Something for Everyone

[Stoday]

There's one answer to that — you can get a cure for many cancers...

[Goofy]

I have two pins I wear on my coat.  One is the green ribbon for organ donation and the other has the letters PKD with a red slash through the letters (meaning stop PKD).

Several people have asked me what they stand for.  So wearing the pin is a good way to start a conversation about kidney disease.  And I'm hoping that maybe, just maybe, I'll run across a good soul and they will want to donate a kidney!!

[Poppylicious]

This is so true; even finding info on the Internet can be a real struggle.  I haven't yet found a local fundraising kidney group ...

Blokey received some junk mail from the Macmillan Nurses (cancer support) and I very nearly binned it because I just thought it wasn't fair for him to 'deal with' other issues when he's so caught up in his own (this was a day after he sent me a text from dialysis saying, 'nobody here cares about me').  Still, he was happy to get the free pen so it was a good job I didn't bin it!

[keefbeer]

Our local TV station ran a week long story about the Freeman Hospital in Newcastle during National Transplant week, it highlighted renal, heart and associated patients. In the last few months since it has followed up stories and outcomes and done a huge amount in pursueding people to carry donor cards.
The only drawback seemed to be they concentrated on young, attractive and cuddly patients rather than the bad tempered, old and cranky bastards like myself and every other patient I know!

http://www.newcastle-hospitals.org.uk/hospitals/transforming_transforming-the-freeman-hospital.aspx 

[Lillupie]

I totally agree here. This is the number one reason why i am writring my book. It is my dream to get it out on the bookshelves. I want the word to be out. The thing is 70-80% of dialysis patients are on dialysis because of high blood pressure or diabetes. It angers me so much to  constantly see breast cancer this, cancer that, all these other diseases, but NOTHING on kidney disease. I dont know about you, but i feel this is just as important as those others. People do die on here (didnt the orginal two people who started this site pass away?), and this to me, again i dont know about you, is a nightmare, and a living hell. Yes i am able to do this and do that. But i cant even enjoy the food I want to eat. THere is no remission, like there is for cancer. Its though we have a life sentence wtihout parole, unless you get a transplant and at that point if you cant keep up with the anti-rejection meds, you lose your kidney and get sent back to prison (dialysis), unless you can keep up with the high cost or meds with a transplant and have no problems that would make you lose it.

Yes grr i get so angry and to why i never even see booklets at general doctors offices.