|
okarol
|
 |
« on: September 09, 2009, 09:12:27 PM » |
|
I am moving the 1st part of the thread off the forum due to privacy requests by members.
If you wish to post your facebook name here with your IHD member name, please do so.
Thanks.
okarol/admin
|
|
|
|
« Last Edit: September 09, 2009, 09:15:19 PM by okarol »
|
Logged
|
|
|
|
|
draven
|
|
« Reply #1 on: September 10, 2009, 01:26:47 AM » |
|
facebook is easier to keep in touch with each other
|
|
|
|
« Last Edit: November 13, 2009, 12:09:14 PM by draven »
|
Logged
|
|
|
|
|
paris
|
|
« Reply #2 on: September 10, 2009, 09:35:49 AM » |
|
Thanks Okarol. Some of us are here because we can post our thoughts privately and without members knowing our real name.
|
|
|
|
|
Logged
|
 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
|
|
|
paddbear0000
|
|
« Reply #3 on: September 10, 2009, 02:39:45 PM » |
|
Thanks Karol. I'm more than happy to friend people from IHD on Facebook as long as I know who they are. I just don't want my full legal name broadcast where strangers and spammers can see it!
|
|
|
|
|
Logged
|
|
|
|
jennyc
Full Member
 Offline
Gender: 
Posts: 388
First day of school 08'
|
|
« Reply #4 on: November 11, 2009, 09:00:22 PM » |
|
Me too, I'm on facebook. If you want to add me message me and i'll give you my details.
|
|
|
|
|
Logged
|
2003 January - acute renal failure
March/April - Started PD
2009 October - PD failing, First fistula put in.
Cadaveric Transplant 27/1/2010
|
|
|
|
kidney4traci
|
|
« Reply #5 on: November 13, 2009, 10:46:04 AM » |
|
I have found FB to be a quicker means of keeping intouch with friends... but I do miss hearing all the "FUN" around here. Message me too if you are wanting to "friend" another friend!  |
|
|
|
|
Logged
|
Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
|
|
|
|
Maker
|
|
« Reply #6 on: November 13, 2009, 11:22:03 AM » |
|
Ditto - send me a PM if you want to be facebook friends, I would love to chat with my IHD family there too  |
|
|
|
|
Logged
|
- Lori
33 years old
Diagnosed February 2007
Started In-Center Hemo October 2009
Trying to qualify for a living donor transplant
"I can do all things through Christ who strengthens me" Philippians 4:13
|
|
|
|
YLGuy
|
|
« Reply #7 on: November 13, 2009, 04:52:38 PM » |
|
I am on FB and would love more IHD friends. Feel free to PM me.
|
|
|
|
|
Logged
|
|
|
|
|
Des
|
|
« Reply #8 on: November 19, 2009, 08:16:21 AM » |
|
I am on FB as well..... just pm
|
|
|
|
|
Logged
|
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
|
|
|
|
Dianejt
|
|
« Reply #9 on: December 02, 2009, 11:58:11 AM » |
|
|
|
|
|
|
Logged
|
caregiver to husband Frank
bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
|
|
|
|
angela515
|
|
« Reply #10 on: January 19, 2010, 07:43:14 PM » |
|
http://www.facebook.com/angierawrs?ref=profilePlease add me on FB if you use it. I have FB on my iPhone so I get live updates 24/7 and it's easier for me to stay in contact with everyone. Angie <3
|
|
|
|
|
Logged
|
Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
|
|
|
megszluv698
Newbie
Offline
Gender:
Posts: 8
|
|
« Reply #11 on: February 05, 2010, 12:33:53 PM » |
|
I'm a dialysis caregiver (spouse) and on facebook...feel free to send me a message Megan Duggan Mulholland...oxoxox
|
|
|
|
|
Logged
|
Megan Mulholland oxoxox
|
|
|
nelgrepos
Newbie
Offline
Gender: 
Posts: 4
|
|
« Reply #12 on: February 06, 2010, 07:48:04 PM » |
|
I am an avid fb user ( mafia wars rules ) look me up if so inclined I think I use this name on fb
|
|
|
|
|
Logged
|
|
|
|
|
Chris
|
|
« Reply #13 on: February 06, 2010, 08:22:55 PM » |
|
I wish people would add a note about who they are on when doing a friend request. Not adding people I don't know
|
|
|
|
|
Logged
|
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
|
|
|
antoine
Newbie
Offline
Gender:
Posts: 12
|
|
« Reply #14 on: February 07, 2010, 02:09:16 AM » |
|
|
|
|
|
|
Logged
|
10 august 09 diagosed with KF, terminal 4%
|
|
|
|
del
|
|
« Reply #15 on: February 15, 2010, 06:26:54 AM » |
|
I have had a lot f friend requests but haven't added everyone because not sure who they are. A little note saying who you are on here would be great.
|
|
|
|
|
Logged
|
Don't take your organs to heaven. Heaven knows we need them here.
|
|
|
|
Lisa
|
|
« Reply #16 on: February 27, 2010, 11:18:07 AM » |
|
|
|
|
|
|
Logged
|
Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
|
|
|
|
I Hate Dialysis Message Board
Author
