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KidneyforKatie
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« on: April 29, 2010, 12:38:01 AM »

Hi there everyone! I'm new to the site I thought I'd introduce myself.. My name is Katie and I grew up in central California. By the time I was 13 I got dialgnosed with kidney disease. I started dialysis at 18 and had a transplant shortly after. 6 months later the kidney rejected do to non compliance and now I am 22 and have been on dialysis every sincE. I do hemodialysis during a noctournal shift so I'm in the machine 8 hours 3 nights. The biggest mistake of my life has been the loss of my transplanted kidney and now, four years and alot of growing up later, I believe I am ready for another transplant. now my fate is in the lists hands. Being a young, active person on dialysis is often hard and I look forward to meeting many people that can actually say that they understand what I am going through. -kt :waving; 
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KidneyforKaTie8^•
monrein
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Might as well smile

« Reply #1 on: April 29, 2010, 03:35:33 AM »

 :welcomesign; to IHD Katie and I'm so sorry to hear about the loss of your transplant.  Kidney disease certainly isn't easy and being young doesn't help either.  I started the first time at 26 so was a bit luckier than you were at 18.  Mistakes are tough to handle too but they do tend to grow us up in a hurry and I hope that you can forgive yourself and get a new kidney so you can get on with life. 




EDITED: Fixed smiley error - Rerun, Moderator
« Last Edit: April 29, 2010, 05:01:39 AM by Rerun » Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!

« Reply #2 on: April 29, 2010, 05:04:36 AM »

Hi Katie and welcome to IHD.   :welcomesign;

Central CA is so beautiful or at least it was before they cut the water.

There are some people on this site in your exact position.  Hard lesson to learn, but with you help maybe your testimony could save another teen from doing the exact same thing.

Thank you for joining and I look forward to your posts.

Rerun, Moderator
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MooseMom
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« Reply #3 on: April 29, 2010, 01:21:17 PM »

I think you're ready, too. :cuddle;  Welcome to our community.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cloud393
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« Reply #4 on: April 29, 2010, 01:47:10 PM »

Welcome to the site.  You've learned a hard lesson and I'm sure you'll know better next time around.  Look forward to getting to know you.
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May you live as long as you want and never want as long as you live.
galvo
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« Reply #5 on: April 29, 2010, 03:09:27 PM »

G'day Katie and :welcomesign;.
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Galvo
paris
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« Reply #6 on: April 29, 2010, 05:59:13 PM »

Hi Katie,   No young person should have to experience what you have been through.  You will find members here that totally know where you are and what you are going through.   We are glad you found us and we look forward to learning more about you.  I think you will have a lot to share.  Welcome to IHD   :2thumbsup;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
RichardMEL
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« Reply #7 on: April 29, 2010, 08:28:23 PM »

G'day Katie and welcome. I have a soft spot for all girls named Katie, so I wish you a very warm welcome :)

Reading between the lines it sounds like you lost your transplant due to your own actions? Can I ask what happened there? Did you not stick with the meds because you felt so good and normal - that kind of thing? I'm interested.

You've had 4 long years now to wait again - I certainly hope you get another bite of that cherry soon.

I am envious of your nocturnal shifts. I would love to be able to do that - I think it would really help - alas my unit does not offer it (boo hoo!).

Anyway welcome and we look forward to hearing more for you!

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
looneytunes
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Wishin' I was Fishin'

« Reply #8 on: May 02, 2010, 06:29:14 PM »

Hi Katie and I also welcome you to IHD.  Lots of great folks on here that will help you in any way possible.  (look out for the moderator who has the soft spot for young girls named Katie, though... just kiddin', RM is a great guy). 

Hope you get another transplant soon!   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: May 03, 2010, 03:15:16 PM »

Welcome to our community.  Your experience strikes a real chord with us.  My caring thoughts are with you concerning the possibility of a new kidney.  We will all rejoice with you!  :grouphug;  Meanwhile, please use this website for informtaion and support. Keep reading and keep posting.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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