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Author Topic: PD Catheter and intestinal pain after eating.  (Read 3929 times)
tinyspiko
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« on: March 09, 2010, 07:36:18 PM »

I just got my PD catheter placed last Friday. It has been five days and every time I eat, even soup, my insides hurt  ???. I can feel the food going through. Is this normal? I am very small, 4'11" and am wondering if I just don't have a lot of room in there. My Neph said the PD cath goes down in front of the intestines. Also, how long did it take for the swelling and pain to go away? Any insight would be appreciated. Thanks.
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1970 Born with ureters in wrong side of bladder. Reflux for 4 1/2 years. Sever scarring.
1974 Surgery to fix birth defect and abdominal hernia.
1989 - Diagnosed with Hashimoto's Hypothroid
1991 - Diagnosed with Primary Adrenal Insufficiency (Addison's Disease)
Nov 2009 - Listed for Transplant at Shands (Gainesville, FL)
1970 to 2010 40 years of CKD
Mar 2010 PD Catheter placed
April 2010 PD Started, Baxter Cycler
Nov 2011 Dialysis is taking it's toll. But, I am still here kicking death's ass! Tired...So very tired...But kicking!

Have SEVERE PTSD from Medical Related Trauma in Childhood (took me 3 years to get listed because of it)

Do what you can, with what you have, where you are.  ~Theodore Roosevelt
Lisa
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« Reply #1 on: March 09, 2010, 08:27:44 PM »

Hello
What tpe of surgery did you have to place your cath?  I had mine placed laproscopically.  It took a week to get over the surgical pain.  I still haven't used it yet to dialyze yet but they have flushed in several times.  I am only 5" so I can tell you that I get a pulling pain in my groin when I am in certain positions and my PD nurse said it is probably rubbing on my bladder and when I start to keep fluid in for the dwell that pain will go away.  It very well could be a temporary thing.
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
KICKSTART
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In da House.

« Reply #2 on: March 10, 2010, 02:28:58 PM »

Regardless of size and weight it takes 6-8 weeks to heal internally from having a cath put in ! But i would like to ask ..where is the swelling? or do you have fluid in ? is that what you mean? Are you doing exchanges?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
GeeWillikers
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« Reply #3 on: March 27, 2010, 03:12:14 PM »

I had mine done last Tuesday and have already been using it...

I get a little pain when I eat too - nothing major, but I can tell that things aren't as they used to be.  I'm sure it's just a period of adjustment and in time I'll get used to it.
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tinyspiko
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« Reply #4 on: April 12, 2010, 04:38:31 PM »

Thanks for all the replies. Kickstart - you are right they told me 6-8 weeks for everything to heal internally. I had my surgery laproscopically. I had to start taking stool softeners. I also take in a ton of fiber to help. Some of the pain is from constipation and some from swelling/healing. I have Addison's and Hashimoto's. The Addison's is autoimmune so I heal much slower. Thanks again for the input and support.  :thx;
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1970 Born with ureters in wrong side of bladder. Reflux for 4 1/2 years. Sever scarring.
1974 Surgery to fix birth defect and abdominal hernia.
1989 - Diagnosed with Hashimoto's Hypothroid
1991 - Diagnosed with Primary Adrenal Insufficiency (Addison's Disease)
Nov 2009 - Listed for Transplant at Shands (Gainesville, FL)
1970 to 2010 40 years of CKD
Mar 2010 PD Catheter placed
April 2010 PD Started, Baxter Cycler
Nov 2011 Dialysis is taking it's toll. But, I am still here kicking death's ass! Tired...So very tired...But kicking!

Have SEVERE PTSD from Medical Related Trauma in Childhood (took me 3 years to get listed because of it)

Do what you can, with what you have, where you are.  ~Theodore Roosevelt
clappedout
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« Reply #5 on: April 13, 2010, 11:54:46 PM »

I have been using mine for 3 months now and its just started to settle in. i found when you have at least 2 litres in your P..you tend to eat a lot less as you feel full more quickly...well I do anyway. I also had a severe pain in my shoulder...the team at the hospital tells me its quite common and is caused by cath touching nerves or something. the only cramping I have experienced so far is on an exchange when getting empty...
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jersey girl
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« Reply #6 on: April 17, 2010, 04:42:36 PM »

I've had pain like that, as well.  My neph told me the same thing, that when you are empty, the catheter sits on something inside and hurts. Once you start using it, it will float in the fluid.  That can also move it from where it is causing a problem.  Mine still moves sometimes and I o on tidal mode for a couple of weeks until it stops hurting when I drain. 
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