Nephrectomy tomorrow. (12 Jan)

[Des]

Hi,

I will start by saying ,thanks to all of you for caring.

I NEVER EVER want to go through that again. It is official : I am a wooz!

I had the nephrectomy on the 12Jan, spent 6 days in ICU. (dreadfull place to be ) 

Had an epidural which did not work so the nursing staff thought - she is crazy- so they just pushed and shuved (spelling sorry) me around. Then on day three they realised the epidural was not working. oops.. sorry. She can now get some pain meds. Once I remembered screaming for 10 min non stop after they just turned me on my side!

I did not eat or drink anything for 6 days - just sips of ice water. Then the doc thought - "lets make this interesting." He gave me stuff to "start" the bowels moving so had gastro for the next 7 days.

After 8 days in hospital (still feeling like death warmed up) I just wanted to get out of there. I went home for a few day just to go back to the hospital to get my fistula.

You will never guess where he put it??!!! On my right arm (I am righthanded) smack in the bend. Yep, I can't bend my right arm again... ever again. This is so stupid!!

[Des]

Oh , I forgot to mention... currently I have the flue. I cough (yes it hurts both wounds extremely) I have a sore throat, and I am a "blow you nose with your left hand" champion.

At least the gastro stopped....  imagine me coughing and ..... whatever.

Dialysis will start as soos as I can get this fistula to ripen or something. Ir wrrrs but I cannot see anything yet.

I will be going back to work on the 1 March..... 

[HubbysPartner]

Oh, Des, what a time!  I'm glad you're home at least.  Sorry about your fistula placement.  I hope you get over your cold soon, that sounds like no fun at all.  Take care.   

[YLGuy]

DES! We missed you. 

[cariad]

Des, I was thinking about you this morning. How great to log on and hear from you.

Your doctor should probably explain himself with regards to your fistula placement. Was that the only place he could find decent veins? Sounds to me.

Welcome back! 

[willowtreewren]

Oh, Des,
Although it is WONDERFUL to hear from you, I'm sad about everything you have been through. 

I wish you could have gotten a better fistula. That's a bummer!

 

I hope from here on you just feel better an better!

  Aleta

[billybags]

Des, lovely to hear from you, and so glad you are home. You sound like you have been through the mill, what the hell have they been doing to you? So it is upwards and onwards now. You take care and don't go back to work too soon.

[fc2821]

       Des it is great to have you back.   

       You sure have had a tough time.      

        That sure is a syrange place for the fistula.  Any explinatipn why there, only place they could find? 

        I have a silly question, but has the new fistula affected how you type?

[Hanify]

Oh Des, thank God that's over!  At least it IS over.  Dunno about the fistula - I am a fistula virgin (oh my word that sounds ...um...odd).  Sorry - don't want to make you laugh - that'll hurt!!  Just think though - any day now you'll suddenly reallise you are in way less pain, but you won't have noticed for a bit.  Such a good feeling.  Thinking of you always.

[nycrtst85]

God be on your side.

[okarol]

Just thinking of you, all you've been through. I hope you are feeling stronger. Can you start back at work with less hours if you need to rest? I hope your fistula works just fine, if it's buzzing that's a good sign. Take care! 

[Des]

Thanks Karol,

Going through a tough time. I will be starting D in 4-6weeks ( as soon as the fistula is ready) I prepared for this but somehow reality is sinking in... my life as I know it is now gone forever and a new one is going to start soon. I hope I am ready for it.

I hope Jenna is doing better. I have been thinking about your family too amongst all my troubles.
 

[tyefly]

Des.....   You have watch many of us start D and we were scared...  I am not sure if scared is the right word.... you will do fine  just like I did.... and after you start....   you will look back and say......  yup I did it too....
   Seems like the first time for everything  is life is that hardest.....at least for me.....   I am past the starting of D....  and  the next chapter for me will be transplant....  I keep reading other people stories about transplant and I often say.... can I do this....   YES  I can.....  I am glad that you are here and I do want to support you during your journey with D...... Glad you are feeling better......

[monrein]

It is scary Des, I think we've all felt that way.  Please know that we're here to help make the transition as least threatening as possible.  Big hugs to you.