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Author Topic: Remote areas  (Read 3653 times)
Gryphon
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« on: August 31, 2011, 05:49:54 PM »
Do any of you live in a remote area and dialize at home? I'm thinking of moving to an area that dosn't have a dialysis center anywhere near it. I start class next week for nxstage and so far it sound like it's totally doable but I would like to hear from anyone that's lives in remote areas how it's working for them and any issues you have that I may not be thinking of.

Thanks,
Ed
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jbeany
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Cattitude
« Reply #1 on: August 31, 2011, 07:03:29 PM »
How remote is remote?  I was in northern Michigan when I was on.  I think it worked pretty well.  Better than traveling the long distance to the center all the time.  Depending on how far out you are, the only issue you might have is emergency change-outs when the machine has an unfixable problem.   I had a little airport about half an hour away, and they flew overnight shipments of new machines directly in to it, so it was usually pretty prompt.

Oh, yeah, and how often do you lose power?  If it's a frequent, long term thing, you might want to consider a generator.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
lmunchkin
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"There Is No Place Like Home!"
« Reply #2 on: August 31, 2011, 07:18:57 PM »
Other than the power outage, I don't see any problems being remotely located.  I mean, is there like a road to this remote place where your supply's can be delivered?

You are so going to like NxStage.  I can't wait to read your experiences with it!  And the thoughts of "Home" is just the icing on the cake!  I hope you do it, Gryphon!  Good Luck and keep us posted!

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Gryphon
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« Reply #3 on: August 31, 2011, 08:50:28 PM »
Homer Alaska is where I'm moving to. It's at least a 2 hour drive to the closest center. There is a road that goes there and an airport. It's a real town but it is small and semi remote.
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looneytunes
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« Reply #4 on: September 02, 2011, 10:30:56 AM »
Gryphon, hubby does NxStage and we are just over 100 miles from our supporting clinic.  It's about a 2 hour drive.  We have no trouble getting supplies even though our delivery driver says we live in BFE   :rofl;  And UPS goes pretty much everywhere!  We have had 2 new machines delivered and they are flown into the airport in the same town our clinic is in and then sent by courier to our home. 

 
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"The key to being patient is having something to do in the meantime" AU
Adam_W
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Me with Baron von Fresenius
« Reply #5 on: September 02, 2011, 11:29:08 AM »
I live in a small town, and my home dialysis centre was about a four hour trip by bus. I'm finally transferring to a new centre that's about 45 min away. I've never had any problems with getting supplies or having equipment replaced.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
lmunchkin
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"There Is No Place Like Home!"
« Reply #6 on: September 02, 2011, 05:00:39 PM »
That is one great thing about NxStage support, they can send anything you need as long as Neph is okay with it, they are too!  Iam on my 2nd machine also! And another thing, they have an awesome tech support!  You call and they are there on the phone with you until you are comfortable with everything!  They are Top Notch as is evidence from post above.  I am very pleased with this machiine and the people behind it!

I don't know of anyone on this site, that really have a bad thing to say about this machine!  Anyone?????????????

lmunchkin     :kickstart;

P.S. Looney, I thought about you when the question of "Remote" came up!  I know you leave out in the country or at least I have read that!
« Last Edit: September 02, 2011, 05:03:46 PM by lmunchkin » Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #7 on: September 08, 2011, 09:26:11 PM »
I was doing Nxstage out at my beach house which was 135 miles from a supporting center... no nxstage centers at all at the coast....  couple hour drive..... 

Homer    Alaska....you could barrow my huskies and just hook up and go ....LOL

  I would think you would be fine..... I really didnt have any problems with me or the machine....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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