Too tired to do anything

[iketchum]

I get so tired after hd that I just want to go home and sleep. We finally have some decent weather to ride my motorcycle and just dont feel like rideing. My wife bought another motorcycle for me and I really would like to do more than look at it.

[willowtreewren]

That was my husband before dialysis. It has made a world of difference for him!

I hope you can push past this soon.   

[Jean]

Me too, hope that this passes for you.Skip a few hours of work, maybe that will help.

[iketchum]

I work 16 hours a week, four hours on four days that I do not do treatment. Those are my good days. After treatment I feel so weird and dead tired.Tomorrow I will be fine. Maybe I need to drink some red bull or something.

[willowtreewren]

How is your hemoglobin and iron?

[texasstyle]

That darn dialysis seems to really ware people down. I see it in my husband. I'm beginning to get a grip on how dialysis effects someone. I wanted to send you some good vibes here. On the days you do feel up to doing something like riding, take full advantage and enjoy it like you never did before. But listen to your body. It will talk to you and tell you how far you can go. Doing somehing for yourself will boost your self-esteem too. We all need that every once in a while.

[Rerun]

The reason we are tired is because they basically dehydrate us.  You know how a person feels if they get dehydrated?  They usually put them in the hospital!  We just go home and wait for the fluid to shift from our overloaded tissue back into our blood stream.  The next day we feel fine.  That is why I liked nocturnal.  It was over an 8 hour period and I didn't feel that washed out fuzzy feeling.

If they have a late shift at your clinic take it.  You can dialyze from 5 - 9 PM and go home and go to bed and wake up feeling fine.  But, when you do HD in the morning like I do (6:30 to 10:30) my whole day is pretty much ruined.

On your next weekend.... get out on your motorcycle.     

[billybags]

I agree with all of you, yes there is a pattern. HD day, husband comes home creamcrackered, has lunch then goes to bed, gets up has dinner and goes to bed and the next day he feels not to bad. Been doing HD for 6 weeks now and this is the first week that he has had a couple of good days. Hope the light at the end of the tunnel is getting closer.

[Jean]

creamcrackered? I love it, another IHD word for our vocabularies, much like de-lurk.

[RichardMEL]

I agree with this. I find about 70-80% of sessions I come out, go home(over the road ) and have a cat nap for a couple of hours (cat included, usually on my chest!). The next day, which usually I either work fully through(like today) or take a long walk and do stuff(Sunday) are mostly OK, but some days I am more tired. I agree it's difficult to handle sometimes, but other times I come out and am able to function fairly well. I guess it's what you get used to.

[KICKSTART]

Yes im the same , i now look on my week as a 4 day week because the other 3 days are written off to dialysis and rest after it. Trouble is i now try and fit 2 days stuff into 1 day !!

[Slywalker]

I remember the always tire syndrome very well.  On hemo dialysis I could not stay awake and when I wasn't on the machine or working I was sleeping.  When I went on PD most of the tiredness resolved itself.  I just wasn't meant to do hemo.  However, others function alright on hemo. 

Hang in there - hopefully this too will pass.

 

[KICKSTART]

I found that i was also better on PD

[chopps]

I have good days and bad days. Do HD 5 times a week. Was told that I would not be suitable for PD.
Reading this though makes me realise that I am not on my own and that although the docs say I should feel fine I  am not the only person to feel like a pile of poo!!!