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Author Topic: Kidney Teen Prom was a blast!  (Read 2348 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: January 19, 2010, 12:14:58 AM »
http://abclocal.go.com/kabc/story?section=news/entertainment&id=7224340 VIDEO
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #1 on: January 19, 2010, 01:25:03 AM »
 :thumbup; Great job Karol!!
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: January 19, 2010, 04:48:09 AM »
Kudos to you, Karol.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sluff
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« Reply #3 on: January 19, 2010, 07:47:03 PM »
What a good turnout. Thought I saw Jenna there. Am I correct?
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RichardMEL
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« Reply #4 on: January 19, 2010, 09:20:38 PM »
totally fantastic only would have been perfect if "our" Brianna had been able to be there too!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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Might as well smile
« Reply #5 on: January 20, 2010, 05:57:26 AM »
 :thumbup; :thumbup; :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #6 on: January 20, 2010, 07:05:57 AM »
I love Jack Black!    :yahoo;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: January 20, 2010, 11:18:06 PM »
It was so impressive to see all the people who Lori Hartwell brings together to create the Prom. Many of the volunteers are kidney patients, or related to someone who has had kidney disease. And it's all for the kids. The decorations are donated and even the professional set designer is included. Notre Dame High School students (under the guidance of some great teachers) spend hours and hours, working the whole weekend to help pull it together, then greet and dance with patients, and help tear it all down too. Lori's staff is amazing too, really going above and beyond the typical job description to make everything run well. I am pretty sure Lori spoke to every single patient during the evening - and that's over 100 teens, at least! And Jack Black would not stop signing autographs until every patient had been greeted, a photo personalized, and a photo taken. I am his biggest fan ever now!!
-- I tried to upload photos but it won't work from the hospital internet - but you can see some on my flickr http://www.flickr.com/photos/karolfranks/sets/72157623247534584/ There are more photos at www.rsnhope.org.
« Last Edit: January 20, 2010, 11:37:32 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #8 on: January 21, 2010, 02:28:11 AM »
This is awesome.Thank you for donating your time for such a wonderful event.
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