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Author Topic: Now he has Pulmanary Edeama  (Read 6897 times)
Dianejt
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« on: July 20, 2010, 05:34:26 PM »

Yup let's just add to the list. This weekend was tough on Frank, it has been HOT & Humid here in the North East so Saturday he was having such a hard time breathing & coughing up blood in his phelm. He wouldn't go back to the hospital (who can blame him he has only been home 8 days after being in 32 days). He had a doctors appointment with the Urologist in the am before dialysis Monday. The Doc told me to have them order chest xray & blood gas there at hospital (he is still doing dialysis as outpatient at the hospital as the Davita doesn't have beds & he is still in tough shape). The blood gas came back fine but the xray showed fluid in his lungs (I was actually pleased as I was half expecting them to say the cancer had spread to the lungs also). They also had to give him 2 units of blood (that is now 27 units since April). They took off 5 liters of fluid & said they will be aggressive on the next treatment also. His right leg (the one with the blood clot) is so swollen , he keeps saying look at my fat leg) His breathing is better today, still slightly laboard but much better than this weekend. They also told me at dialysis last week that he is not near his dry weight yet. Why does it take so long to get there?
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Dianejt
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« Reply #1 on: July 24, 2010, 06:33:49 AM »

Well Franks feeling much better after they took off loads of fluid this week. All 3 sessions they took off between 4-5 liters. His breathing is much better, he stopped hacking up blood. His feet look almost normal again. I just don't understand why they where not taking off enough fluid in his previous sessions.Yesterday they wanted to take 5500 but when he got to 4800 he started feeling pain in his stomach so they ended his session 20 minutes early. He was really wiped out & it was a tough ride home but he said last nights sleep was awsome, the best he has had since starting D. Hurrah, maybe this will work & he will start feeling human again.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
monrein
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Might as well smile

« Reply #2 on: July 24, 2010, 09:55:17 AM »

Oh Diane, so good to hear a little better news about Frank.  He's really been through the proverbial mill.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Darthvadar
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« Reply #3 on: July 24, 2010, 10:59:04 AM »

Another crisis gotten through....

Thank God Frank's doing a bit better... Hope the improvement continues...

Love to you both...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
YLGuy
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« Reply #4 on: July 24, 2010, 12:06:31 PM »

I am glad to hear he is doing better.  One of the reasons that they cannot pull all the fluid off at once is that his blood pressure will bottom out if they pull too much off at once.  The first 30 days of dialysis I lost 17 k's.  I am now usually about 1.5 over when I go in.
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natnnnat
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WWW
« Reply #5 on: July 24, 2010, 11:57:10 PM »

Glad to hear of some respite for you both.   :thumbup; :thumbup; :thumbup; :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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