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Hello!
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Topic: Hello! (Read 1954 times)
jvarnold
Newbie
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Posts: 12
Hello!
«
on:
March 15, 2010, 07:19:32 AM »
Good Morning everyone! I've visited this board several times and just decided to join so I could be involved in asking some questions I was unclear about. Who better to get advice than from people who've experienced first hand! My boyfriend was diagnosed with kidney failure when he was 18. His symptoms seemed to fade away after that and he became better. Then, about 2 years ago, at age 28, he started feeling the symptoms again. He's a very active man..he was a lifeguard, worked out every day, was on the bike team at Texas Tech, went to Tech for engineering. He's been diagnosed with end stage kidney disease and he's been on peritoneal dialysis since August 2009. Its been very hard on him since he's had to put his life on hold, yet he still wants to pursue a career as a nephrologist. The doctors dont know why he had kidney failure. He tries to stay active now, he's tired and sometimes doesn't have the energy to get up and go workout. I've had to do his PD for him once because he was so tired. I'm as understanding as I can be since I've only been with him 9 months. Oh but what an eventful 9 months its been! Just this past Saturday we found out his mom was borderline diabetic, so she is unable to donate to him. She is devistated! I am still willing to donate and will hopefully be getting a call soon. I will post questions on other topics as I know this is a Introduce only
Thanks for the opportunity to share our story!
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YLGuy
Elite Member
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Posts: 4901
Re: Hello!
«
Reply #1 on:
March 15, 2010, 07:24:34 AM »
I am glad you found IHD. It sounds like he is pretty lucky to have someone like you in his life.
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monrein
Member for Life
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Posts: 8323
Might as well smile
Re: Hello!
«
Reply #2 on:
March 15, 2010, 08:01:05 AM »
to IHD and I hope that you'll post often here with your questions as well as share your own experiences so we can learn from them too. We have several members from Texas and members on PD. I hope that your boyfriend might decide also to join himself for support and information.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Rerun
Member for Life
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Posts: 12242
Going through life tied to a chair!
Re: Hello!
«
Reply #3 on:
March 15, 2010, 09:03:46 AM »
Hello jvarnold and welcome to IHD. I'm so glad you joined. God Bless you for supporting your boyfriend during this tough time. He is young and no doubt will get a kidney. Things will not be cured but much better then.
Keep reading. Lots to learn on here.
Rerun, Moderator
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galvo
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Posts: 7252
Re: Hello!
«
Reply #4 on:
March 15, 2010, 04:05:25 PM »
jvarnold! You'll get answers to your questions here and friendship and support.
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Galvo
-Lady Noir-
Full Member
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Posts: 416
Where's your will to be weird?
Re: Hello!
«
Reply #5 on:
March 15, 2010, 04:14:41 PM »
This website is the best! Lots of support for dialysis patients, as well as their family members/caregivers. My partner too has been on PD since June 2009. Looking forward to hearing more from you jvarnold
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free
..Nik..
Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009
Started CAPD June 2009
Stared APD September 2009
ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
peleroja
Elite Member
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Posts: 1585
I have 16 hats, all the same style!
Re: Hello!
«
Reply #6 on:
March 15, 2010, 04:21:55 PM »
Welcome to the group. Lots of good information here. Be sure and let us know how things are going.
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Lisa
Full Member
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Posts: 104
Re: Hello!
«
Reply #7 on:
March 15, 2010, 05:44:14 PM »
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
looneytunes
Elite Member
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Posts: 2071
Wishin' I was Fishin'
Re: Hello!
«
Reply #8 on:
March 16, 2010, 05:34:12 AM »
Hello and welcome to IHD!
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"The key to being patient is having something to do in the meantime" AU
okarol
Administrator
Member for Life
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Posts: 100933
Photo is Jenna - after Disneyland - 1988
Re: Hello!
«
Reply #9 on:
March 22, 2010, 01:56:37 AM »
Hi jvarnold,
Glad to see you join the forum. Your boyfriend is lucky to have a partner willing to get involved and be supportive. So sorry about his mom but hopefully things will work out for a transplant. Best wishes to you both.
Welcome!
okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
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