WE CAN on dialysis!! What do you do?

[tyefly]

Sugarlump.......   You couldnt of said it any better..... One day at a time.....  and good for you ...... just think how much your dog will love you .......  they always love you .........

[kitkatz]

I try to do something every day that says "Hey you are alive." Some mornings it is getting up out of bed, others it is doing something I enjoy!

[paris]

This is a great inspirational thread!  Thank you to all who have posted to help us remember there is life with kidney disease.   

[CybeR]

Hi Neo,

Interesting topic you brought up! Thanks!

As for me, when they were using the fistula I was running 3 miles on day I wasn't on dialysis and 1 mile on days that I did go to dialysis. Plus after every work out I would swim for about 45 minutes. I was very active. This was about 1 month ago that my fistula stopped working again and I had to get a catheter. So now I can't work out at all and it sucks big time!! 

[Zach]

I work out with weights for about 90 minutes, 3 x week.

I also produce/direct documentaries that air nationally on the Public Broadcasting Service (PBS).

[CybeR]

I work out with weights for about 90 minutes, 3 x week.

I also produce/direct documentaries that air nationally on the Public Broadcasting Service (PBS).

Cool, maybe you can help me. I have always wanted to be a writer. Now that I have more time I may try to write a few movies scripts. Most movies these days are so terrible that I feel it my duty to the world. lol what an ego huh :p

[Neo]

This is the spot to come to in one of your darkest, how am I going to cope moments.
Just coming out of a difficult 4 week period of illness where everything was a struggle.
It may be pouring with rain (good old sunny england!) but I'm taking my dog for a walk
with my umbrella because I FINALLY CAN once again.
Small steps...high hopes...one day at a time x

Im glad this thread cheers you up. Keep your head up! YOU CAN.. Ive always wanted to visit England by the way. Whereabouts do  you live there. I hope you are feeling better.

[Neo]

I work out with weights for about 90 minutes, 3 x week.

I also produce/direct documentaries that air nationally on the Public Broadcasting Service (PBS).

Cool, maybe you can help me. I have always wanted to be a writer. Now that I have more time I may try to write a few movies scripts. Most movies these days are so terrible that I feel it my duty to the world. lol what an ego huh :p

Count me in! My dream is to work in film. We should do something together. Even though im in  school finishing up to get my Masters to be a Nurse Practitioner, I have been taking theatre history classes and will be starting some more classes soon in that field. Would love to hear about what you do some more and contribute if at all possible.

[Maker]

Hi Neo,

Interesting topic you brought up! Thanks!

As for me, when they were using the fistula I was running 3 miles on day I wasn't on dialysis and 1 mile on days that I did go to dialysis. Plus after every work out I would swim for about 45 minutes. I was very active. This was about 1 month ago that my fistula stopped working again and I had to get a catheter. So now I can't work out at all and it sucks big time!! 

Did the surgeon tell you that you can't work out with your catheder?  I was doing aerobic activity the next day.  Just no lifting for a few weeks     But I was told running was fine as long as I didn't have pain, but the first week or so I just ran through the pain    My neph says exercise all you can, its one of the best things you can do for your health.

[sico]

I live to ride my dirtbike, do not know where I get the energy from at times.
Some of my riding mates still cannot keep up with me on a bike!
Am not happy about not working, didn't have an understanding workplace when I got sick.
Work used to be my priority, not anymore and probably never again.

[CybeR]

Hi Neo,

Interesting topic you brought up! Thanks!

As for me, when they were using the fistula I was running 3 miles on day I wasn't on dialysis and 1 mile on days that I did go to dialysis. Plus after every work out I would swim for about 45 minutes. I was very active. This was about 1 month ago that my fistula stopped working again and I had to get a catheter. So now I can't work out at all and it sucks big time!! 

Did the surgeon tell you that you can't work out with your catheder?  I was doing aerobic activity the next day.  Just no lifting for a few weeks     But I was told running was fine as long as I didn't have pain, but the first week or so I just ran through the pain    My neph says exercise all you can, its one of the best things you can do for your health.

Lol yeah they told me not to do any exercise!!! They said because the moisture will cause my catheter to get infected again. Since I sweat a lot when I run.

[Maker]

Hi Neo,

Interesting topic you brought up! Thanks!

As for me, when they were using the fistula I was running 3 miles on day I wasn't on dialysis and 1 mile on days that I did go to dialysis. Plus after every work out I would swim for about 45 minutes. I was very active. This was about 1 month ago that my fistula stopped working again and I had to get a catheter. So now I can't work out at all and it sucks big time!! 

Did the surgeon tell you that you can't work out with your catheder?  I was doing aerobic activity the next day.  Just no lifting for a few weeks     But I was told running was fine as long as I didn't have pain, but the first week or so I just ran through the pain    My neph says exercise all you can, its one of the best things you can do for your health.

Lol yeah they told me not to do any exercise!!! They said because the moisture will cause my catheter to get infected again. Since I sweat a lot when I run.

Oh ya, the sweating...I had the same problem! I could actually see it under the tegaderm after exercise. My nurses at dialysis are very good to me and taught me to change my own dressing in front of the mirror (neph approved this of course).  They even filled a big bag with supplies for me to take home.  So on non-dialysis days I change it right after my bath.  Now I can sweat to my hearts content under that tegaderm and it gets changed every day.  No more fears about infection for me   Hope this helps.  I know some people will think this sounds crazy, but when you are used to exercising and suddenly can't it can be depressing, so I'm all about doing as much as I can 

[jennyc]

Hi there,

I try to not limit anything i do. (a bit tired now but hey, just keep smiling). I'm on Pd at the moment but i go swimming using infants urine collection bag, i guess it's like a colostomy bag where it uses waterproof adhesive to stick to your skin. I tested it in the bath first and then jumped in our pool. worked wonders, i'd had enough and got out before any water got in. site and catheter stayed perfectly dry.

I go horse riding, we travel. Motorbike riding (pillion) - Hubby is on the front, i have my sissy bar to rest on and my ipod to keep me entertained. We sometimes go with our hog chap but other times just on our own. We went to entrance earlier this year with the group it was an alll day ride up through the ridge to the coast north of sydney then the long way home. I think we were on the bike a good 4/5 hours - don't like the freeway though- too fast. 90kms is my optimum speed on the back otherwise i get whipped too much by the wind esp over the high bridges.

Hey does anyone know how long it takes before your fistula is ok to get back on a bike? i go push bike riding (again not till fistula heals now), walk the dog. Work from home. Chase around a cheeky 6 1/2 year old the only thing i don't do at the moment is drink alchohol (until i'm back on heamo and can cope better) the last drink i had i wasn't even a cadbury's girl (less than a glass and a half and i was toast).

Interesting about baseball, my son is in little league so i can't help them out at the moment, i look like the lazy mum sitting on the sidelines during practice. And once i'm on heamo and feeling better i can't wait to get back to my spin cycle classes.

I've heard of other people who surf, camp, 4wd. I think it' all about determination. If you really love something you won't let CRF get in the way of doing it, where there's a will, there's a way!

[Neo]

Hey guys I wanted to  bump this thread cuz I wasn't feeling good today, and needed some inspiration. I still have a living donor lined up that matches me. And if everything goes as planned we shouldx be having the surgery in six months. So Im just saying to myself Ive waited 6 years, I can definitely wait 6 months. I am still in college. Got my Associates in Science and on my way to my masters to be a physicians assistant. Love hearing from you all you give me inspiration. So keep in touch, and keep giving the proverbial middle finger to dialysis

[willowtreewren]

So keep in touch, and keep giving the proverbial middle finger to dialysis

Fialysis Ducks!

 

My husband is one of the lucky ones. So far his activities are only limited by the time that dialysis takes out of his day.

[Stacy Without An E]

This is an awesome thread that proves we're not second class citizens.

I work full time (and overtime) in broadcasting.  I workout four days a week for three hours.  My goal is to be in the best shape of my life by my 40th birthday, even though I'm on Dialysis.

We should all be proud of our accomplishments while defeating Dialysis.  In a lot of cases the "Norms" (normal people) look lazy and complacent in comparison.

[Zog]

My wife had a baby on dialysis.  She teaches preschool.

[jbeany]

We should all be proud of our accomplishments while defeating Dialysis.  In a lot of cases the "Norms" (normal people) look lazy and complacent in comparison.

When I hit the 50 pound mark on my weight loss and exercise plan, my renal dietitian told me she uses me as an example to all her "healthy" patients who are only battling obesity.  If I could do it on life support, with all the fluid and diet restrictions, they didn't have any excuse not to accomplish their weight loss goals!

[sullidog]

I clean my house, work part time, and will be atending school next month, oh yeah and I also do laundry.
I had this old lady who is also a dialysis pacient tell me you need someone to wash your clothes, you can't work, you need to be in a wheelchair, your too sick, etc. I just ignored her.
Troy

[Zach]

 

[twirl]

swim in the summer ---
teach twirling -- year round -- not only am I on dialysis  - I am old
    
used to teach but I got too tired   

[lola]

Otto works full time and still rides a dirtbike and still stays ahead of the kids(shhhh he's getting close to being passed)