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Author Topic: nxstage nocturnal....new program  (Read 4171 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: September 25, 2009, 01:41:55 PM »
  I had my doctor visit today .. this was the first time that I had seen this doctor as my last doctor had retired....  I was very impressed.....   Since I am new to dialysis and I wanted to talk to him about training on the nxstage system and also about the in-center nocturnal...I was expressing my feelings about the benefits of the nocturnal and also about how nxstage is a wonderfull concept because of the ability to travel.... He brought up a wonderfull suggestion..... he said  How about nxstage nocturnal at home....  I was thinking   Wow.. that is exactly what I had in mind ...but I have  been told that my insurance company does not offer that... He said  well we haven't not had anyone do the nxstage nocturnal before but we do have some that are doing nxstage short daily at home... so he ask if I would like to train for nxstage nocturnal at home ... I said  Yes...  and he said that he will get me a  a training date and we will start........ WOW...... COOL.....  I didn't even have to fight, argue, persuade or manipulate.....  It was offered and given......  He even said that doing nxtage nocturnal 5 nights a week would be even better ...... Iam going   YES !!!!!!!!!..... that is what I have learned here on IHD......    So    I am going for it and will keep all of you posted as things develop.....I am very excited.......   This will be a hugh step for not only me  but it may open the door to others in our insurance group to do the same with nxstage.......   
       
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Wallyz
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« Reply #1 on: September 25, 2009, 01:54:52 PM »
wOOt! Good deal.
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Zach
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"Still crazy after all these years."
« Reply #2 on: September 25, 2009, 03:09:09 PM »
 :clap;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
del
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del and willowtreewren meet
« Reply #3 on: September 25, 2009, 05:12:30 PM »
 :yahoo; :2thumbsup; nocturnal is the best!!!  Hubby has been doing home nocturnal on a fresenius machine for 3 years now!!!  Nxstage is not available in Canada.
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Don't take your organs to heaven.  Heaven knows we need them here.
willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: September 25, 2009, 05:24:00 PM »
That is absolutely fabulous, Kathy!  :cheer: :cheer: :cheer:

Especially that you did NOT have to fight for what will be best for you.

A big cause for celebration!!

 :2thumbsup; :2thumbsup; :2thumbsup;

 :yahoo; :yahoo; :yahoo;
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Bill Peckham
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« Reply #5 on: September 25, 2009, 08:28:21 PM »
That is very encouraging - hopefully whatever your doc has it'll spread.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
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Lillupie
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« Reply #6 on: November 11, 2009, 08:40:57 AM »
Hopefully you will be willing to share your experiences so that others will be encouraged to try this as well.

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
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M3Riddler
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« Reply #7 on: December 01, 2009, 06:29:16 PM »
It is great that you have the option of nocturnal with NxStage....kudos to your new nephrologist!! Many centers wont touch nocturnal with NxStage due to the red tape invoved when first setting up the program.
It should not be up to the insurance company that is focused on making a dollar rather than what is best for the individual. Do they not realize that over time there is a good chance it will be saving them money?  More than likely, whoever makes the decisions at the ins company couldnt give you two benefits of nocturnal let alone give an accurate definition. Many nephrologists cant even list the benefits. Way to go whoever your nephrologist is!!!!

///M3R
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