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Author Topic: Introduction HemoHelper  (Read 2675 times)
HemoHelper
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« on: November 14, 2006, 10:33:47 PM »
Good evening;

I am just a helper.... My partner is Helen she has had end stage renal for the past 16 years or so maybe longer.  She has not has a transplant.  She started dialysis on pertioniel.  She was on this type of treatment using Baxter HomeChoice.  It worked for about nine years before she had a real bad case of pertionites (Infection in her stomach cavity).  Then had to switch to Hemodialysis at the clinic.  While there they started a new therapy "Nocturnal Home Hemo Dialysis" (NHHD).  We chose to try this new procedure because she was not getting enough dialysis to make her quality of life better.  She went in to the clinic three times a week and felt terrible after each treatment.  She would just be down all day after the treatment and felt good the next day than it was time to go in for the next treatment.  Guess she was lucky to be the first one from Satellite Dialysis to be trained on NHHD.  After Three months training on the Fresenius 2008H machine we were finally able to do it at home.  After 4 years and 9 months using the Fresenius (Really good and solid machine..... No problem using or maintaining it and the water treatment system).  She was doing really well with this treatments.  Six days a week seven hours a treatment.  She has been using a cathater all this time.  She discovered the Nxstage System One at a National Kidney Foundation symposium where she was a guest speaker promoting NHHD on a Fresenius machine.  She switched to the Nxstage about two months ago.  She is doing fine on this treatment and now can and hopefully will do some traveling.  Her blood work has been the same as when she was using the Fresenius.  We are looking forward to, being able to contribute to this forum and hopefully get some help with problems when others can give constructive advice......
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Rerun
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Going through life tied to a chair!
« Reply #1 on: November 14, 2006, 10:41:17 PM »
HemoHelper, I welcome you and Helen to our site.  This is the best place to vent frustrations and get information.  There is even a section for caregivers that may interest you.  That is great that you are on NextStage.  Sounds like that is the way to go.  I'm looking forward to your posts.

 :welcomesign;
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anja
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« Reply #2 on: November 14, 2006, 10:48:17 PM »
 :welcomesign; to our community, hemohelper and Helen!    Nice introduction...Wow, 16 years and several modalities of dialysis!  Glad things are going so smoothly for you on the NXSTAGE and that you will now be able to travel and 'live' a little more!  Glad you joined us!
« Last Edit: November 14, 2006, 10:49:16 PM by Rerun » Logged
Joe Paul
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« Reply #3 on: November 15, 2006, 12:46:48 AM »
Welcome HemoHelper & Helen, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #4 on: November 15, 2006, 01:53:32 AM »
Welcome to our community!  It is great to have Helen as another NxStage user with us.  You will have a lot to contribute.  Take your time and read as many of our over 23,000 posts as you can.  But don't just read, we want to hear from you as well.
Welcome again.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Zach
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"Still crazy after all these years."
« Reply #5 on: November 15, 2006, 03:41:00 AM »
Great to have you join our community!      ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Sluff
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« Reply #6 on: November 15, 2006, 12:14:50 PM »
Welcome Helper!! :beer1;
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Amanda From OZ
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« Reply #7 on: November 15, 2006, 02:36:41 PM »
 :welcomesign;
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charee
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« Reply #8 on: November 15, 2006, 07:13:12 PM »
 :welcomesign; HemoHelper
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
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