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Author Topic: Hello from Australia  (Read 2043 times)
sumalee
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« on: July 22, 2010, 06:24:04 PM »
Hello everyone
My name is Sumalee I am 48 years old have a kidney disease Glomerrulonephritis not sure if I spell right. I am now on APD I have been on since November 2008 and on a waiting list for a kidney transplant. PD is working well for me but it is not easy to sleep with a dialysis machine every night and waiting for a phone call. I don't have any family in Australia accept my 2 sons. I live with my 17 years old son but he doesn't understand my condition and how I feel. I am glad to find your site I hope to make some new friends to support each others.

Thank you for having me here and I am looking forward to get to know everyone.
Sumalee
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found out have kidney disease 1989
start PD November 2008
On a waiting list for transplant active December 2008
chook
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Born to be a Granma!
« Reply #1 on: July 22, 2010, 07:35:31 PM »
Welcome to IHD Sumalee.
I am also an Aussie and found this site about a month ago and LOVE it. It is a very supportive community with loads of info, stories and humour. Just checking in every few days helps me cope better. Hope you find the same.
I've always been a good sleeper and am missing the deep sleep I used to have and am just glad of any that I get now. How things change!
All the best
Chook
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
sumalee
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« Reply #2 on: July 22, 2010, 08:04:58 PM »
Hello Chook,
Thank you for welcome me. I live in Cairns. Where do you live? How is PD for you? Working well I hope?
I also have always been a good deep sleeper but now with APD some night keep wake me up all night.

Looking forward to get to know you better.
Have a great day.
Sumalee
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found out have kidney disease 1989
start PD November 2008
On a waiting list for transplant active December 2008
RichardMEL
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« Reply #3 on: July 22, 2010, 09:38:27 PM »
G'day Sumalee! Glad to have you with us - more aussies to take over this place when the yanks are all asleep!!  :ausflag; :ausflag; :ausflag;

It must be difficult being a mother and carer and dealing with this stuff alone specially when those around you don't really understand. Well you have us now. Hopefully we can help while you wait for that phone call!!!

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #4 on: July 23, 2010, 12:23:26 AM »
Hi Sumalee and you are so   :welcomesign;  to IHD.
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One day at a time, thats all I can do.
natnnnat
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WWW
« Reply #5 on: July 23, 2010, 04:50:05 AM »
Hi Sumalee and  :welcomesign;
I love Cairns.  I love the harbour, and the foreshore, and the hills....  But I digress:  welcome to IHD, visit often and post a lot.
 :cuddle;

nat
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
RichardMEL
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« Reply #6 on: July 23, 2010, 07:16:51 AM »
I've never been to Cairns myself. All I know about it is that jellyfish are in season about half the year, but I still want to get up there and see some beach babes.... now I will have a local guide?!?!!  :rofl; >:D :oops;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
sumalee
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« Reply #7 on: July 23, 2010, 03:17:36 PM »
Thank you everyone for welcome me. Cairns is nice but hot in summer the weather here is nice from May-Sept if anyone want to visit. And no Jelly fish in winter. You guys and girls welcome to visit I am happy to take you tour.

Have a nice day.
Sumalee
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found out have kidney disease 1989
start PD November 2008
On a waiting list for transplant active December 2008
galvo
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« Reply #8 on: July 24, 2010, 12:41:22 AM »
G'day, Sumalee, and  :welcomesign; from another Aussie. You have a great attitude and a beautiful smile!
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Galvo
RichardMEL
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« Reply #9 on: July 24, 2010, 07:02:43 AM »
I'm booking my flight right now. Just take me to the bikini girls!  :rofl; :rofl; :rofl; :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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"Still crazy after all these years."
« Reply #10 on: July 28, 2010, 07:17:57 AM »
Good to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
chook
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Born to be a Granma!
« Reply #11 on: July 28, 2010, 07:06:33 PM »
G'day Sumalee
Just letting you know where I live - Cobar NSW, which is western NSW, near Bourke (most people have an idea where Bourke is) :)
We are 100km from Cobar on a grazing property so I am keen for PD to keep working for me, as HD at home here would be harder I think.
I've only been on PD for 12 weeks, so still very much a beginner. My nephrologist is pushing for me to find a live donor - my hubby tested but no joy there. Lots of people have 'offered' but it is such a serious thing that I have not yet seriously considered it: just can't get my head around pinching a healthy person's kidney!
Hope the contact with everyone is helping you.    :flower;
Chook
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
murf
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« Reply #12 on: July 29, 2010, 04:30:10 PM »
Giday from another Aussie. I think Cairns and surrounding areas is incredibly beautiful. Just loved seeing the Barron falls. And the assortment of flowers are so pretty. Pity the fruit such as mangoes and paw paws are so high in potassium.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
looneytunes
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Wishin' I was Fishin'
« Reply #13 on: July 29, 2010, 05:33:18 PM »
Hi Sumalee and welcome (from a Yank  :rofl; ) to IHD.  I hope to see you post often and that you find this site to be a great support for you.  :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
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