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Author Topic: Saying HI  (Read 2835 times)
aquadj
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Brent & DJ

« on: July 14, 2009, 12:54:14 AM »

Hi, I am DJ.  I have had kidney disease due to diabetes since the mid 1990's  I was diagnosed a Type 1 diabetic when I was 17.  I got my 1st transplant in 2000. MY DH was my donor.  It lasted until BK Virus took it our in 2003. I then went on dialysis. I did PD for a year then got another kidney from a cadaver.
  In 2007 I was diagnosed with APL a rare form of leukemia. I had three rounds of heavy duty chemo. I went into remission after the first month & my kidney did great.  But I had to follow up with a year of methetrexate.  My CR kept rising & the dr. kept lowering the dose but it didn't work.  So on Dec 31, 2008 I was told to start thinking about dialysis. I wanted to do PD again but my neph. said he thought my husband & me would be  great candidates for home hemodialysis. And that it easier on the heart. I had bad cramping on PD.

 I got my fistula in Jan, then started in center hemo on June 7.  We start training for home hemo on the 20th of July. My husband has already started to insert my needles then pull them.  I'll be glad when we can do it at home.
Just got out of a 3 day hospital stay. My center thought they had my dry weight & was only taking that much off.  I couldn't breathe & so we called my neph Sat night. He came in & stayed for the whole 4 hr treament. I had more hemo on Sunday & Monday.  Over those 3 days they took off 6 liters of fluid, about 14 lbs!  I was shocked there was so much fluid left in me.

I live in Utah,born in Louisville, KY, am an avid reader (hello Kindle!), a Barbie doll collector & doll house maker.
We have 2 cockatiels.
I am looking forward to hearing about the experiences people on the board had have.
peace,
DJ
Courage isn't always a lion's roar
It is sometimes the heart
at the end of a day saying...
"I will try again tomorrow"

Twitter- aquadj
My Space- www.myspace.com/deejaypoetrywoman

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Courage isn't always a lion's roar
It is sometimes the heart
at the end of a day saying...
"I will try again tomorrow"

Twitter- aquadj
My Space- www.myspace.com/deejaypoetrywoman
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1 on: July 14, 2009, 02:12:44 AM »

Hiya DJ.  Nice to meet you.  Look forward to getting to know you.  This is a great place to chat.  You've been through a lot!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willieandwinnie
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« Reply #2 on: July 14, 2009, 07:08:11 AM »

 :welcomesign; DJ. Glad you found us and we hope to hear more. Sounds like you'll be a great addition to our family. I also build dollhouses but don't have the time I'd like anymore. Please post often, we are a great group.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pklipe57
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« Reply #3 on: July 14, 2009, 08:30:03 AM »

 :welcomesign; to IHD.  We're glad you're here.
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peleroja
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I have 16 hats, all the same style!

« Reply #4 on: July 14, 2009, 08:57:43 AM »

Welcome to the group, DJ.  Excellent quote, by the way.  This is a great place for info and the occasional shoulder to cry on when you might need it.  Come on back and post often.
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Romona
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« Reply #5 on: July 14, 2009, 08:03:21 PM »

 :welcomesign;
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oswald
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« Reply #6 on: July 14, 2009, 09:29:37 PM »

 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
breezysummerday
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« Reply #7 on: July 21, 2009, 07:00:03 PM »

 :waving;

Hi aquadj!
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
kimcanada
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WWW
« Reply #8 on: July 21, 2009, 07:09:40 PM »

 :welcomesign; I am getting ready to train for home hemo also..  we will have to compare notes
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willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: July 21, 2009, 07:13:47 PM »

Hi, DJ,
It sounds like your husband is a real gem. I'd hang on to him if I were you!  :rofl;

My husband does HHD with NxStage. He is doing just great on it. I hope your journey goes just as well.

Welcome to IHD!

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile

« Reply #10 on: July 22, 2009, 04:40:48 AM »

 :welcomesign;  What a very rough time you've had!  I'm glad you found us and this site and really hope that things settle down for you very soon.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #11 on: July 22, 2009, 05:03:51 AM »

 :waving;
 :welcomesign; To IHD.
Hope to see you post often on many threads.
Sounds like you will be doing home hemo i no time  :2thumbsup;
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Darthvadar
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« Reply #12 on: July 22, 2009, 07:29:22 AM »

 :welcomesign; to IHD, DJ...

Nice to see you here, and I look forward to hearing a lot from you..

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kellyt
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« Reply #13 on: July 22, 2009, 08:42:22 AM »

 :waving;    It's good to have you here.  Sounds like you can give a lot of advice and information.  Look forward to hearing more from you!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kitkatz
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« Reply #14 on: August 02, 2009, 07:28:09 AM »

Glad to meet you!  I bet your home hemo training is going well. Good luck at it!   Welcome aboard. 




kitkatz,Moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MandaMe1986
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« Reply #15 on: August 02, 2009, 08:02:59 AM »

 :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #16 on: August 02, 2009, 09:24:59 AM »

Welcome to our community, DJ!  So glad you decided to join us.  You have certainly been through a great deal.  But I continue to be amazed at the strength of the human spirit in the face of daunting challenges.  This is juss the place for you to be.  Here you will find information, support and even fun.  This is far more than just a forum - it is a genuine caring and sharing family.  Keep reading and keep posting.  We need to know how you are doing.



 Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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