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Author Topic: nueropathy in feet  (Read 6695 times)
Tallons5
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« Reply #25 on: August 30, 2009, 08:54:22 PM »
Hi everybody! Umm....I have noticed for some time that my toes 'dance' or twitch for no apparent reason I can't feel the muscles and no feeling so it is kinda weird watching them which is something I find my self doing alot.
They seem to 'dance' after I've been on my feet for a while or after the long day not that I do much walking as it is, I do bike ride with the kids, its easier to get along and my kids of course appreciate dad comming along.
Just wondering if anyone else experiences the same thing.
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circleNthedrain
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« Reply #26 on: September 10, 2009, 09:13:38 AM »
I got my time increased from 3 hours to 3 1/2 hours.  Still pushing for 4 hours, but it is a time slot issue.  Hoping this will help with nueropathy over time.  Thanks for all your help and suggestions everyone!

redz...sorry, I can't help with the wheelchair selection, I use a powerchair.  You should post your question in the "Wheelchair Discussions" section.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Zach
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"Still crazy after all these years."
« Reply #27 on: September 10, 2009, 12:22:01 PM »
Quote from: circleNthedrain on September 10, 2009, 09:13:38 AM

I got my time increased from 3 hours to 3 1/2 hours.  Still pushing for 4 hours, but it is a time slot issue.


Excellent.  More time is better.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bub
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« Reply #28 on: September 11, 2009, 01:38:33 PM »
I have increased from 3 and 1/2 to 4 and 1/2 hours with little effect on my neuorpothy.  My personal care physician finally gave me 300 mg of neurotin a day and it has worked miracles for me.  Not only has the pain and numbness gone from my feet, but it also lessened the horrible itching I was enduring. 

After some experimenting we found that 100 mg in the morning and 200 mg before bed works best.  Side effects?  Dizziness and sleepiness during the day.  We tried using less than 300 mg per day (maximum dosage for hemo patients) but the pain and itching returned.

I wish you well.  I can empathize as my life was becoming pretty miserable before finally finding some relief.
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