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Author Topic: Dani  (Read 22884 times)
pelagia
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« Reply #75 on: April 15, 2009, 06:29:05 PM »
Lola - I am really sorry to hear this news.  I hope the re-test offers better numbers.  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #76 on: April 15, 2009, 07:35:57 PM »
Lola, mother to mother, my heart is breaking for you.  Nothing compares to worrying about your child, especially since you know what Dani faces.  I'll keep praying that Otto gets his kidney quickly (we believe in miracles) and that Dani's numbers will look much better with the re-test.     :cuddle;  :cuddle;  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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« Reply #77 on: April 15, 2009, 07:45:54 PM »
Lola, I'm so very sorry that you've had this news.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MIbarra
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Stopping to smell the bluebonnets
« Reply #78 on: April 15, 2009, 09:46:38 PM »
I hope the next blood tests show better results! I'll keep little Dani in my thoughts!  :cuddle;
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Cadaver transplant April 29, 2007
Wattle
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« Reply #79 on: April 16, 2009, 01:39:31 AM »


 :grouphug;  Fingers crossed Dani's numbers are better next test. Thinking of you Amy.   :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
charee
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« Reply #80 on: April 16, 2009, 02:42:46 AM »
Thinking of you Amy with fingers crossed :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
kimcanada
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« Reply #81 on: April 16, 2009, 03:26:31 AM »
Oh man, this sucks... I hope all this turns around Lola

Thinking of you

Kim :grouphug;
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willieandwinnie
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« Reply #82 on: April 16, 2009, 04:53:36 AM »
 :cuddle; lola, I am so sorry to hear the news about Dani. So the 24 hour and we will all pray that the labs where not done correctly. Please keep us posted. How is Otto doing? How are you?  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kitkatz
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« Reply #83 on: April 16, 2009, 09:00:18 PM »
Prayers for everyone!  :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
lola
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I can fly!!!
« Reply #84 on: April 18, 2009, 05:43:35 AM »
Thanks for all the Love guys, what would I do with out U. Dani will start her 24 hr collection this am so I look like a pretzel crossing everything praying this comes back better. Speaking of pretzels I need a Icon since I do so much crossing of body parts.
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MIbarra
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Stopping to smell the bluebonnets
« Reply #85 on: April 18, 2009, 05:45:09 AM »
I'm crossing my fingers for her too and saying a little prayer. I hope the results come back better!
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Cadaver transplant April 29, 2007
kitkatz
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« Reply #86 on: April 18, 2009, 11:37:26 AM »
Here is an image you might use for your avatar.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
lola
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I can fly!!!
« Reply #87 on: April 19, 2009, 10:11:15 AM »
Well the "orange" jug has been dropped off, it's gonna be a loooooooong 24hrs till I hear something.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #88 on: April 19, 2009, 02:05:36 PM »
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #89 on: April 20, 2009, 03:36:37 PM »
 :bandance; :bandance; :bandance; last weeks labs were a fluke!!!! Dani's labs are a little high but normal for her. Life is good :flower; Thanks for the prayers and hugs xoxoxxo :cuddle; :cuddle; :cuddle;
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willieandwinnie
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« Reply #90 on: April 20, 2009, 03:46:35 PM »
lola  :yahoo; I'm so happy to read this.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #91 on: April 20, 2009, 05:59:16 PM »
 :bandance;  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
TiffanyJean
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We live in paradise - if only we could enjoy it!

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« Reply #92 on: April 20, 2009, 07:11:57 PM »
Lola, You give me SO much courage!! Taking care of 2 people with kidney problems! You have such strength, and knowing that you are able to continue your strength and help your family, gives me the courage and strength to really keep it up for my husband.

I will keep your family in my thoughts and prayers!!

Thank you, Much Aloha 

Tiffany Jean
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"Just think people have no problem having only one kidney, so we have to ask, why
did God give us two kidneys?  Perhaps it is so you would have an extra one to
donate and save a life!"
                        - Dr. Stuart Greenstein, Kidney Transplant Surgeon,
                        Professor of Surgery, Montefiore Medical Center, Bronx, NY   
                        Source of quote:   www.ourjerusalem.com
MIbarra
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Stopping to smell the bluebonnets
« Reply #93 on: April 20, 2009, 08:10:39 PM »
 :bandance; phew! great news
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Cadaver transplant April 29, 2007
lola
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I can fly!!!
« Reply #94 on: August 08, 2009, 07:28:39 AM »
Well we have just increased Dani's meds, kinda scared as she is small and this dose my cause problems(lightheaded or she may pass out). If she does well then we will do another 24 hr in October, if she can't tolerate it we may have come to a point where there's nothing else to do :banghead;
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willowtreewren
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My two beautifull granddaughters

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« Reply #95 on: August 08, 2009, 09:58:43 AM »
 :grouphug; :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #96 on: August 13, 2009, 12:31:46 AM »

How is Dani doing lola - is the dose giving her any trouble?
 :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #97 on: August 15, 2009, 06:40:40 AM »
It's been 1 week now and so far we are not seeing anything, I have learned not to get my hopes up to high but I can't help but :bandance; :bandance; :bandance; :bandance;. If she continues to do well we will do another 24 on October.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #98 on: August 15, 2009, 08:04:30 AM »
 :2thumbsup; Great, here's hoping for good results!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #99 on: August 20, 2009, 07:02:53 PM »
 :cuddle; thinking of you and sending you and the rest of your bunch some hugs  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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