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Author Topic: Primary for a Kidney Panc.  (Read 4884 times)
Wallyz
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« on: September 09, 2009, 09:33:38 PM »
I should know tomorrow morning.  CHeck my facebook status.  I am friends with Bill, Aleta, Cookie, KAren and a  couple others.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: September 09, 2009, 09:40:00 PM »
 :thumbup; Please let us know - hoping for the best!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #2 on: September 09, 2009, 09:41:08 PM »


                                  :flower;
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Wattle
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« Reply #3 on: September 09, 2009, 09:45:21 PM »


 :pray;    I really hope it is yours this time wallyz. You have had enough miss calls!  Wishing you luck!
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Chris
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« Reply #4 on: September 09, 2009, 11:08:29 PM »
Hope you get it Wallz and that it goes smoothly as possible.
Good Luck!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
charee
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« Reply #5 on: September 09, 2009, 11:11:40 PM »
wishing you luck :2thumbsup;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
RichardMEL
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« Reply #6 on: September 10, 2009, 05:37:00 AM »
Hooray!!! When Karen texted me the news I was so excited I nearly jumped out of my chair and lost my needles!  :rofl;

This HAS to be the one. You have waited so long, and had so many calls offering hope!!! My prayers are that this is the one for you mate!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willowtreewren
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« Reply #7 on: September 10, 2009, 05:46:07 AM »
WOOT!

 :flower; :flower;

Really pulling for this for you!!!!!!!!

 :cheer: :cheer: :cheer: :cheer:
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Wallyz
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« Reply #8 on: September 10, 2009, 06:54:16 AM »
Panc was damaged.  BAck to waiting, thanks for all your prayers and support.
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cariad
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What's past is prologue
« Reply #9 on: September 10, 2009, 07:04:46 AM »
So sorry, Wallyz.   :(
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #10 on: September 10, 2009, 08:06:53 AM »
Well to put it frankly, That SUCKS!
Hopefully then you will be getting a call this month and that WILL work out.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #11 on: September 10, 2009, 08:18:53 AM »
That wasn't what we were hoping to hear.  I am sorry that once again, this wasn't your kidney and pancreas.  Sending you good thoughts and much love.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: September 10, 2009, 10:01:05 AM »
 :( So sorry -I really hope your miracle comes soon.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #13 on: September 10, 2009, 10:46:27 AM »
Dang, but you must be getting close. Soon I hope.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
monrein
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Might as well smile
« Reply #14 on: September 10, 2009, 10:51:47 AM »
Hope the next call isn't too long in coming.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #15 on: September 10, 2009, 11:00:46 AM »
 :thumbdown;

But surely you won't have to wait long now!!!!

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kimcanada
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« Reply #16 on: September 10, 2009, 11:10:17 AM »
When you say "damaged" do you mean in removal?
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Chris
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« Reply #17 on: September 10, 2009, 03:07:10 PM »
Kim, that is a possibility because the pancreas is more delicate. Also could be from injuries or cause of death. Usually we are not told why.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lola
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I can fly!!!
« Reply #18 on: September 10, 2009, 03:20:51 PM »
 :(
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www.caringbridge.org/visit/ottomachado
Wallyz
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« Reply #19 on: September 10, 2009, 03:27:48 PM »
Quote from: kimcanada on September 10, 2009, 11:10:17 AM
When you say "damaged" do you mean in removal?

Not this time.  The damage was from the car accident that killed the donor.
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #20 on: September 10, 2009, 03:56:14 PM »
Quote from: Chris on September 10, 2009, 03:07:10 PM
Kim, that is a possibility because the pancreas is more delicate. Also could be from injuries or cause of death. Usually we are not told why.

My transplant surgeon told me "the pancreas is pretty much like mush" normally!

Wallyz, I'm sorry it  didn't work out. I know your time will be soon though.  :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Romona
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« Reply #21 on: September 10, 2009, 05:48:15 PM »
Sorry. I hope you get another call soon.  :grouphug;
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RichardMEL
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« Reply #22 on: September 10, 2009, 09:41:17 PM »
When I heard this news I wanted to shout many profanities (like the last time this happened :( ) but my boss wouldn't have approved of that at work.

Man I am so sorry.. this must get so much more and more frustrating for you to know you are clearly near/at the top of the list but for whatever reasons it's just not happening. All I can think is that these organs were not right for you and the right ones are still to come. I want them to come soon for you. VERY SOON!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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