic: Hospital stays are getting harder to bear  (Read 2408 times)
dyann
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« on: August 20, 2010, 06:44:08 PM »
Finally out of hospital again I am so tired of the stays it seems like I have spent most of this year in one. 
My Dr. has me going on long term disability and it has not come in yet and there is no money I had to break down and go apply for food stamps  just to feel the kids.  some days i just want to give up, but I have to keep fighting for my kids and me    Oh well I just needed to vent i am so very tired and need to get some rest
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Jean
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« Reply #1 on: August 20, 2010, 07:28:21 PM »
Diane I am so sorry for that mess you are in. The good news is that it will come along and you can laugh at this. You are right, hospital says should belimited to one week every 20 years or so, whether you need it or not!!! As my Mom used to tell me, Keep you chin up, this too will pass.   :cuddle;
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One day at a time, thats all I can do.
jbrock
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« Reply #2 on: August 20, 2010, 08:19:59 PM »
Diane, my heart goes out to you and your family.
I know all to well how a hospital stay can wear on you and the family.
I spent 8 weeks in the hospital for my liver transplant and out of state, to boot!!
I will tell you as Jean said..."keep you chin up...this to shall pass" Its soooooooooo true!!!
You will get through it!!!! Positive outlook as much as possible. I know we all get down through these "life bumps" but the positive outlook will get you through it!

Stay strong!
Joy
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Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
okarol
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« Reply #3 on: August 20, 2010, 09:36:34 PM »
Hospitals are no place to get rest! I hope you recover better at home. Is there anyone that can help you? Friends? Family? Church? Sending you HUGS - take care Dyann.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #4 on: August 20, 2010, 11:23:03 PM »
I'm sorry you're having a rotten time.
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Galvo
Dianejt
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« Reply #5 on: August 21, 2010, 05:20:58 AM »
 :cuddle;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
monrein
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Might as well smile
« Reply #6 on: August 21, 2010, 06:29:19 AM »
  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Marina
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God Bless my donor family!! :)
« Reply #7 on: August 21, 2010, 05:46:22 PM »
Hi (((((((((((((( Dyann)))))))))))))))))),

Sorry  to  hear you  were in  the  hospital.   I  hope  you're  feeling   better  now  though!!

take  good  care!!           :flower;
     
Marina
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

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 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
paris
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« Reply #8 on: August 21, 2010, 06:16:14 PM »
Ah Dyann, I am so sorry.  This isn't the way life is suppose to be.  Worrying about your health is enough, but then to add money woes on top, well some days it is too much.   I wish I had a magic wand for you.  Dump your problems here - we are great listeners.   Sending you some hugs    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
RightSide
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« Reply #9 on: August 21, 2010, 06:56:07 PM »
Believe me, I know how you feel.

In 2009, I had nine surgeries.

There's no way to take a detached attitude toward a track record like that.

Hopefully you'll be past all that soon, and be able to go a much longer time period without having to be in hospital again.
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KICKSTART
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« Reply #10 on: August 22, 2010, 06:59:34 AM »
You sound worn out  :cuddle;. Money problems are enough strain in themselves. Have you any family nearby? that could give you a break /invite you for a meal at theirs?  Rest as much as you can right now and i know its of no comfort, but its strange how when money is thin on the ground how you adapt to becoming frugal .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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