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Author Topic: Hello  (Read 4985 times)
twitch34
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« on: November 27, 2006, 06:30:18 AM »

Hi my name is Dawn.  I am a former dialysis patient.  I became a diabetic at the age of 8 years old and then a dialysis patient at the age of 27.  I was on dialysis for about 3 1/2 years.  I received a transplant Aug. of 2004.  All is going well.  I had a kidney/pancreas transplant. 

As a patient I became a volunteer for activities and loved it.  When I wasn't on dialysis I was doing crafts and talking with the other patients.  I resumed doing this after my transplant and then went to school to become a Activities Director.

I now work at the facility that I started dialysis at.  Not the same branch but same company.  I thought it would be a good thing to give back because there were so many people that helped me through the tough time that I was going through.  I was a very independent person until I was on dialysis and the illness took that away.

I was very tired after treatment and slept for at least 2 hours after.  I know that dialysis kept me alive and I don't believe I ever missed a treatment.  But there were definitely days that I didn't want to be there.

In the long run I empathize with all the patients that I work with now and if they don't want to talk or do anything I understand.

I am glad that this web site is out there for those to voice there opinions I hope to be able to talk with some people through a chat line.  And I will give this web to the patients that need to vent.

Great job getting this started.




EDITED:   Moved post to proper thread - Goofynina/Moderator
« Last Edit: November 27, 2006, 10:02:32 PM by goofynina » Logged
Fox_nc
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« Reply #1 on: November 27, 2006, 07:42:29 PM »

Welcome to our community!   :welcomesign;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
Rerun
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Going through life tied to a chair!

« Reply #2 on: November 27, 2006, 08:00:52 PM »

Hi Twitch34!  Welcome to our site.  I think it is great that someone who "really knows" works at a dialysis unit.  I would tend to "listen" to someone who has been there rather than just "talk".

It is like having a skinny aerobics teacher.......she doesn't know!  I want an aerobics teacher that has to work at it like I do. 

                 :welcomesign;
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« Reply #3 on: November 27, 2006, 08:30:56 PM »

Welcome to IHD.
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Epoman
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« Reply #4 on: November 27, 2006, 08:34:00 PM »

Hi Twitch34!  Welcome to our site.  I think it is great that someone who "really knows" works at a dialysis unit.  I would tend to "listen" to someone who has been there rather than just "talk".

It is like having a skinny aerobics teacher.......she doesn't know!  I want an aerobics teacher that has to work at it like I do. 

                 :welcomesign;

Um? Rerun did you notice this thread was in the wrong section  ???

- Epoman
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Rerun
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« Reply #5 on: November 27, 2006, 08:43:05 PM »

Damn!  No I didn't.  Sorry~   :-[
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anja
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« Reply #6 on: November 27, 2006, 09:16:54 PM »

 :welcomesign; Dawn, glad you joined us and kudos :thumbup;  for giving back to the dialysis patients!!!
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goofynina
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« Reply #7 on: November 27, 2006, 10:03:56 PM »

Hi Dawn and welcome to our Awesome website/support group :)  Looking forward to hearing more from you  :2thumbsup;
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Joe Paul
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« Reply #8 on: November 28, 2006, 01:55:08 AM »

Welcome Twitch, good to have you aboard.
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angieskidney
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« Reply #9 on: November 28, 2006, 04:02:04 AM »

I am glad that this web site is out there for those to voice there opinions I hope to be able to talk with some people through a chat line.  And I will give this web to the patients that need to vent.

Wow you have accomplished a lot! Congrats! I am envious :P

You want to talk to some people through a chatline? Here is a very good one in this very forum!! Just look up where there is this image: and click it and register to that chatroom with the same name you use here ;)
Anyone in this forum if they look on the front forum page can see when people are in and will join you!  :2thumbsup; :2thumbsup;

 :welcomesign;

- Angie
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
RichardMEL
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« Reply #10 on: November 28, 2006, 05:07:33 AM »

Welcome Dawn! So wonderful to read that a) your transplant is so far working fine and b) you are giving back from a position of having "been there, done that" - I imagine you would be the best activities director they have there just from having some idea what it is REALLY like. I think it is a wonderful way to go and I am sure your paitents apprieciate your understanding and experience.

Gee, at my unit we don't have activities !!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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« Reply #11 on: November 28, 2006, 11:17:43 AM »

Welcome, Dawn, glad you're here!   :welcomesign;
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Zach
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« Reply #12 on: November 29, 2006, 03:33:27 AM »

Welcome to the family!!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jbeany
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« Reply #13 on: November 29, 2006, 08:01:03 AM »

 :welcomesign;
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« Reply #14 on: November 29, 2006, 09:25:28 PM »

Welcome, Dawn!

You have an excellent job and are uniquely qualified for it - you're an inspiration for the patients.  It's good to have you here, it's an excellent site and I think your patients will like it as well.

DeLana   :grouphug;
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Bajanne
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« Reply #15 on: December 04, 2006, 06:24:02 AM »

Welcome to our community.  I consider you a very special addition and I am glad you decided to join us.  You have so much to offer, and I am really looking forward to your being a functioning member in our group. :welcomesign; :grouphug;
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okarol
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« Reply #16 on: December 05, 2006, 11:36:06 AM »

Your perspective is a good one!
Welcome to IHD!
~Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MattyBoy100
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« Reply #17 on: December 09, 2006, 03:31:46 PM »

Hi Dawn, I have nothing but the upmost respect for anyone that works in the profession cos the staff at my unit are great.  Good on you!  :welcomesign;
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SCOTLAND NO.1
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« Reply #18 on: December 09, 2006, 07:48:18 PM »

 :welcomesign;
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sandman
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« Reply #19 on: December 09, 2006, 08:50:57 PM »

 :welcomesign;
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nextnoel
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« Reply #20 on: December 11, 2006, 06:27:03 AM »

Welcom, Dawn  :welcomesign;  What an unusual range of insight you have!  Glad you joined us!
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I can't reach the hill like I used to, but I'm not at a standstill yet!
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