Back on Dialysis

[Bette]

Hi!  My name is Bette, and I have been dealing with Kidney problems for a long time, but recent events have been really hard. 

I lost my kidneys in 1987 at age 19 due to FSGS.  I was on Hemo for about 2 months, and then went on CAPD for 7 years.  I received a transplant in 1994 that had lasted for 12 yeas.  It finally failed, and I have been on Hemodialysis for about 2 weeks.  I have had a CAPD catheter put in and I will be going on ccpd in about a month.

I am feeling really depressed right now.  Losing my transplant has been harder for me then losing my kidneys the first time.  I guess I just started to take the transplant for granted.

I have a 6 year old daughter, and I am trying to make life as normal as possible for her.  I had her after I had my first transplant.

I am so happy to find this sight.  I am usually a pretty positive person, but right now I am very frustrated and it is so wonderful to be able to vent to people who really understand what it is like to have a chronic illness.

Thank you!

[Joe Paul]

Welcome Bette, Glad to have you aboard. Hope you soon feel better, being down sucks.

[Zach]

Great to have you join us Bette!

[goofynina]

Hellooooo Bette,  Welcome to our awesome Website/Support Group    Sorry to hear your transplant failed, come on girlfriend, let's start working on getting another one     It will get better soon, just one day at a time, but in the mean time, please remember, you are not alone and we are here for ya   Look forward to hearing more from you!!!

[Sluff]

Bette, I too have FSGS but not yet on Dialysis I'm still around 50% but I hope things get better for you soon.

[vandie]

 
Welcome Bette.  You are in the right place.  This group is an fantastic support system.

[Bajanne]

Welcome to our sharing and caring community.  This is the place to be when times are good, and when times are bad.  Feel free to vent. You have an entire community of people who understand what you are going through, and who are with you whatever you are going through.  We look forward to hearing more from you. Take your time and go through these thousands of posts we have here.  There is sure to be something of interest, or of help, to you.
 

[Rerun]

Hi Bette.  Welcome to our site.  I felt your pain when I read your introduction.  I too lost a transplant after 17 years.  It was like losing my best friend.  I did not want to go back on dialysis.  If I couldn't have my kidney I didn't want to live.  But, I'm still here!!  I'm back on the transplant list and waiting.  But, I know, truly know how you feel.  Why the hell don't they give us another kidney before the old one fails?  Why do we have to lose it and lose our jobs and lose our lifestyle, and lose everything?  Oh yeah, $$$$$.   

[angieskidney]

I was depressed at first as I had worked so hard to get ahead and was just approved for the promotion I was aiming for for 9 years. Then I lost the transplant and couldn't work the 12-hr shifts 5 days a week on swing shift that the promotion definately required of me.

Everything went down hill from there.

I can understand the depression as dialysis can NOT compair to a transplant! I miss the energy I had felt for those 11 years I had mine. I miss being able to drink all I want. I miss being able to enjoy foods.

I miss life and being able to travel. On PD I could even travel more than I can on HD

But one good thing .. all the people here! It is so nice to have people who understand for once!! 

[Jaybird]

Hi,

Its a bummer that you lost the transplant.

Prior to starting dialysis I put it off as long as possible, I was going on 7-9% kidney function for nearly 3 years before I caved into the inconvienence of hemo.

However, I did get a hemo machine that I can use at home and it doesnt inconvienence my life as extremely as it would by going to a clinic 3x times a week. Look into home dialysis if you can do it. The supplies and machine etc take up a corner of one room, but its more than worth the trade off.

Good luck,
Jaybird