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Author Topic: Getting treated for rejection: Update  (Read 24967 times)
pelagia
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« Reply #125 on: June 16, 2009, 07:04:49 PM »
Dear Donnia, this is truly cause for celebration.  :bandance; :cheer: :clap; :2thumbsup; :yahoo; :flower; :guitar: :bandance; :2thumbsup; :yahoo; :clap; :thumbup; :bandance; :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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« Reply #126 on: June 16, 2009, 07:21:42 PM »
Great news Donnia!!!!!!!  :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #127 on: June 16, 2009, 07:56:23 PM »
That's good donnia.
Are those lab results from your local hospital or from your transplant clinic?

Reason I'm asking is my local hospital gives it only in whole numbers such as 1.5. Yet when my transplant center does it, they give it's values like yours. Just curious is all.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
ODAT
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« Reply #128 on: June 16, 2009, 08:19:09 PM »
Quote from: donnia on June 10, 2009, 02:24:32 PM
Yeah, it is a new medication.... and cost $6400 a month!!!!!!!!!!!!!!!!!!!!!!!!!!

I called my coordinator back and I think we are gonna stay on the rapamune lol   :flower;

Glad you are doing better! Can you believe the pharmaceuticals? Who do they think they are - the government?!
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As is your sort of mind, so is your sort of search: you will find what you desire.
donnia
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me and my donor Joyce
« Reply #129 on: June 17, 2009, 08:32:32 PM »
Chris... it is my local clinic that gives me the results like that :)

ODAT.... right huh!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willowtreewren
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« Reply #130 on: June 18, 2009, 05:41:25 AM »
Let's keep these great numbers coming.  :clap; :clap;

So we can all celebrate!  :bandance; :2thumbsup; :bandance; :yahoo;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
donnia
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me and my donor Joyce
« Reply #131 on: June 23, 2009, 01:56:44 PM »
Labs from today.... ready? ? ? ? ?




CREATININE......................... 1.23!!!!!!!!!!!!!!

Down from 1.54 last week    :cheer: :cheer: :cheer: :cheer: :cheer:
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
willieandwinnie
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« Reply #132 on: June 23, 2009, 02:06:45 PM »
 :yahoo; donnia.  :yahoo;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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« Reply #133 on: June 23, 2009, 02:23:57 PM »
Quote from: donnia on June 23, 2009, 01:56:44 PM
Labs from today.... ready? ? ? ? ?




CREATININE......................... 1.23!!!!!!!!!!!!!!

Down from 1.54 last week    :cheer: :cheer: :cheer: :cheer: :cheer:

  That's GREAT!!!

 :flower;  :flower;  :flower; :clap;  :flower;  :flower;  :flower;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #134 on: June 23, 2009, 02:43:44 PM »
 :cheer: Hip Hip Hooray! :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Sunny
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Sunny
« Reply #135 on: June 23, 2009, 03:07:32 PM »
What a relief. I'm very happy for you and your new creatinine level. Things are looking good.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
glitter
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« Reply #136 on: June 23, 2009, 04:11:23 PM »
sweet!!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
willowtreewren
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« Reply #137 on: June 23, 2009, 04:23:30 PM »
WOOT!

Let's break out the ice cream to celebrate!
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #138 on: June 23, 2009, 07:38:11 PM »
FANTASTIC news....long live this trend.   :flower; :flower; :flower; :flower;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
donnia
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me and my donor Joyce
« Reply #139 on: July 25, 2009, 06:41:06 PM »
Lab update from this week!

Creatinine = 1.2

BUN = 25

 :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #140 on: July 25, 2009, 07:07:15 PM »
 :yahoo; Yeah baby!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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Posts: 2306
« Reply #141 on: July 25, 2009, 07:18:56 PM »
 :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:

Wooohooooo Hope
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
willowtreewren
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My two beautifull granddaughters

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« Reply #142 on: July 25, 2009, 07:59:58 PM »
Super!  :bandance;

 :cheer: :cheer: :cheer:

 :clap; :clap; :clap;

 :yahoo; :yahoo; :yahoo;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Romona
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« Reply #143 on: July 26, 2009, 07:08:37 AM »
 :bandance; Wonderful!
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Chris
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« Reply #144 on: July 26, 2009, 06:33:50 PM »
Thought I replied here last night  :stressed;

Great news there, wish mine was that low, but mine is steady at 1.5 unless hooked up to fluids.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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