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Other Severe Medical Conditions
Parathyroid
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Topic: Parathyroid (Read 9165 times)
smcd23
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The patient, the baby and the donor - October 2010
Parathyroid
«
on:
May 09, 2012, 09:12:50 PM »
Tomorrow afternoon my SO goes for his consult with the surgeon to discuss removing his parathyroid glands. Anyone have any suggestions on things we should ask?
I've searched through old posts and didn't see anything too incredibly recent on it. Wondering if anyone has had theirs removed laproscopically? How bad is the scarring? SO gets keloid scars now every time he has a cut. This is new, never happened until after the ESRD diagnosis. And he is incredibly self conscious about the ones on his arms from his fistula surgeries, and he can cover those up. I know I am worried for him having to deal with a keloid along his neck. Hoping the doc we see can do it laproscopically or in some way to hide the scars.
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Caregiver to Husband with ESRD.
1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.
March 2008 - Started transplant evaluation for preemptive transplant due to declining function.
September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.
October 2008 - Listed in Region I
May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler
June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.
Now what?
MooseMom
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Re: Parathyroid
«
Reply #1 on:
May 09, 2012, 09:37:03 PM »
Desert Dancer had hers removed recently. Perhaps you could PM her or search through her posts. I'm sure she has posted about it. Here's a link to her thread about it...
http://ihatedialysis.com/forum/index.php?topic=25447.msg409205#msg409205
«
Last Edit: May 09, 2012, 09:43:51 PM by MooseMom
»
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
smcd23
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The patient, the baby and the donor - October 2010
Re: Parathyroid
«
Reply #2 on:
May 10, 2012, 11:44:19 AM »
Thanks MooseMon I didn't see her post in my search results. I'm glad she posted a picture, that's somewhat reassuring. I bookmarked the page on my phone so I can show it to the surgeon later this afternoon. Even that would produce a hideous keloid on my SO but it's not as big as big as what the pictures on the Internet showed of the actual surgery. I'm hoping my SO will have similar results in the energy and sleep departments.
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Caregiver to Husband with ESRD.
1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.
March 2008 - Started transplant evaluation for preemptive transplant due to declining function.
September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.
October 2008 - Listed in Region I
May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler
June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.
Now what?
MooseMom
Member for Life
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Posts: 11325
Re: Parathyroid
«
Reply #3 on:
May 10, 2012, 02:25:00 PM »
I did a search, too, and got no results. Fortunately, I remembered her post and around when she posted it, so I searched all of her postings and eventually found it. Oddly, I had just done a search over on Home Dialysis Central for Dr. Agar's postings on "muscle wastage", but the search yielded nothing. But I was almost positive it was there, so I just looked through all of the posts, and there it was, titled "muscle wastage". I have no idea why the search yielded "no results". Isn't that weird? I must be doing something wrong.
Logged
"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
smcd23
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Posts: 528
The patient, the baby and the donor - October 2010
Re: Parathyroid
«
Reply #4 on:
May 10, 2012, 02:51:12 PM »
His appointment got rescheduled for Tuesday. The doctor got called into emergency surgery. Bummed because he was hoping to have it done and be recovered by June 1st when we travel out of town for a wedding.
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Caregiver to Husband with ESRD.
1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.
March 2008 - Started transplant evaluation for preemptive transplant due to declining function.
September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.
October 2008 - Listed in Region I
May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler
June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.
Now what?
MooseMom
Member for Life
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Posts: 11325
Re: Parathyroid
«
Reply #5 on:
May 10, 2012, 08:25:00 PM »
I'm sorry to hear that. That's a bit of bad luck.
Logged
"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
smcd23
Sr. Member
Offline
Gender:
Posts: 528
The patient, the baby and the donor - October 2010
Re: Parathyroid
«
Reply #6 on:
May 10, 2012, 08:39:53 PM »
Yeah I will be pretty bummed if they make him schedule it before the trip, not going to lie. I haven't been on a vacation since March 2008. I think I am a bit overdue. It's only a long weekend, but I've been looking forward to it for months.
Logged
Caregiver to Husband with ESRD.
1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.
March 2008 - Started transplant evaluation for preemptive transplant due to declining function.
September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.
October 2008 - Listed in Region I
May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler
June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.
Now what?
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