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Author Topic: Marvin  (Read 29210 times)
Darthvadar
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« Reply #75 on: December 23, 2009, 03:34:34 PM »

Fantastic news, Petey....

I wish you and Marvin a very happy Christmas, and all the very best of health in 2010....

May God bless and protect you both...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
willowtreewren
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My two beautifull granddaughters

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« Reply #76 on: December 23, 2009, 03:37:38 PM »

 :2thumbsup;

You and Marvin rock!

 :yahoo;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jean
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« Reply #77 on: December 23, 2009, 07:41:43 PM »

You two are the most awesome partners in the PLANET!!!!!   :clap;
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One day at a time, thats all I can do.
dwcrawford
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Getting the heck out of town.

« Reply #78 on: December 24, 2009, 01:22:44 AM »

For Petey and Marvin.  Happy Holidays.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
billybags
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« Reply #79 on: December 24, 2009, 05:27:53 AM »

petey, that is brilliant news. You two have a lovely Christmas now. I my self will be glad when the new year starts, like you it has been a sh**ty year, but we have got through it. Merry Christmas to you both.
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Des
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« Reply #80 on: January 06, 2010, 03:38:56 AM »

 :bandance; :bandance; :bandance;

I am happy for you.... You are such a special person. I think your persistance might have something to do with the speedy recovery.

 :flower;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
petey
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« Reply #81 on: January 12, 2010, 04:42:26 PM »

Marvin had a check-up today at his clinic (required monthly to stay on home hemo).  All of his lab work was PERFECT -- the best it has ever been in 15 years!!!  Every single line was right in the middle of "normal."  We were happy beyond words because we figured with the hospitalization, stroke, MRSA, and everything else --- his lab work would take months and months to get back to anything even remotely "good."  We weren't expecting PERFECT. 

Also, after the hospitalization, the docs put Marvin back up to six times/week.  Today, they cut it back to FIVE again!!  Yipppeeeeeee!

P.S. We go back to Duke on Thursday for a re-evaluation to be put back in "active" status on the transplant list (Marvin was put in "inactive" status when the MRSA got him in November.)
« Last Edit: January 12, 2010, 04:43:42 PM by petey » Logged
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #82 on: January 12, 2010, 04:48:37 PM »

Yay.  Go Marvin!!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
galvo
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« Reply #83 on: January 12, 2010, 05:23:38 PM »

Good stuff!
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Galvo
willowtreewren
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My two beautifull granddaughters

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« Reply #84 on: January 12, 2010, 06:03:50 PM »

Oh, Petey! You and Marvin just rock!

I'm so glad that you can go back to five days a week.

Next step - the list! Woot!

 :bandance; :cheer: :bandance; :cheer: :bandance;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #85 on: January 12, 2010, 06:39:36 PM »

Fabulous news!  The power of prayer!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #86 on: January 12, 2010, 09:40:04 PM »

 :yahoo; Very good news - all around!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #87 on: January 13, 2010, 05:16:59 AM »

Good news is great to hear.  Keep it up Marvin and Petey.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
petey
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« Reply #88 on: January 14, 2010, 06:44:16 PM »

Marvin was put back on "active" status on the waiting list today (2,246 days this time around).  Good news!
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willowtreewren
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My two beautifull granddaughters

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« Reply #89 on: January 14, 2010, 06:48:39 PM »

 :thumbup; :thumbup; :thumbup;

But who's counting?

 :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cariad
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What's past is prologue

« Reply #90 on: January 14, 2010, 07:02:58 PM »

Excellent! :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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