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Author Topic: Had a record night of suck...  (Read 3099 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: November 25, 2009, 10:40:06 PM »
Tonight at dialysis I had a record night of suck. First it took 7 sticks, 3 nurses and over 45 minutes to get good flow and start the dialysis. Later I was itchy and asked for some benedryl. This caused my bp to crash and for the first time ever, I passed out. At the end of the night it took several drinks and some saline pushes to get my BP up to a level that I could go home.

My fistula looks good and sounds good. It feels good. It just keeps clotting the darn needles. I am going to see the surgeon next week to have him double check everything. King Leon sends his royal love to you all.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Jean
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« Reply #1 on: November 26, 2009, 01:11:36 AM »
Sorry that had to happen to you Mikey. Talk about a bad day. Hope the next visit is much improved.
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monrein
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Might as well smile
« Reply #2 on: November 26, 2009, 06:04:55 AM »
 :grouphug; :cuddle; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
*kana*
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« Reply #3 on: November 26, 2009, 06:47:01 AM »
Oh, I am so sorry that you had such a rough day.   :'(  You poor thing, you need a  :grouphug;.  Hope today is better for you and all goes well your next session. 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
willowtreewren
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« Reply #4 on: November 26, 2009, 08:17:21 AM »
You need some TLC for sure!  :grouphug;

Good news that your fistula is still thrilling well. How high is your HG. If it gets too high your blood can get "sticky" and clot.

Hoping for a better run next time.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Zach
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« Reply #5 on: November 26, 2009, 08:19:09 AM »
Quote from: mikey07840 on November 25, 2009, 10:40:06 PM

My fistula looks good and sounds good. It feels good. It just keeps clotting the darn needles.


Maybe you should have them use wet sticks--a saline filled syringe attached to (and flush) the needle tubing.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

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Bajanne
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« Reply #6 on: November 26, 2009, 09:44:59 AM »
i am most emphathetic.  Have been having the same kinds of problems with my graft and my BP.  It is a rare evening that sees me leaving without at least three Sureseals on, and without having had to wait until my BP was reasonable.
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I LOVE  my IHD family! :grouphug;
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #7 on: November 26, 2009, 06:45:03 PM »
Quote from: Zach on November 26, 2009, 08:19:09 AM
Quote from: mikey07840 on November 25, 2009, 10:40:06 PM

My fistula looks good and sounds good. It feels good. It just keeps clotting the darn needles.


Maybe you should have them use wet sticks--a saline filled syringe attached to (and flush) the needle tubing.
 8)

Because of my tendency to clot, they always do wet sticks. I clot anyway. Thanks for the suggestion though.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Des
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« Reply #8 on: November 27, 2009, 04:34:58 AM »
Ouch! Darn!

Sorry that you are having such a difficult time....
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kitkatz
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« Reply #9 on: November 27, 2009, 06:03:37 PM »
I hope the next D session is better.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Mimi
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« Reply #10 on: November 27, 2009, 11:45:27 PM »
Somtimes it seems you just can't win.  Hoope the situation improves soon.
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