Of course the nurse was not concerned. I was not her that was suffering!
I was on prednisone for 17 years with my transplant, so when I lost the transplant they tried and tried to take me off prednisone. I'm still on 2mg a day. Without it I'm really stiff. My point is I think everyone should be on 2mg of prednisone. That stuff is a miracle drug and 2mg is nothing.
Just a thought. Ask your doc if a low dose of prednisone would be helpful.
Of course there are side affects that healthy people shy away from. You are not healthy! You are in kidney failure and on life support. If prednisone will help, who cares if you "may" have whatever down the road. At least that is how I see it.