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Author Topic: Not whingeing!  (Read 3095 times)
MooseMom
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« on: March 29, 2010, 02:06:31 PM »
I am the first to admit that I have done pretty much nothing but whinge since joining IHD.  I am not going to apologize for that because I don't want anyone who posts here to ever feel like they have to apologize for unleashing their fears and worries regarding IHD; that's one reason why this forum exists.  But for all of those people who have encouraged me and other newbies along the way, I just wanted to share two small pieces of good news.  It is pretty rare for me to get good news these days, so when I do, I want to shout it from the rooftops.

1.  I got the results from my stress test (for the pretransplant protocol)...NORMAL!  I was really worried about this particular test; I don't know why.  I've never had any cardiac issues, so I guess I was afraid that there was some sneaky heart thing that would preclude me getting on the list.  There is one cardiac test result outstanding, but the tech let slip that she thought everything looked good (it was an echocardiogram).

2.  I went back to the vascular surgeon today to have the stitches removed from my fistula.  I have to say that my arm has been much more painful than I thought it would be; I get shooting, nervy pains down my numbed wrist that are very disconcerting, so I was worried that the surgeon would take off the bandages and would faint because my arm was about to fall off or something.  But no, he said that it looked "excellent" and that he'd put it in "the A++ category."

So, yeay me for once!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
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« Reply #1 on: March 29, 2010, 02:46:13 PM »
Actually MooseMom, in my book those of two of the best pieces of news to receive at this point in your journey.  Heart issues are serious and can complicate so many things we deal with and a good fistula is truly something to be thankful for as anxiety around it's functioning can be huge and cause tremendous stress every time we must cannulate or be cannulated.  (I say this with Des especially on my mind right now.) 

As for constant whingeing ...that's certainly not how I've experienced you at all.  I've appreciated your honesty about your fears and anxieties and admired your courage to face them.  And btw, what make not feel like courage can still appear as such to others looking in from the outside.  You just keep on using this forum in any way that is helpful to you and you can be assured that someone out there will be going through what you describe.

Thrilled about your great news.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #2 on: March 29, 2010, 04:54:07 PM »
I still am feeling angry for Des; no one should have to go through something like that.  I sure hope that whatever the problem is, it is sorted out very quickly.

I went for almost 15 years without any treatment at all for my fsgs other than being prescribed blood pressure meds.  No one ever mentioned anything about high blood lipids or prerenal diets or anything at all about the many varied issues that run parallel to CKD.  When I first began treatment, my cholesterol was 550 and triglycerides 2100.  I've always been concerned about any accumulative damage that might have been done during those early years of CKD.  Maybe there IS damage that I just don't know about yet, but at least I've had five years of pretty aggressive treatment since.

I don't know how someone overcomes the effects of events like that experienced by Des.  I guess all you can do is press on and hope that next time will be better.  It's like a nightmare come true, and I think we all know a bit what that feels like.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
sullidog
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« Reply #3 on: March 29, 2010, 05:20:24 PM »
It's ok, there's always someone else with the same problems, you are just like a lot of new patients, unsure, and knervous, there's absolutely no problem with that.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
galvo
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« Reply #4 on: March 29, 2010, 05:33:44 PM »
Love the good news. :clap; :clap; :clap;
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Galvo
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Sunny
« Reply #5 on: March 29, 2010, 09:53:14 PM »
Glad to know the echocardiogram went well and your fistula is healing nicely. Good news.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Jean
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« Reply #6 on: March 30, 2010, 12:05:23 AM »
Sounds good MooseMom. Glad to hear it.  :clap;
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One day at a time, thats all I can do.
Joe Paul
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« Reply #7 on: March 30, 2010, 02:50:59 AM »
Glad for the good news  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paul.karen
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« Reply #8 on: March 30, 2010, 07:24:57 AM »
Have some Cheese with that  :wine;.  I'm just kidden MM.

The good news is you found IHD.  And the better news is what you posted above.

So you get Two  :2thumbsup;....

may all continue to go well with you.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
okarol
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« Reply #9 on: March 30, 2010, 08:24:01 AM »

I love good news...  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #10 on: March 30, 2010, 09:23:28 AM »
Good news for you!!!! YEAH... Please send some my way....
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
MooseMom
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« Reply #11 on: March 30, 2010, 11:12:16 AM »
Quote from: Des on March 30, 2010, 09:23:28 AM
Good news for you!!!! YEAH... Please send some my way....

Oh man, I wish I could!  Sounds like your fistula is still in working order, so that's something!  How are you feeling today?  How is your poor arm?  I hope you are finding some nice way to treat yourself after Monday's fiasco; you deserve some little indulgence!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
murf
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« Reply #12 on: March 30, 2010, 04:18:19 PM »
I also had kittens before my cardiac stress test. Probably because I knew that if I failed I would be taken off the transplant list that means so much to me. Got re-tested recently and passed as well. Good news for you and should be a load off your mind.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
MooseMom
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« Reply #13 on: March 30, 2010, 04:25:52 PM »
Quote from: murf on March 30, 2010, 04:18:19 PM
I also had kittens before my cardiac stress test. Probably because I knew that if I failed I would be taken off the transplant list that means so much to me. Got re-tested recently and passed as well. Good news for you and should be a load off your mind.

Exactly.  I have worked so hard for so long to keep myself as healthy as possible because getting on that list means the world to me.  I can't imagine being on the list and then having to be taken off, so I am so very glad that your re-testing gave you a good conclusion!  You keep up the good work!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Lisa
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« Reply #14 on: March 30, 2010, 05:07:47 PM »
Great to hear the good news, you deserve some at this point!!
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
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