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Author Topic: Possible biopsy this week.  (Read 12043 times)
monrein
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Might as well smile
« Reply #50 on: August 23, 2009, 03:23:33 PM »
Kelly, I'm so sad you've been going through all this but now I'm just hoping for excellent news from tomorrow's labs.  You and Jaclyn have been constantly in my thoughts.   :cuddle; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #51 on: August 23, 2009, 04:31:24 PM »

Lots of prayers coming your way Kelly.

Same for Jaclyn - hoping all turns out ok.

 :pray; :pray; :pray; :pray; :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
chris73
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« Reply #52 on: August 23, 2009, 06:59:31 PM »
Hope things get better for you soon!!! just a small hurdle to overcome :cuddle;  God Bless!! Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
pelagia
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« Reply #53 on: August 23, 2009, 07:02:46 PM »
just stopping in with a  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
del
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« Reply #54 on: August 23, 2009, 07:19:37 PM »
 :cuddle; Hope the numbers are down on Monday.
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Jean
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« Reply #55 on: August 23, 2009, 11:21:11 PM »
 :pray;
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One day at a time, thats all I can do.
kellyt
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« Reply #56 on: August 24, 2009, 01:06:29 PM »
Went in for labs this morning and called about 1:30 p.m. for my results.  The nurse said my creatinine was 2.9 and my Prograf level was above 8 (too high for the situation I'm in right now).   What?  How could it possibly be going up?  She said she would show the results to the doctor and see what he says and she'll call me back.

2:45 p.m. she calls back.  "Kelly, I am so sorry.  I was looking at the wrong labs.  Your creatinine is 1.6 and you Prograf level is 6.7.   :Kit n Stik;


 :yahoo; :bandance;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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« Reply #57 on: August 24, 2009, 01:29:42 PM »
And did you thank her for the hour plus of high BP??

Kidding aside, I'm glad for this good news.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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« Reply #58 on: August 24, 2009, 01:31:03 PM »
 :bandance;  yay Kelly   :bandance;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #59 on: August 24, 2009, 01:36:18 PM »
Worse than that Willowtree, I was thinking (only thinking) "Why do I have to wear this stupid drain bag if my creatinine is going to continue to climb?  I might as well rip it out!"    Yes, I get emotional.  But I soon calmed myself and just sat in the quiet for a while thinking about what it all meant.  I was so relieved to get the 2nd call with the admitted mistake that I broke down and cried.  All better now, though.  :)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #60 on: August 24, 2009, 01:49:17 PM »
No one knows how much simple numbers can effect us.  Just one number makes such a difference. The nurses read these numbers all day long never realizing how "over the edge" we can get with the wrong numbers.   I am sorry, Kelly, for the hour of agony, but am really glad she called back and didn't wait to tell you.   I am thrilled the creatinine is 1.6   :2thumbsup;   :yahoo;   :clap;   
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willowtreewren
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« Reply #61 on: August 24, 2009, 02:08:57 PM »
Sometimes a good cry is just what the doctor ordered, Kelly.

I know medical workers are over-worked, but they just don't seem to realize how much a simple slip can hurt.

Let's keep the good numbers coming! I hope this means that you'll be on your way to LV!

Best wishes,
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willieandwinnie
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« Reply #62 on: August 24, 2009, 03:08:37 PM »
 :cheer: Kelly. Keep drinking and peeing.  :cuddle;
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Wenchie58
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« Reply #63 on: August 24, 2009, 04:42:58 PM »
I think a good cry rids your body of toxins, both emotional and physical ( in my mind anyway)  Glad your numbers are so much better...see I told ya!!!

 :sir ken;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
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okarol
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« Reply #64 on: August 24, 2009, 04:59:09 PM »
 :flower; Awww Kelly - I am sorry they scared you! (Scared me too!)
Your 1.6 is something to celebrate!!  :yahoo;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
charee
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« Reply #65 on: August 24, 2009, 06:35:15 PM »
 :bandance; Thats great Kelly its on the way down :bandance;
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Home Hemo  18 months
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from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
pelagia
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« Reply #66 on: August 24, 2009, 08:01:00 PM »
 :yahoo;  so happy to hear that the numbers are going  :thumbdown;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wattle
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« Reply #67 on: August 24, 2009, 10:08:15 PM »
 :flower;

Music to my ears Kelly!!!     :cheer:


I think I will do a little dance now...........    :bandance; :bandance; :bandance; :bandance; :bandance;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
TeenHatesDialysis
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« Reply #68 on: August 25, 2009, 12:25:35 AM »
 :2thumbsup; Love the direction of your creatinine numbers! Decreasing creatinine is always good news! I know that Jaclyn's issue will be resolved soon, but she is still in the hospital being monitored. They did her 3 month biopsy today, at 7 weeks.  Expecting it to be fine, hopefully just issues with prograf absorption, but she has been in hospital since Wednesday.

Jaclyn and I are very excited for you! Sorry they made a mistake on your first numbers. They don't understand that our lives revolve around those numbers. Lots to celebrate. Go Good Kidney Go!  :clap;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
kellyt
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« Reply #69 on: August 25, 2009, 03:06:16 PM »
Good thoughts and prayers for Jaclyn!

I saw the doctor today and discussed both the good news and the bad.  The good news being my creatinine and the bad news being I have to have this drain in for four more weeks!  He's putting me back on Bactrim to hopefully avoid infection.  Plus another medication.  Four weeks is going to be tough.  This thing is always in the way.  Our main concerns are 1) infection and 2) accidentally pulling out the drain.  That would be bad!
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
pelagia
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« Reply #70 on: August 25, 2009, 05:36:16 PM »
thinking of you and sending a  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Romona
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« Reply #71 on: August 26, 2009, 01:26:55 PM »
 :grouphug; I'm glad your number are better!
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Wattle
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« Reply #72 on: August 26, 2009, 04:09:09 PM »
Quote from: kellyt on August 25, 2009, 03:06:16 PM
He's putting me back on Bactrim to hopefully avoid infection. 

The day after I take the Bactrim my Creatinine spikes Kelly. So don't be alarmed if yours plays up a bit too.

Did you manage to work out a waterproof dressing? Four weeks will go quickly.     :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kellyt
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« Reply #73 on: August 26, 2009, 05:08:59 PM »
Thanks.

We placed plastic wrap over it and taped it down on all four sides with packing tape.  I stood in the shower holding my drain bag with one hand and my other hand over the covered dressing.  My husband helped me out.  I hope the time flys
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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