Lola needs HELP!!!!!!

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Lola needs HELP!!!!!!

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okarol

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Re: Lola needs HELP!!!!!!

« Reply #50 on: April 03, 2010, 12:23:16 PM »

Oh lola, thats frightening for all of you. I hope things improve... sending you and Otto and sweet little Cierra

HUGS!


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU

Chris

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Re: Lola needs HELP!!!!!!

« Reply #51 on: April 03, 2010, 08:53:06 PM »

Lola, I hope the new/old center works out better and Otto show's improvement.


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Diabetes - age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
   -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
   - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless

No two day's are the same, are they?

lola

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I can fly!!!

Re: Lola needs HELP!!!!!!

« Reply #52 on: April 05, 2010, 03:50:22 PM »

OMG!!!!!! So today suddenly there all worried there is something going

told them had they LISTENED when Otto tried to tell them that for the last 2 months he would MAYBE have continued with home-hemo. Now he needs to go see his DR ASAP they are worried something may be going on with his heart. BP is still running low after 4 days now with no meds, although since no dialysis this weekend he had no crashes.


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okarol

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Re: Lola needs HELP!!!!!!

« Reply #53 on: April 05, 2010, 04:38:19 PM »

Damn!


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KarenInWA

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Re: Lola needs HELP!!!!!!

« Reply #54 on: April 06, 2010, 04:28:26 AM »

I'm confused about something. They say Otto wasn't doing "enough" dialysis at home when doing 4 days a week. So, how is it "better" for him to be doing 3 days a week in center??? The math doesn't quite add up for me....

Wouldn't 4 days a week be better than 3 days a week, and... why do 5 days a week if it was making him crash?

I'm so confused....

KarenInWA


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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011 - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!

lola

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Re: Lola needs HELP!!!!!!

« Reply #55 on: April 06, 2010, 08:25:03 AM »

Karen in-center is "harder", at home you are able to pull less fluid since you do it more days a week making it easier on your body. They are now wondering if his symptoms are due to something with his heart? I'm praying it's just that they had his over medicated.


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lola

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Re: Lola needs HELP!!!!!!

« Reply #56 on: April 06, 2010, 03:36:23 PM »

Otto crashed again today

went to DR and the ran labs EKG and he has a big word problem with his heart muscle. Dr said the muscle is no longer strong enough to hold a good BP so he's on a med to hopefully help that. Praying we can start in-center Friday that way he always has someone there. Today happened so fast again holding on to him his lines and couldn't reach the phone to call 911 THIS SUCKS!!!!!!


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okarol

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Re: Lola needs HELP!!!!!!

« Reply #57 on: April 06, 2010, 04:14:09 PM »

Oh lola honey, I am so sorry!


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lola

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Re: Lola needs HELP!!!!!!

« Reply #58 on: April 09, 2010, 05:09:14 PM »

Well this will be my last post in this section as Otto "officially" started in-center today. Otto did GREAT

when his BP started to go down hill they tweaked things and he stayed with them. The staff was so great, VERY friendly what a difference!!!! I stayed with him for about an hour and decided it was time to leave him in there hands, I walked out the door and felt 200lbs lighter!!!!!! Thanks for the support while we did home-hemo....


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paris

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Re: Lola needs HELP!!!!!!

« Reply #59 on: April 09, 2010, 05:25:12 PM »

I am glad you could let others take care of Otto for a bit. You both gave it a great try. I hope in-center is good for both you and Otto. You are an amazing wife!!


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okarol

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Re: Lola needs HELP!!!!!!

« Reply #60 on: April 09, 2010, 05:46:06 PM »

It's a lot of responsibility if things aren't working on home hemo. I hope he feels better, and I hope you can enjoy the break from the worry for a while.