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Author Topic: Allow me to re-introduce myself.  (Read 2375 times)
RedMist
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I see your point. Now what?

« on: July 10, 2010, 08:40:27 AM »

Greetings again,

I first visited IHD last November for about a month and then dropped off the radar.   My remaining kidney was getting so large I was having trouble breathing.  In January I sat in a hammock, swung my legs up and into it, and one end broke, dumping me on the ground back first.  I landed on the hammock frame with my remaining kidney.  For the next few days I passed the usual cystic by--products and fluids.  My abdomen decreased in size, I even returned to the gym.  But, the reprieve was temporary.  My kidney extends from the 5th rib space to two fingers above the pubic bone. I'm going to check with the Guiness Book.  So, the internist, the neph and the surgeon agree, it has to come out.  I learned a new word yesterday.  Its rather exotic and obscure, useful for impressing people.  After my kidney is removed I will be anephric - without kidney tissue.  Anephric.  It sounds like a Norse first name.   

Anyway, I have a lot tto learn and now I have the time to learn. 

Joe
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Red Mist

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YLGuy
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« Reply #1 on: July 10, 2010, 08:45:44 AM »

Welcome back!  When is surgery?  Please keep us posted.
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jbeany
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« Reply #2 on: July 10, 2010, 10:40:40 AM »

Anephric - hhhmmmmm - so did you ask the doc for the antonym, so you could have the term for someone with excessive kidney tissue, like you have now?

Unanephric?  Disanephric?  And will that apply to those of us with more than two kidneys, thanks to transplants?   ;D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #3 on: July 10, 2010, 12:19:12 PM »

Great to have you back, posting again.  Please don't leave us again.  Keep reading and keep posting.

I think the antonym for 'anephric' would have to be 'nephric' since the prefix 'a-' means 'without.
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« Reply #4 on: July 10, 2010, 12:41:03 PM »

Welcome back, Joe.  I like the new word.  I'll keep good thoughts for you and your prospective surgery.  We're always her for you!
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Fox_nc
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« Reply #5 on: July 10, 2010, 01:36:59 PM »

Sounds like you've had a rough year. I loved PD - it made me feel way better than HD. Was your 1 kidney a transplant or a remaining native kidney? I hope to be returning to the gym myself soon <fingers crossed>

 :twocents; Love "anephric"! I was that way myself for a while.  I think "nephric" would be someone with 2 native kidneys and "hyper-nephric" would be someone with 3.
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Lisa
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« Reply #6 on: July 10, 2010, 04:08:35 PM »

I would go with polynephric when you have many kidneys!!!   
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
natnnnat
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« Reply #7 on: July 11, 2010, 04:14:57 AM »

... and when you have one of those enlarged kidneys?  .... meganephric?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
RedMist
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I see your point. Now what?

« Reply #8 on: July 12, 2010, 02:30:01 PM »

Thank you for warm welcome.  Since the life of the mind will soon be a much larger component in my life I decided to indulge myself in a bit of whimsy, wordplay.  My wife hates it cuz I usually win.   I developed thirteen major categories of renal possession and function.  Seems to me a suffix is a good as prefix to a blind horse so do your worst, or best, lay on MacDuff, Git 'er dun, etc.....

w/o KD ESRF
w/o 1 KD
w/o 1 KD ESRF
1 big KD only
1 big KD only ESRF
1 small KD only
1 small KD only ESRF
2 big KDs
2 big KDs ESRF
2 small KDs
2 small KDs ESRF
X>2 KDs
X>2 KDs ESRF
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Red Mist

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RedMist
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I see your point. Now what?

« Reply #9 on: July 12, 2010, 03:05:37 PM »

I don't know when surgery will take place.  My surgeon wants to me visit a dialysis center so I do that manana (tomorrow).  He's also setting a meeting with the transplant team so I can evaluated and to address some practical and ethical concerns I have.  Seems that might have some bearing on what type of dialysis I should use.  Then there's the issue of access.  Dunno how long it takes for a AV Fistula to be ready.   

On the one hand, I hope it's soon because I'm confined to sitting around and falling asleep periodically.  That wreaks havoc with my web site and graphics construction.  I fade into the ethers with my hand on the mouse and am horrified by what's on the monitor.  For aa couple of years I've run Google Ads on the site and lately have been looking into other companies Ad Revenue programs.  I woke up one time to find a 200 x 375 pixel ad for "Mature Nannies Teach Schoolboys Manners" in the right column of the homepage.  I thought that was amusing in a Rodney Dangerfield sort of way.  My wife however, saw nothing at all humorous about it.  She had surgery done on her hand and knee in the past two months and I'm worried that while in the hospital she caught one of those fleshing eating microorgamisms and it lodged in the humor section of her brain.   :shy;

On the third hand, I'm drinking about a gallon of weak iced tea a day (AZ summers - 109F) and it's sooooo good.   Perhaps thirst will follow appetite into the hither and yon.  AZ is famous for heat stroke because our humidity is so low we usually don't notice perspiration because it evaporates too quickly to accumulate on the skin.  I'm sure those of you in Oz can relate.  Anyway, it's easy to forget to drink.   Sorry to talk in so many directions at once.   I do come by it honestly.  In addition to low KD function, the cyst contents, infections, insulin dependent diabetes. I've also been blessed with bipolar disorder.  Tangential thinking is a hallmark of bipolar disorder.  It's also a hallmark of politicians on the defensive at public appearances.   

I see I'm foaming at the mouth again.  TTTYAL,

Joe
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Red Mist

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natnnnat
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« Reply #10 on: July 12, 2010, 05:24:58 PM »

What fun!  Now let me see, what have we got so far?...  nephric, anephric, polynephric, meganephric... hmm.

w/o KD ESRF
w/o 1 KD     ----------uninephric
w/o 1 KD ESRF
1 big KD only   ----------------macro-uninephric
1 big KD only ESRF
1 small KD only         -----------------micronephric
1 small KD only ESRF
2 big KDs                ----------------meganephric
2 big KDs ESRF
2 small KDs        ---- nephric?  this is "normal" isn't it... or do we need another category in here for "normal"?
2 small KDs ESRF     ---------
X>2 KDs           --------------polynephric
X>2 KDs ESRF

the question in my mind is, do you get shrunken kidneys?  I think you do?  so we need categories for small kidneys and categories for normal sized kidneys... as well as (we already have) categories for large kidneys)....

I love this kind of thing, was a librarian in a past life and a mathematics student in a life prior to that...  appeals to my love of classifications and categories.  Even though i know that to categorise is a political act.

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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
looneytunes
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Wishin' I was Fishin'

« Reply #11 on: July 12, 2010, 07:32:44 PM »

Welcome back RedMist  :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
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