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Author Topic: Hello all, I'm trying to avoid dialysis!  (Read 3227 times)
billybill1
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« on: July 03, 2009, 04:06:39 PM »
Hi All,
    My name is Bill and I live in New Jersey. I found out I had poly cystic kidney disease March 15th a year ago.
I'm on a journey to live a normal life without going on traditional dialysis. The alternate treatment I'm exploring is
using the sauna and my sweat glands to get out excess fluid and wastes just like dialysis. The more I research it
the more I think it's possible. I spend an hour in the sauna everyday. I'm sweating out between 2 to 3 liters of fluids.
Sweat contains all the same chemicals and wastes as urine. Even if I still have to use dialysis at some point
I still plan to use sauna therapy on the days I'm not taking dialysis.
   Any information that can help me in my journey that would be great! I'll also share my discoveries in case it can help others.
Thanks!

Bill



Edited: Moved to proper section: Introduce Yourself - okarol/admin
« Last Edit: July 03, 2009, 05:06:13 PM by okarol » Logged
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1 on: July 03, 2009, 04:36:25 PM »
Welcome and good luck with the sauna idea.  Let us know how it goes.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: July 03, 2009, 05:09:25 PM »
 :waving; Hi Bill,
Welcome to IHD. My siblings have PKD but so far no one is on dialysis - they've just been controlling their blood pressure. Will be interested to hear how the sauna works.
 :welcomesign;


okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #3 on: July 03, 2009, 05:36:09 PM »
 :welcomesign;
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rookiegirl
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« Reply #4 on: July 03, 2009, 09:19:21 PM »
Hi Welcome to IHD.  I'm interested on your Sauna prevention.  Please keep us posted on your progress.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Yvonne
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Yvonne
« Reply #5 on: July 03, 2009, 10:36:03 PM »
 :welcomesign; How interesting, is there any more information on a Sauna anywhere, how did you discover that it might help?
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
Jean
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« Reply #6 on: July 03, 2009, 11:28:36 PM »
Well, that certainly sounds better than dialysis. Let us know aobut it, we are all interested.
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One day at a time, thats all I can do.
willieandwinnie
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« Reply #7 on: July 04, 2009, 04:19:04 AM »
 :welcomesign; Bill. I look forward to hearing more fom you on this. Tons of information and support here and please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #8 on: July 04, 2009, 09:30:45 AM »
Welcome and good luck!  That certainly does sound better.  I love sauna's.   I haven't been in one is a super long time, but I still love them!

I hope you are able to push dialysis away for as long as possible, if not forever.  Do you plan on looking for a transplant?  Are you on "the list"?  I got a living donor in Nov. 2008 and was just able to avoid dialysis.  I pray my new kidney lasts the rest of my life.

It's great to meet you.   :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Joe Paul
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« Reply #9 on: July 05, 2009, 05:35:01 AM »
Welcome Bill, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
joyfulmother
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Becky

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« Reply #10 on: July 05, 2009, 01:15:13 PM »
I don't blame you for trying to avoid dialysis - it sucks!
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
Pierre
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Let's have a drink !
« Reply #11 on: July 12, 2009, 07:03:23 AM »
Hi Bill, and Welcome.

I also have PKD, and your neph certainly will have explained you several things, or at least I hope he did :).

About 50 % of all patients with PKD reach ESRD and have to go on dialysis, the rest don't, so I hope you're one of the lucky people. OTOH, there is still no cure for PKD, so your kidneyfunction will decrease further whatever you do, even if you stay 24h/day in the sauna.

My advice is to stay healthy as possible, don't smoke, and ask information about diet.
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When things are at their darkest, it's a brave man that can kick back and party.
cloud393
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« Reply #12 on: July 14, 2009, 10:44:12 AM »
 :welcomesign;

I also  have PKD, diagnosed 19 years ago and just started PD in Feb., 2009.  I didn't take it serious in the early years so my advice to you would be to avoid smoking, limit salt, keep blood pressure in check,  control weight and avoid caffeinne.  Good luck to you. 
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May you live as long as you want and never want as long as you live.
dwcrawford
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Getting the heck out of town.
« Reply #13 on: July 14, 2009, 01:51:18 PM »
Just notice the lead for this thread... only comment is "didn't we all?"
"
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
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