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Author Topic: low WBC AGAIN!  (Read 3022 times)
staceyand joe92
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« on: April 01, 2010, 11:32:00 AM »
If anyone has any suggestions or past history with low WBC please I would be so thankful for any input.....My WBC count dropped at three months post-transplant to 0.2 and I started giving myself Neupogen injections. I was admitted to the hospital shortly after that with a 102 fever. I was given steroids and antibiotics and sent home after four days. My WBC count went up to 11 and then dropped to 5 and now is hovering around 1.2! I'm still giving myself injections but they don't seem to be working. I am so grateful for my new kidney but it  is so frustrating that I can't go out and enjoy my new life because I may catch a cold or worse........am I expecting too much too soon?
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in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
okarol
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« Reply #1 on: April 01, 2010, 11:34:34 AM »

What immunos are you on? They WBC didn't improve after reducing your meds?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
staceyand joe92
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« Reply #2 on: April 01, 2010, 11:59:28 AM »
I am on Prograf and Cellcept. I am on the lowest dose possible of both....I also still take Valcyte because I am CMV- and donor was CMV+. They held the Valcyte for awhile but my WBC still dropped. They have lowered my Cellcept to almost nothing. Maybe it's time to switch meds?
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
okarol
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« Reply #3 on: April 01, 2010, 12:45:23 PM »
Jenna had the same problem so she is now on 1/4 of a Cellcept tablet and 1.5 of Prograf twice a day. Hopefully it will come up a bit next labs.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #4 on: April 01, 2010, 01:17:11 PM »
Mine got better after the Valcyte was discontinued. I hope you get some answers that help.
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staceyand joe92
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« Reply #5 on: April 01, 2010, 01:50:43 PM »
I am thinking it is meds related. My creatine bounces around too anytime they adjust my meds. I go back to the clinic on Monday for labs and to see the doc. Hopefully my levels will be up by then....I have one more shot of Neupogen before labs. I'm crossing my fingers. I don't want to end up in the hospital in the "bubble" again!
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
sullidog
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« Reply #6 on: April 01, 2010, 05:19:11 PM »
I certainly hope they figure it out so that you can start living the life you wanna live.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Chris
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« Reply #7 on: April 02, 2010, 09:53:20 PM »
I am on the same meds, CellCept and Prograf. I was CMV - while my donor was psotive for CMV which I developed CMV later. When I was put on Nuepogen I had to take it for several months before my WBC became stable. Keep pushing fluids to hel creatine results oo. Hopefully your WBC wil become stable soon.
 
 
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
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Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
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Eye Surgery - Nov 2012
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No two day's are the same, are they?
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