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Author Topic: May I join your group?  (Read 3286 times)
pmbaer
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« on: November 15, 2006, 08:22:41 PM »

Hello to all:

My name is Patrice.  I was born with a birth defect that caused kidney damage when I was young.  I was three years old before the doctors understood what the problem was and fixed it, however, the damage to my kidneys had been done.  Due to the damage I've lived my 42 years with one kidney.  Two children, lots of stress and age later my remaining kidney is fizzling out.  I've been on the transplant list for the past 11 months and I've been kicking, screaming, and dragging my feet to avoid dialysis. >:D 

Unfortunately my doctor will now have his way and I am now preparing for PD  ???.  I'm pretty bumbed out right now.  Surgery is Monday.  I'm glad I found this site as it fits my mood perfectly.  I've read many of your posts and I already appreciate the valuable advise, experiences, and laughter you all share with eachother.  I'm such a newby to dialysis but I hope that I can be of some support to the site.

As I noted above I have two teenagers, thank God they are teenagers, if they were babies I'd really be bumbed out. My husband runs his own Architectural firm so he's already a pretty busy man.  He is also a great support.  I don't think, however that he has a clue as to how our life is about to change.  I have the best job in the world.  I'm completing my masters in Psychology.  I work in a psychiatric unit.  I have so much fun there my husband often thinks I'm on a night release program and i'm actually a patient.  Crazy people need someone to love them......that's me.

Thank you for this web site, whoever started it.  Thank you all in advance for your knowlege and support. :clap;

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Sluff
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« Reply #1 on: November 15, 2006, 08:42:37 PM »

Welcome to IHD.com
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Rerun
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Going through life tied to a chair!

« Reply #2 on: November 15, 2006, 09:10:56 PM »

If you love crazy people you have come to the right place!   ;D

Welcome to our site.  You can be "supported" for a while right here.  Get your feet on the ground with dialysis and then worry about helping others.

Glad you found us.

 :welcomesign;
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anja
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« Reply #3 on: November 15, 2006, 09:41:27 PM »

Welcome, Patrice, to our wonderful community that was started by the equally wonderful, Epoman!  He has spent much $ and time to make this site what it is today and we are all so thankful for him and his continued efforts. Glad you chose to try PD, I feel it is the least of all evils where  dialysis is concerned.  You will be surprised how you will adapt to fitting it into your lifestyle, instead of the other way around.  First you will learn manual and then you will have the chance to have a cycler ( should you get a choice, choose Baxter, but that is just my opinion)  Best of luck and we'll be thinking of you on Monday (the surgery is pretty non-eventful and won't take long to heal from)     :welcomesign;   Love your attitude, we have lots of wizenheimers here that  also  cheer us up!   :clap;  Anja
« Last Edit: November 15, 2006, 09:44:22 PM by anja » Logged
Joe Paul
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« Reply #4 on: November 16, 2006, 12:27:03 AM »

Welcome Patrice, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: November 16, 2006, 01:48:33 AM »

Welcome to our community. Of course you can join our group!  It was created just for you (and me, and everyone else!)  I see that you already have felt the ambiance of our group, and that you are going to fit right it.  We have some 'crazies' here just waiting for you (no, Goofynina, I did not mention your name)
Please keep posting, keep sharing, and let us know how things are developing with you and your dialysis. :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #6 on: November 16, 2006, 04:48:46 AM »

Welcome Patrice
You'll get lots of info on this site from some very warm and kind people who know exactly what you're going through. I only joined this group a couple of weeks ago and apart from getting a fantastic welcome I've learned a few things that I would never have learned at clinic. Epoman deserves a medal for the time and energy he must spend keeping this site going.
Looking forward to your posts.  :welcomesign;
« Last Edit: November 16, 2006, 04:50:44 AM by Ken Shelmerdine » Logged

Ken
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« Reply #7 on: November 16, 2006, 09:51:59 AM »

 :welcomesign;
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
mallory
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« Reply #8 on: November 16, 2006, 01:48:04 PM »

Welcome, Patrice!  I just had my PD catheter put in last Wednesday.  I was scared, but it really wasn't bad, just like everyone here tells you.  I know what you mean about trying not to do dialysis, I really don't feel sick yet so I didn't think I needed to start dialysis yet.  But, everyone says if you wait until you are sick, it's much harder to do dialysis.

You'll love the site, Epoman has done a great job.  Looking forward to your posts!   :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
boxman55
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« Reply #9 on: November 16, 2006, 04:49:54 PM »

The most important thing to know is that you are most welcome here as I have found out. I started dialysis 3 months ago it sucks big time but this site gives you a lot of information and personal experiences that you can relate too. Best of luck to you
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Zach
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"Still crazy after all these years."

« Reply #10 on: November 16, 2006, 09:34:20 PM »

Glad to have you here!!     ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
DeLana
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Dialysis RN

« Reply #11 on: November 17, 2006, 10:22:33 PM »

Welcome, Patrice!

I think you'll like it here, and you will get lots of support and useful advice from those who have been there.

IMO, PD is an excellent choice for starting dialysis (it's surprising that few individuals choose it), especially if you expect it to be temporary as you do while you are waiting for a transplant. 

Best wishes,

DeLana   :grouphug;
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pmbaer
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« Reply #12 on: November 18, 2006, 11:40:34 AM »

Thank you all for the warm welcome and encouragement.  I'm still not looking forward to Monday.  One of my favorite things is a long hot bath.  I think I'll spend all weekend in the tub.  Pbaer
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goofynina
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He is the love of my life......

« Reply #13 on: November 18, 2006, 02:39:24 PM »

Hi Patrice,  Just wanted to wish you a warm Welcome and Good luck on Monday,  dont worry it will all go ok and you will heal soon and be back in that tub sooner than you know it  :2thumbsup;
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....and i think to myself, what a wonderful world....

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