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lou
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« on: December 22, 2009, 07:35:04 AM » |
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Ok bit of a strange one maybe? I started pd again last night after having my new tube fitted on Friday. Every time it drained during the night I woke up with the most horrible pain in the you know where! All I could do was bite on the pillow to stop myself screaming out. Please tell me I'm not going mad and someone out there knows what this is???  Hope your all having a good holiday x x |
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peleroja
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« Reply #1 on: December 22, 2009, 08:01:33 AM » |
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Sorry, not a clue. The only "pain" I ever felt was a gentle ache as the drain neared completion, as if the abdomen was unhappy that it was empty. That only happened on manual.
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paul.karen
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« Reply #2 on: December 22, 2009, 08:06:51 AM » |
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I made a very similar post a month or so ago.
My PD nurse told me she had never heard of this before. We decided it must just be sucking and hitting a certain nerve to cause the pain. I explained it like an electrical shock. it eventually went away or i just got use to it lol.
if it doesn't get better for you i suggest you don't fully drain at night do tidal and you will only have to suffer from it on the last drain.
it only hurts at the end of a drain right?
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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Jie
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« Reply #3 on: December 23, 2009, 09:02:00 PM » |
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The tube is probably too close to the "area". Changes in sleeping positions may help.
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girliekick
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« Reply #4 on: December 23, 2009, 11:43:50 PM » |
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read some of my first post this was a huge problem for me, i now do tidal, and it is less of a problem. The is there almost every night. I tried many things to help. Surg, cath manipulation -very painful- pain meds, and removing my IUD.
Keep us posted
girl
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
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*kana*
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« Reply #5 on: December 27, 2009, 03:47:00 PM » |
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SAdly, you are not alone. I would jump around and scream like a sailor when it starting pinching my innards. What I do now is when I feel it getting ready to strike, I just pinch my tubing until it moves on to the fill cycle.
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PD started 09/08
PKD kidneys removed 06/17/09
Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09
Hemo 06/2009-08/2009
Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
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jennyc
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First day of school 08'
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« Reply #6 on: December 28, 2009, 04:26:28 AM » |
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It always happens to me on the first cycle (i'm on rivitrol at night so once i'm asleep i don't feel it). So long as i know i'm finished draining i just bypass the machine and go to fill.
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2003 January - acute renal failure
March/April - Started PD
2009 October - PD failing, First fistula put in.
Cadaveric Transplant 27/1/2010
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sico
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wheres my bike gone?
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« Reply #7 on: January 03, 2010, 02:50:16 AM » |
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Yeah lou i've had that. Sometimes on the fills too.
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Brad  "Got myself a one way ticket, going the wrong way" - Bon Scott 6/11/08 diagnosed with ESRF, dialysis that day HD and PD 8th of April 2010 Live kidney transplant from my father. |
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girliekick
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« Reply #8 on: January 04, 2010, 01:01:40 AM » |
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me too on fills. Apparently thats kinda rare.
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
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Quickfeet
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Mack Potato
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« Reply #9 on: May 26, 2010, 09:42:27 PM » |
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Just recently started CAPD. I have pain when I first start to fill and when I am at the end of the drain. It is getting better though; when I was going in for just a flush it was horrible. I had pain in my testicles, the head of the penis, bladder and prostrate. I understand the bladder and prostrate but I guess the other must be pressure on a nerve.
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