Really Concerned

[renalpenguin]

I got my pd catheter placed a week ago- the surgery went great and I've been told my catheter looks perfect. But when the pd nurse tried to flush it, I suddenly felt really sick after only about an ounce of fluid was put in. I got dizzy, extreme back pain, and threw up. My neph and surgeon said this was very rare but normal and my body would get used to it. The nurse, however, acted like I may be unable to do pd. I'm really concerned b/c I don't want to do hemo (at home or in-center). Does anyone have any experience with problems like this? Is it normal and could it prevent me from being able to do pd?

 

[Hanify]

I often get a slight tinge of nausea whan I am draining - but can't remember if it was worse when I started.  Give it a few days for your body to adjust.  Good luck.

[willowtreewren]

 

I hope this improves.

 

[murf]

When I first started on PD, for the first two weeks I was continually nauseous and threw up at least once a day. I was told that some people take a while for the peritoneum to stretch. Also suffered bad reflux. But gradually got used to the bloated feeling and taking Pariet for the reflux. I am not sure if this is the same as what you describe but stick at it. I agree, it is a far better proposition than hemo. Did four years on hemo and hated it.

[Jenabcd]

When I went for my first PD session and training, within a minute or two of my first fill, I thought I was going to pass out. The nurse & my husband quickly got me to the chair.  I asked the nurse if this was a normal thing, and she said no, but it's OK.  I said "but it has happened before, right?"  Again, she said that she had not had a patient do that.  I too, thought that PD was not going to work for me, and I sure didn't want to do hemo.  I did get a little better as the day went on, but by the next day I was vomiting.  Well, I stuck with it, and it DID get better.  That was over a year ago, and PD itself is going just fine!  Give it a good chance - I know it's not always easy, but it's sure worth it.

[loopywinks]

I got my pd catheter placed a week ago- the surgery went great and I've been told my catheter looks perfect. But when the pd nurse tried to flush it, I suddenly felt really sick after only about an ounce of fluid was put in. I got dizzy, extreme back pain, and threw up. My neph and surgeon said this was very rare but normal and my body would get used to it. The nurse, however, acted like I may be unable to do pd. I'm really concerned b/c I don't want to do hemo (at home or in-center). Does anyone have any experience with problems like this? Is it normal and could it prevent me from being able to do pd?

 

Hello there,

Your kidney disease journey sounds somewhat similar to mine.  I have known that my kidneys were not perfect since I was a kid, but they said that my kidneys would likely not fail.  A biopsy in 2006 revealed FSGS and my creatinine has been increasing over the last few years to this point.

I had my catheter placed about 3 1/2 weeks ago.  When they first flushed it, I felt stabbing pains and felt yucky.. I was worried that it would always feel this way. Thankfully it did not hurt as much last week when they flushed.  I still have cramping sometimes (mostly feel normal), and I think that has to do with my bowels.  They have not liked this process much at all.

I am so sorry that you felt so ill.  I think that is an interesting comment.. "very rare but normal"... How can something be very rare but normal? Hopefully you will feel better next time and your body adjusts to the catheter.  I will be thinking of you. 

Best of luck and let us know when you start training.  I am not sure when I will start training but should find out when I visit my nephrologist this Wednesday.

Take care!!
Tracy (aka Loopywinks)

[renalpenguin]

Hey everyone! Thank you so much for you comments- you all gave me so much hope while I waited to try it again! On my second flush, I had no symptoms!      Thanks again!

[glitter]

I'm glad you seem to have some releif- how's it going now?

[peleroja]

Wish I could help.  I took to PD like a duck to water.  Never had any problems for 6 years.  Maybe us "fat" folks do better on PD cuz we're already stretched out to begin with!   

[Sluff]

I too hope it continue to get better for you.