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Author Topic: I need help.  (Read 5349 times)
Chris
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« Reply #25 on: January 05, 2010, 08:22:56 PM »
Des, you'll be alright and make it through this. I had those same feelings with my first surgery and had less time to prepare for it. As humans, we can adapt and you will. You have a hurdle to climb over and it's not an easy one, but again, you'll ,make it.

Just be sure to tip the doc to give you the really good meds pre surgery and post surgery  :shy;

Good Luck Des
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #26 on: January 05, 2010, 09:17:35 PM »
 Des.....    I am so sorry to hear about your fear.....   Fear is really hard to deal with.......   It seem like to me that its always worst that what it ends up..... and Iam certain that this too will be the same..... hang in there...... we are all here for you ...... For one   you let us know how you  feel....  not everyone can do that ..... you care so much about life.....and you care about all of us......  we all love you and we will be there with you......

     we want to help......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Quickfeet
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Mack Potato
« Reply #27 on: January 05, 2010, 10:59:09 PM »
 :grouphug; Your boss is a poopy head. Give him one of these  :Kit n Stik;. The what ifs in life are more scary than any thing life can throw at you. Focus on what you can control and take it one problem at a time. I will pray for God to lift some of this emotional stress off your shoulders. Good luck and vent when you need it.
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Rerun
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Going through life tied to a chair!
« Reply #28 on: January 06, 2010, 06:23:43 AM »
Des, it is overwhelming to think about dialysis taking over your life.  Your family is healthy and feeling well with lots of energy and you will not.  This is their opportunity to grow.  Patients and understanding is what they will learn and that is a good thing.  You will be fine.  Don't try and keep up.... make them learn to bend.
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Des
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« Reply #29 on: January 06, 2010, 11:15:20 PM »
Thankyou all , from the bottom of my heart.

I cannot express in words what these posts mean to me.  I feel so much better after reading all these messages and I have printed it out as well.

I LUV YOU ALL!.

 :thx; :thx; :thx;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kristina
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« Reply #30 on: January 07, 2010, 02:34:39 AM »

I wish you good luck and hope with you for the best.
Kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #31 on: January 07, 2010, 10:16:20 AM »
Hopefully you will be feeling better after your Jan 12 surgery. I pray the healing is quick.  :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ang
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« Reply #32 on: January 21, 2010, 05:08:42 PM »
you  need  to  put  yourself  at  the  front  of  the queue

1.recover fom  nephrectomy ( i had  2)
2.ESRD MAINTENANCE
3.everything  else


if your not  healthy(don't  know  another word),you can't  help anyone else  you
want  to  help.
good  luck  with  your  journey  ahead :cuddle;
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live  life  to  the  full  and you won't  die  wondering
Des
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« Reply #33 on: August 12, 2010, 06:41:07 AM »
I wish I can submit these posts as a "short story" for the competition. This was the most terrible time in my life and ALL of IHD came through for me and helped me through it. I still go back and read this when times are tough.
Thanks again to all.

Luv Ya.! 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: August 12, 2010, 11:40:42 AM »

Good idea Des, work on it - I'd love to see that in the contest.
 :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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