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woodsman
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« on: June 18, 2010, 03:49:24 PM »

Hi everyone. My name in Jim and i am at stage 4 (IGA) and will be getting a port installed iin sept. I am not looking forward to this but it hasd been coming for many years. i am at 17% kidney function, i feel just fine so why put in a port.... 
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rookiegirl
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« Reply #1 on: June 18, 2010, 07:27:39 PM »

Hi Woodsman - Welcome to IHD.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Mimi
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« Reply #2 on: June 18, 2010, 08:31:27 PM »

They tried to do that to me, too.  I said nosireeeee.....
Course I had to find a new neph.
Stand your ground if you are not ready yet.

Welcome to IHD.
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it is putting out the lamp because the dawn has come.
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« Reply #3 on: June 18, 2010, 10:58:44 PM »

Welcome to our community!  This is just the place to come to for information and support.  You might be feeling fine now, but it is best to have the port ready just in case things become more difficult (which is very likely).  Then you would not need a catheter for emergency dialysis.   There is lots to read here - very helpful material.  It should help you in your decisions.  Please remember that this is much more than a website; it is a caring and sharing family :grouphug;  Just keep reading and keep posting and let us know how you are doing.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
galvo
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« Reply #4 on: June 18, 2010, 11:36:21 PM »

G'day, woodsman and :welcomesign;.
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Galvo
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« Reply #5 on: June 19, 2010, 12:02:51 AM »

  :welcomesign; to IHD Woodsman.
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One day at a time, thats all I can do.
peleroja
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« Reply #6 on: June 19, 2010, 11:35:50 AM »

Welcome to the group.  Although you're at 17% and feel fine, things can change rapidly with ESRD, so they want you to be prepared in order to lessen the number of surgeries.  Take me, for example.  I had 18% and then the neph gave me Zocor for cholesterol.  One month to the day later I was in the hospital with rhabdomyolisis and failing kidneys.  I had to have surgery for a chest catheter in order to receive hemo, and then had to have surgery to put in my PD catheter.  See what I mean?
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joyfulmother
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Becky

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« Reply #7 on: June 19, 2010, 01:06:04 PM »

Welcome Jim - you will find lots of great information and support here.
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
aharris2
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« Reply #8 on: June 20, 2010, 06:07:11 AM »

Hi everyone. My name in Jim and i am at stage 4 (IGA) and will be getting a port installed iin sept. I am not looking forward to this but it hasd been coming for many years. i am at 17% kidney function, i feel just fine so why put in a port....

Hi woodsman. As you continue on this journey, hopefully this site will be a "light in the forest".
 :shy; (bad, huh?)

 :waving; Welcome to the neighborhood. There's lots of great information here. Read, and you will find posts regarding when to have your access established, perhaps something that will answer your question and help with your decision.

Alene
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Rest in peace my dear brother...
woodsman
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« Reply #9 on: June 24, 2010, 04:26:19 PM »

I really bdon't get this whole kidney thing, i feel fine maybe a bit tired at times but otherwise i feel great. They say i may need the fistula installed soon and that i understand but i think it may be a bit premature and i may wait to have this done. I know it is risky but while i feel great i don't want to look at that thing in my arm each day and be reminded..

OOPS i almost forgot to say thanks to you all for the welcome....  :Kit n Stik;
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fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #10 on: June 24, 2010, 04:48:55 PM »

 :welcomesign;  Jim,   You have come to the right place with many wondeful and caring peole who are fun to be around and full of the information that you will need.  Be sure to look around and read, read, read.   There is a lot of inforamtion here and it is very usefull.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
kellyt
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« Reply #11 on: June 24, 2010, 05:04:33 PM »

 :waving;  Hi Jim.  Get the "port".  You don't want to wait til it's too late.  I'm guessing a "port" is a "fistula" and it will take a few months to matrue.  Plus, what if it doesn't work or stops working right away like my first fistula?  You will have to get another.  Get it now and be prepaired.  I'm so glad you found this site.  You will love it here.  Lots to learn and lots to meet.  Welcome!!   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #12 on: June 28, 2010, 02:06:17 PM »

    Jim, like Kellyt  (Hi kellyt, hope ur doing ok too) I say get the fistula.  You don't want to wait till it is too late.  If not they will have to put in a perm cath and use hat while you wiat for your fistula.  Perm Caths are not pretty, they are subject to infection, and you can't take a shower or get them wet for rishk of infection.  A real hassel.  Besides when you have to start dialysis, if you eveer have to, you want to be ready.   :bestwishes;
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
CharmedMist
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« Reply #13 on: June 28, 2010, 04:35:46 PM »

Welcome Jim.

I'd say go ahead and get the fistula, go ahead and be prepared.
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Nothing in all the world is more dangerous than sincere ignorance and conscientious stupidity.
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