My name is Dan, I was diagnosed with Medullary cystic disease when I was 16 y/o. Was on dialysis when I was 20 y/o for 1 year before I got a trans plant (lucky!) The first year post transplant I had 3 rejection episodes that turned out to be a tissue scarring build-up at the point where the organ was attached. That ordeal cost 18 days in the hospital and alot of anxiety. Then there was smooth sailing for about 14 years when I injured my shoulder and knee (both were deemed "prednisone" issues. After 30 wks of out patient physical therapy 2x/wk, various scans, xrays and Dr. visits the shoulder came back to reasonable function but the knee never really did, even to this day it is bothersome. Then around Sept 2002, I developed a series of internal infections that ended up costing me my sigmoid colon and my right native kidney (both removed) I soon after learned that I had developed osteoporosis, Anemia, hyperparathyroidism and esrd (again
) Around Nov 2005 I was told by my eye Dr. that it was time for the cataracts in my eyes to come out. She said this could quite possibly mean that I could "throw away" my glasses! ( I just about came out of the womb wearing glasses!) I would possibly only need them for reading. A second opinion was needed to go ahead with this. In a second and subsequent third opinion it was learned that I had what is called central serous retinopathy (something that goes away in a normal person but given that I am on steroids and have hypertention, it could possibly lead to serious vision loss (2006 has seen my vision decline quite noticeably) ) I really thought I was getting some good news for a change (they won't touch the cataracts until they see where the retinopathy is going) Fast forward to today and I think to myself how lucky I am because overall I really don't feel to bad, I have a comfortable home, I still travel when I can and I am still very functional. I don't feel bad for my situation, I feel bad because nobody around me seems to give a rats a$$ about it. I am thankful for this site as it seems like a good support system. I thank anyone who made it threw this posting witout napping
I look forward to the future. God bless and thanks again.