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Author Topic: what's your schedule on manuals?  (Read 2446 times)
Rann
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« on: July 20, 2009, 08:46:40 PM »
 right now, due to nurse staffing problems, we cannot get help for my dad with the recycler at night. (He cannot be responsible for the machine himself)
 I am having to spend every night with him and that will not continue to be an option.

 We can get home health to help with manuals  during the day.

They are asking me what hours I need help for? What do I say?  What does your schedule look like with 4-5 fills during a day?

Edited: Fixed error in subject line - okarol/admin
« Last Edit: July 21, 2009, 11:46:54 AM by okarol » Logged
Restorer
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« Reply #1 on: July 20, 2009, 10:55:18 PM »
I wake up late and go to bed late, so when I was on manual PD, my schedule looked like exchanges at 9am, 2pm, 7pm, and 12am. For the last month of manual, I switched to 5 fills a day, at 9am, 1pm, 5pm, 9pm, and 12am.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #2 on: July 20, 2009, 11:41:43 PM »
Did you ask them about a possible xxray to check the catheter?  He really seems to have way more pain than is normal on pd.  Didn't you say he also had bad pain on manuals?  Anyway, to answer your question, I used to do a bag at 7am, midday, 5pm and 10pm.
Cheers.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
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« Reply #3 on: July 21, 2009, 02:41:09 AM »
Do whats the best times for you! I used to do .9am. 1pm. 4pm. 8pm. but would also change it if i needed to do something else or had an appt.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
peleroja
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« Reply #4 on: July 21, 2009, 08:17:45 AM »
When I did 4 manuals a day, it was 7-12-5-10.  When they upped me to 5 a day it was 7-11-3-7-10.  Don't even ask me about the 6 a day!
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