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Author Topic: What a Long Strange Trip it's Been....  (Read 3060 times)
NY2FL
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« on: November 03, 2006, 02:19:45 PM »
Hi,
I'm Carol, from Cape Coral Florida. I am 46, and next year will be 25 years on this trip.
Here's my basic history:
-Diagnosed with SLE (Lupus) @ 22
-Began Dialysis (CAPD) @ 25
-Transferred to Hemodialysis @ 36
-2 unsuccessful transplants (waiting for #3 at the moment)
Obviously, alot more happened in between. Some I'd like to remember, and alot I'd
like to forget. But it's all good. I'm sure I'll have a chance to express it all on these
boards. Thanks for that!
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In the middle of every difficulty lies opportunity.
                                                      -Einstein
jbeany
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Cattitude
« Reply #1 on: November 03, 2006, 02:34:44 PM »
It might be a strange trip, but the company is great!

 :welcomesign;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
goofynina
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He is the love of my life......
« Reply #2 on: November 03, 2006, 02:49:04 PM »
Hi Carol,  Welcome to what i consider to be the best website regarding this matter.  Not only are we an awesome website, we are an even more awesome Support Group.  One big happy family here and we are so glad you have come to join us as well.  Please feel free to read into the thousands of posts and add any questions, comments and/or concerns of your own.  If there is something you need and you are not finding it, please do not hesitate to ask and anyone of us will be happy to help you out  :2thumbsup;

 :welcomesign;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Black
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« Reply #3 on: November 03, 2006, 03:36:31 PM »
 :welcomesign;
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Joe Paul
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« Reply #4 on: November 03, 2006, 03:49:22 PM »
Hello Carol and welcome, Good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Epoman
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Want to help out? Become a Premium Member today

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« Reply #5 on: November 03, 2006, 05:49:43 PM »
Welcome Carol,

Thank you for your support by becoming a "Premium Member" I hope you share your experiences with the others since you are a veteran in dealing with this disease. Again welcome to IHD and thanks for your support.  :thumbup;

- Epoman
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Sluff
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« Reply #6 on: November 03, 2006, 05:50:06 PM »
Welcome  :2thumbsup; I used to have a place in Venice FL but not anymore.
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jedimaster
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Stainboy is....alive!!!
« Reply #7 on: November 03, 2006, 07:01:05 PM »
 :welcomesign; and hola
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Rerun
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Going through life tied to a chair!
« Reply #8 on: November 03, 2006, 10:07:44 PM »
Hi Carol and welcome to our site.  You have been dealing with this for a long time.  There are other veterans here as well.  I've been dealing with this for about 20 years.  Twenty years too long!  Hope you add your comments to our already large array of posts. 

 :waving;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: November 04, 2006, 04:14:52 AM »
Greetings and welcome to our community.  I really have to take my hat off to you.  Where this challenge is concerned you have truly "been there; done that"!  We look forward to hearing much more from you.  You have lots to offer us and I am sure that we have lots to offere you as well.
Welcome again. :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Zach
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"Still crazy after all these years."
« Reply #10 on: November 04, 2006, 09:48:53 AM »
Hi Carol!  Good to have you here.    ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
NY2FL
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« Reply #11 on: November 04, 2006, 03:47:30 PM »
Thanks all for the warm welcome ...  :)
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In the middle of every difficulty lies opportunity.
                                                      -Einstein
DeLana
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Dialysis RN
« Reply #12 on: November 04, 2006, 09:26:05 PM »
Welcome!  You will find lots of support here.

DeLana   :grouphug;
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anja
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« Reply #13 on: November 04, 2006, 09:26:27 PM »
 :welcomesign;  Welcome, Carol, you certainly ARE a veteran of dialysis!  Glad you came to share your knowledge with us and found this great supportive ' family' !    :grouphug;   Anja
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