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Author Topic: Help  (Read 3813 times)
KICKSTART
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In da House.

« on: August 10, 2009, 11:19:44 AM »

I havent been here for a few days . All i can say is i start on Hemo on wednesday ,im having a tunnel line put in , in the morning and im scared stupid. I will try and come back to the site before then but im so full of toxins i dont know if i can.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
rose1999
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« Reply #1 on: August 10, 2009, 11:20:45 AM »

Good luck, I will be thinking of you.  :cuddle;
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billybags
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« Reply #2 on: August 10, 2009, 11:44:35 AM »

Hi Kickstart, Dont worry about it, we have to take the shi* that's thrown at us. When you say tunnel line, is that the one they put in to a main vein under your shoulder :flower;. If it is my husband had it fitted as an emergency line when they took his PD catheter out. He was fine, it took about half an hour and he was straight on to Hemo the same day. He finds hemo very boring because you are confined to the chair for four hours.He has had three weeks of this and is re thinking going back to CAPD if it is possible. Good luck with this, stop worrying, you will be fine.
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Darthvadar
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« Reply #3 on: August 10, 2009, 12:03:56 PM »

Wishing you the very best of luck, Kickstart.....

Only good things should come your way....

Lots of  :grouphug; :grouphug; :grouphug;

May God bless and protect you...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
dyannalw
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« Reply #4 on: August 10, 2009, 12:12:50 PM »

I had my fistula put in and a chest cath put in at the same time.  I started hemo dialysis the day after and I was terrified.  Take it from me it isn't that scary.  My first day I was shaking so bad, I was so scared and it really turned out just fine.  I have been on hemo dialysis now for 3 weeks and I feel so much better. Even my mind feels clearer. It is hard not to worry but really it will be okay. I'll be thinking of you.

Dyanna
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monrein
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Might as well smile

« Reply #5 on: August 10, 2009, 12:19:42 PM »

Thinking of you KS, and the thought of the tunnel cath is usually far worse than the reality.  Main thing is to know that you have so many here who will be metaphorically holding your hand so to speak.  Come back and update us when you can.   :grouphug; :cuddle; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Goofy
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« Reply #6 on: August 10, 2009, 01:08:41 PM »

You have a reason to be scared.  Anything unfamiliar can be scary; especially when you don't have a choice.  I'm the last person to tell you not to worry. I can only hope that Wednesday comes quickly so you can get through this and hopefully that will give you peace of mind.  Good luck.  I'll be thinking of you.
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willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: August 10, 2009, 01:34:16 PM »

Thinking of you, Kickstart! Think of how much better you are going to feel.  :)

It's time to get those toxins out of your system so you and go back to your normal self!

Hugs.  :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
del
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del and willowtreewren meet

« Reply #8 on: August 10, 2009, 02:25:05 PM »

Kickstart you will feel like a new person once hemo starts removing all the toxins!!!  I know when hubby had to switch from pd to hemo with a few days what a difference!!!  Take care. You will be fine. Hey hubby was scared silly of hospitals and any procedures but he couldn't wait to have the hemo cath put in so that he could feel better.
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Don't take your organs to heaven.  Heaven knows we need them here.
*kana*
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« Reply #9 on: August 10, 2009, 03:15:16 PM »

I remember having that placed if it is the thingy in the neck/shoulder area.

They wheeled me into a room, gave me a little versaid, a little poke in the shoulder to numb the spot.  They then placed a sterile cloth over my head and told me that I would feel a little pressure and pushing.  I felt nothing except my heart felt a little fluttery and I kept telling them I must be going in V-tach.  I did freak out a bit but I guess it wasn't my heart but my vessel spasming.  Didnt take too long and I was back out in the hall. 

I wish you the best of luck 
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PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Inara
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« Reply #10 on: August 10, 2009, 05:40:11 PM »

I'll be thinking of you and let us know how you are ASAP!   :flower;
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*Primary Caregiver of Leslie, my best friend.  She's been on dialysis for 9 years.
*Dialysis Nurse for 9 years
*HUGE Sci-Fi fan!! (Yes, I'm a dork)
*Recovery from broken leg.....85% healed and that's the best it will ever be.....a slight limp is kinda sexy, huh?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #11 on: August 10, 2009, 05:48:32 PM »

Thinking of you KS.  At least you'll start to feel better one you get some better dialysis happening.  Let us know how you are.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Jean
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« Reply #12 on: August 10, 2009, 10:07:50 PM »

Hope all goes well for you Kickstart. Will be praying for you.  :grouphug;
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One day at a time, thats all I can do.
KICKSTART
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In da House.

« Reply #13 on: August 11, 2009, 12:48:56 AM »

Thanks for all your words of support everyone , i think im just nervous because i have to do it on my own. I also think it was a shock to find out my PD had stopped working (i think it was what i expected but i still didnt want to hear it ) I feel dreadfull today , i didnt sleep at all last night and expect tonight will be the same. I know i will feel better once i get through this because i felt awful for months now. I was the same when i had to start PD (terrified) and now years down the line im re -assuring other people . I will try and get back to the site asap and let you know how i get on.
You do realise one thing though .. im going to be like a newbie and asking lots of questions about hemo now !!! Take care everyone and hopefully i will speak to you soon !!  KS.  xxx
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
twirl
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« Reply #14 on: August 11, 2009, 04:40:18 AM »

 :flower; :flower; :flower;
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willieandwinnie
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« Reply #15 on: August 11, 2009, 04:47:11 AM »

 :grouphug; We are here KS.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Deanne
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« Reply #16 on: August 11, 2009, 09:29:35 AM »

Hang in there! Maybe you're physically alone -- no one physically in the room with you, but we're all here rooting for you.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
okarol
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« Reply #17 on: August 11, 2009, 10:05:15 AM »


I am just seeing this now KS - hope you're doing fine and will be feeling better soon!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
maritza0486
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"Pple cant do evrythin but every1 can do somethin"

« Reply #18 on: August 11, 2009, 03:10:02 PM »

Good luck. :2thumbsup;
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~Diagnosed with End Stage Renal Disease at age 17 (a month before turning 18)
~Kidney Transplant from sister February 10, 2005
~Transplant failed December 2008
~Began Dialysis for my very first time May 6, 2009
~Put on Transplant List on June 5, 2009
~Miraculous phone call from Montefiore about potential kidney August 31, 2009
~2nd Kidney Transplant!!! September 1, 2009
~Sep. 6, 2009 Creatnine 1.1 ---- Sep. 11, 2009 Creatnine 1.5 --- Sep. 18, 2009 Creatnine 1.3
~May 14, 2010 -- Creatnine 1.0!!!! I am healthier than ever. 8 months since 2nd transplant!!
kitkatz
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« Reply #19 on: August 11, 2009, 03:12:24 PM »

We will be here to answer your questions and give support.  :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #20 on: August 12, 2009, 12:58:51 AM »

Do you mind me asking how long you did do PD for kickstart?  I've been doing it a year and a half and I can't seem to find any info about how long it might last.  What about others?  I want to be mentally prepared for having to do haemo again.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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