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Author Topic: Introducing Myself  (Read 4858 times)
PMP
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« on: October 14, 2006, 06:59:53 PM »
I am SOOOOOOOOO glad to have found this website.  My name is Pat Porter.  I'm not a dialysis patient, but my father is.  He just started. 

I've learned a lot from this website.  And I can tell ya, if I had the knowledge of how to do it, one thing I'd do is, I'd invent a blanket for dialysis patients that could be thrown in a microwave and would keep you warm for hours.  And I'm talking a full-length blanket or a throw.  It's bad enough to have to sit there for 3-4 hours, but to be freezing on top of it?  That's just freakin' cruel.  And I'm picking on that particular issue because that seems to be a big thing with my dad.

My heart goes out to everybody on dialysis.  I know y'all don't want sympathy, but I can't help it.  Sorry.  I had no idea how "not so fun" dialysis (and kidney disease in general) could be.  Hope I haven't totally depressed everybody :(

Pat a/k/a PMP
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Black
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« Reply #1 on: October 14, 2006, 07:11:29 PM »
 :welcomesign;  Glad you're here.  You're not a downer, just truthful ;D
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
vandie
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« Reply #2 on: October 14, 2006, 07:22:06 PM »
 :welcomesign;
You have come to the right place for support.  This is a fantastic group.
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
tubes
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Miss you so much Susie. Will always <3 you!
« Reply #3 on: October 14, 2006, 07:41:51 PM »
This is a great place.  You'll find all the info you need and more..


 :welcomesign;

Fixed Tags - Rerun Moderator
« Last Edit: October 14, 2006, 10:06:23 PM by Rerun » Logged
"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
Zach
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"Still crazy after all these years."
« Reply #4 on: October 14, 2006, 09:10:52 PM »
Hi Pat,
Welcome to the community.  We look forward to your posts!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!
« Reply #5 on: October 14, 2006, 10:13:49 PM »
Hi PMP and welcome to our site.  Best of luck to your Dad.  At least you realize that dialysis is no walk in the park. 

I have a wool Pendleton blanket for dialysis.  Wool keeps you warm and also cool if you get hot.  I love it.  Here is a link.  I bought mine one time while I was at the Pendleton Round-Up, so I got it pretty cheap.  I wash it and dry it and it turns out fine.  I have a queen size and I fold it in half and put in over me.

http://www.theoregonstore.com/
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Sluff
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« Reply #6 on: October 14, 2006, 11:28:40 PM »
 :welcomesign;
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Joe Paul
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« Reply #7 on: October 15, 2006, 01:06:26 AM »
Welcome PMP, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jbeany
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Cattitude
« Reply #8 on: October 15, 2006, 01:28:56 AM »
PMP - try this.  I have one similar and just love it!

http://www.comforthouse.com/heatthrow.html

Sorry - not sure how to make it a link in here!

 :welcomesign;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
jedimaster
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Stainboy is....alive!!!
« Reply #9 on: October 15, 2006, 10:57:07 AM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #10 on: October 17, 2006, 04:03:25 PM »
I am always very pleased when the loved ones of renal patients post here.  It is a tremendous testimony to the love they have.  So I welcome you to our site.  I know that it will be a real help to you.  Please feel free to ask your questions, and also from time to time, put in your own spin on things.  This is a sharing and caring community and we are glad to welcome to it.  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angieskidney
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« Reply #11 on: October 29, 2006, 03:14:44 AM »
Welcome!  :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
mallory
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« Reply #12 on: October 30, 2006, 01:23:45 PM »
Welcome, PMP, glad to have you here.  Sounds like your Dad is lucky to have you, you must be a great support for him,  I know I couldn't make it through this without my sister, she's given me the strength to make it.

Looking forward to your posts!  :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Ohio Buckeye
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« Reply #13 on: October 30, 2006, 07:04:03 PM »
Welcome PMP.
Hope your Father does well.
Hope you find a good blanket to keep him warm and
gets lots of helpful information here. 
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If I must do this to live, I must strive to live
while I am doing this.
Sara
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« Reply #14 on: October 30, 2006, 07:21:43 PM »
I know I've already posted with you on the main board, but I did want to officially welcome you.  It's always nice to get another caregiver/spouse/relative here on the board.   :)
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
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