lillinny
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« on: September 21, 2010, 08:58:53 AM » |
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Where to start??? My husband was diagnosed with ESRD last September! It has been one crazy year. He started dialysis on Thanksgiving day in the center. We completed the inhome hemo training last July. It has been quite a process. Many more challenges than we expected.
I accidently found this website last week and think I read every post in the entire site! It was so reassuring to hear that we are not alone. Everytime I think that we have gotten past the needle/buttonhole problems and the alarm problems, something new happens!
Currently, our latest 'issue' is that he has a major rash over his access arm. It itches like crazy and makes him mieserable. RNs keep suggesting cream, but nothing seems to help. Does anyone have any ideas?
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YLGuy
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« Reply #1 on: September 21, 2010, 09:18:47 AM » |
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 Glad you found IHD
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lillinny
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« Reply #2 on: September 21, 2010, 09:23:08 AM » |
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Thank you! Me, too!  |
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Dianejt
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« Reply #3 on: September 21, 2010, 09:24:18 AM » |
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caregiver to husband Frank
bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
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ChickenLittle56
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Chickenlittle and Maria
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« Reply #4 on: September 21, 2010, 09:24:34 AM » |
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to IHD
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)
Maria hasbeen on hemodualysis since January, 2005
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brmoore
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« Reply #5 on: September 21, 2010, 11:51:17 AM » |
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Hi:
Welcome !!!!
When you see your Neph. ask him about the old standby Triamcinolone Cream ( Brand nane - Kenalog). I find it
really works well. You need a script, but it is not very expensive (if you get the generic).
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lillinny
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« Reply #6 on: September 21, 2010, 12:06:05 PM » |
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Thank you! Will do. I appreciate the info!
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cloud393
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« Reply #7 on: September 21, 2010, 12:37:44 PM » |
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Could he be alergic to whatever you are cleaning his arm with prior to treatment. I know I am alergic to the clora-prep my center normally uses. I got all rashey and itchy from it. Now I have to use Ex-cept or betadyne. Even some of the tape and band aides break me out. Just an idea.
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May you live as long as you want and never want as long as you live.
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kellyt
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« Reply #8 on: September 21, 2010, 01:50:59 PM » |
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 I found th is site by accident, too. Best accident that's ever happened to me! Good Luck with the rash. I'm glad he's able to do dialysis at home.
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Rerun
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« Reply #9 on: September 21, 2010, 03:28:21 PM » |
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Hi lillinny, and welcome to IHD. I'm so glad you found us. Spread the word to your dialysis friends. A last resort would be to see if he is alergic to the needles. Some people have to go to titanium which are very expensive so they don't like to tell you about them. Rerun, Moderator |
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lillinny
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« Reply #10 on: September 21, 2010, 04:20:32 PM » |
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Dear Rerun! Thank you. Hopefully that isn't the case but good to know about. Its a crazy maker!
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Bajanne
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« Reply #11 on: September 21, 2010, 06:21:26 PM » |
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WElcome to our community, lillinny! (that is a very cute screen name) I am so glad that you found us. I do hope that your husband gets relief from the itching. I am sure that I don't have to tell you that this is a great site for information, support and encouragement. We even have a section for you, for caregivers and loved ones - check it out. You are now part of our IHD family  one of the most wonderful set of people I have ever met (and I have met some of them!) Just keep reading and keep posting. Let us know how your husband is doing. Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family! |
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galvo
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« Reply #12 on: September 21, 2010, 06:27:03 PM » |
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G'day lillinny and . |
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Galvo
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Jean
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« Reply #13 on: September 21, 2010, 11:47:15 PM » |
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One day at a time, thats all I can do.
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needlephobic
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« Reply #14 on: September 22, 2010, 01:31:54 AM » |
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Poppylicious
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« Reply #15 on: September 22, 2010, 02:29:49 AM » |
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My Blokey (husband) is on dialysis too.
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looneytunes
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« Reply #16 on: September 22, 2010, 08:25:37 PM » |
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Hi Lillinney. I also would like to say " ". |
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"The key to being patient is having something to do in the meantime" AU
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