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Author Topic: Thirsty!  (Read 12107 times)
mmmmdeedee
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« Reply #25 on: September 02, 2006, 09:24:15 PM »

Thank you KitKatz for making me feel normal! I used to get thirsty on hemo (I'm on PD now) and I couldn't drink anything at all as they could never pull enough fluid off of me without me crashing! It sucked! And not on ice cubes!

All I could do is get ice cold water and swish it around my mouth and spit it back out. Believe it or not - it helped me.

 I lived in VA for awhile and the humidity was awful. But if you keep cool with air conditioning or whatever, it seems like you don't get so thirsty. Just another theory.

But now us lucky ones in California are getting cooler weather! Thank goodness!

Hope you are doing better now kitkatz.

And I hope you feel better that you made me feel normal. I get fed up a lot and now I don't feel like a big weenie! (Am I allowed to say that?) :o

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1st on dialysis: 1986
1st transplant: 1990
1st failure: 05/06
CCPD
2nd transplant 07/24/07
G-Ma
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« Reply #26 on: November 15, 2008, 10:36:14 PM »

Thanks for this thread...I've been so thirsty again since I'm back in center for hemo D...I could scream from the thirst...they are not giving me sodium..it just seems to be the difference in mixture..home hemo was lactaid and I was dehydrated all the time..I was never thirsty..had to force myself to drink but in center I want to be carrying a gallon of whatever with me all the time..I am almost doubling my intake a day..so much for meaasuiring...I measure it all...I think I will try the in the mouth, swish and spit it out...see if that will help...I don't know what else to do, have tried all the others with no luck..I'm not hungry since in hospital so have to force that too.........screammmmmmmmmmmm..... 

 :Kit n Stik;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile

« Reply #27 on: November 16, 2008, 04:59:36 AM »

What's the sodium setting on the  machine at the clinic? 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Lucinda
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« Reply #28 on: November 16, 2008, 02:23:45 PM »

Hey G-Ma.  This is going to sound a little strange but knowing my dialysis is starting soon I decided to have fluid restrictions for a week just to see how I would cope.  I didn't eat as much salt but normally I drink a lot of water.  What I did was put a can of Evian spray in the fridge and every time I felt thirsty I would go to the fridge and spray the Evian on my face as well as in my mouth. It comes out in a mist but it seemed to take the thirst away every time.  It seemed to work by hydrating your face as well as your mouth.  I feel the cold terribly so it is not a torturous thing to do.  As I said it comes out in a fine mist so when you spray it in your mouth you are not taking in much water but you feel so much better. If you can't get Evian in a spray over there let me know and I will send some over to you.  Worth a try maybe. x 
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G-Ma
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« Reply #29 on: November 16, 2008, 02:26:15 PM »

Thank you Lucinda...I will definately check that out.........I am doing the swish and swallow today as I am OVER my liquid limit for the weekend ...hate that....not hungry but thirsy..........grrrrr.
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
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« Reply #30 on: November 16, 2008, 05:57:14 PM »

Lucinda where do you get the spray from? I've never seen it around here.. sounds like a good idea for summer...
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
jbeany
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« Reply #31 on: November 16, 2008, 06:39:53 PM »

Bet you could get a regular spray bottle and do the same thing.  Sounds like a good idea.  I know that splashing water on my face can help - I've done that before.

If you are running some kind of forced air heat in your house, don't forget to run a humidifier. I think I get thirsty faster when I'm breathing really dry air.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Lucinda
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« Reply #32 on: November 16, 2008, 09:25:58 PM »

You can buy the can from the chemist.  It isn't a cheap alternative and Jbeany is probably right about doing it with a spray bottle.  xx
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Ang
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« Reply #33 on: November 17, 2008, 04:38:11 PM »

nothing  beats  ice  cold  fluid  going  down  the  throat


it's  so  good  its  easy  to  forget  to  take  the  bottle  away :bow;
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live  life  to  the  full  and you won't  die  wondering
G-Ma
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« Reply #34 on: November 17, 2008, 07:04:16 PM »

monrein..I checked today with tech and then the Dr. and I am not getting sodium on the machine...Dr. said try lemon drops   ???  so guess I'll try them and the misty water.
Thanks all
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #35 on: November 19, 2008, 01:00:02 PM »

freezing lemonade into little ice cubes and letting them melt in your mouth is not bad
but water is the best ever
 I never got the frozen grape idea
when I bite into a grape all that wonderful juice comes out --
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Zach
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"Still crazy after all these years."

« Reply #36 on: October 16, 2009, 08:42:55 AM »

 :bump;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Jean
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« Reply #37 on: October 16, 2009, 09:00:20 AM »

Really, folks, I am sure that Kitkatz is more than well aware of these things. She never complains, but I guess every body has to once in awhile. However, since this is a bumped up thread, she has adjusted to ( or tolerates better ) dialysis now that she is on Nocturnal Hemo. She is usually a very sweet, and pretty woman. Just my humble opinion.
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One day at a time, thats all I can do.
tyefly
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This will be me...... Next spring.... I earned it.

« Reply #38 on: October 16, 2009, 09:28:07 AM »

 Good Idea  Zach.......  Bring up older threads on subjects that could be beneficial to others on here who are experiencing the same problems....   Its fun to read older threads and see how others have had questions and dealing with there problems..... 

     This to me is why IHD is so great.....there is so much information here ......( by reading older post) that can deal with almost every problem... 

   New  People........  Spend some time researching older post with specific topics......   most of your questions can be answered.....if  Not....
                           Ask   Zach........     

               Thx  Zach     
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
kamalshah20
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WWW
« Reply #39 on: October 16, 2009, 07:06:07 PM »

This is such an awesome thread! Thanks for bumping.

Kamal
http://kamaldshah.com
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