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okarol
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« on: June 24, 2009, 05:41:56 PM »

Patients Not Always Told of Lab Results
Researchers Say Doctors Need to Do a Better Job of Informing Patients of Lab Test Results

By Bill Hendrick
WebMD Health News
Reviewed by Louise Chang, MD

June 22, 2009 -- Primary care clinicians and their staffs sometimes fail to inform all patients of the results of lab or screening tests --  or fail to keep records that patients were informed and thus have no proof, says a study in the June 22 issue of the Archives of Internal Medicine. That poses potential dangers to consumer health and possible legal troubles for doctors, researchers say.

"There is a disconnect in many offices, and this is alarming," Lawrence P. Casalino, MD, PhD, of Weill Cornell Medical College, tells WebMD. "Some patients aren't being told about the results of tests, and this shouldn't happen. The takeaway message for consumers is clear -- if you don't hear within two weeks, call your doctor's office."
Failure to Inform Patients of Lab Test Results Is Common

Casalino, lead author of the study, and colleagues reviewed the medical records of 5,434 randomly selected patients between the ages of 50 and 69 in 23 primary care practices.

They identified 1,889 abnormal test results and 135 apparent failures to inform the patient or to document that the patient was informed. That’s a rate of 7.1%, or about one out of every 14 abnormal tests.

Practices that used a combination of paper and electronic records had the highest failure rates, the researchers say.
No News Isn't Always Good News

"Most [practices] did not have explicit rules for notifying patients of results, the researchers write. "To our knowledge, this is the first study to estimate the failure-to-inform rate across a variety of tests and types of medical practice." Casalino tells WebMD that "patients should never assume that no news is good news" because "a lot of things can go wrong in the office. Some may never receive a report from the lab, or it may come in but the doctor never sees it and it might get filed away before he does."

He tells WebMD that many primary care doctors' offices are swamped with paperwork, making it easy for test reports to go to the wrong place, or the right place and not be seen, and that often procedures are not in place to make sure doctors see and act on lab results.

"Doctors should at the least mail out a form and keep a copy in the charts," he says. "In our research team, it turned out that almost everybody had a personal experience with a missed communication."
Electronic Records No Help

Co-author Daniel Dunham, MD, of the Northwestern University Feinberg School of Medicine, says switching to electronic records systems won't solve the problem.

"An electronic record is a tool that can help improve or facilitate communication, but you need processes in place to deal with labs," he tells WebMD. "And, many things can go wrong. It could be the doctor had the wrong phone number, or the wrong address. To this day, we tell patients the responsibility is on us to communicate with them."

But the backup for patients should always be to call their doctors if they aren't notified of the results of tests, Dunham says.

Getting Your Test Results: Advice for Patients

Atlanta internist Sandra Fryhofer, MD, past president of the 120,000-member American College of Physicians, tells WebMD that "the results of this study are quite concerning. This is a systems problem that must be resolved." It's too easy for "something to fall through the cracks," she says. "Patients need to ask their doctor the procedure for finding out test results. They also need to ask how long it will take results to come back."
Consequences of Not Receiving Lab Test Results

The study authors write that diagnostic errors are the most frequent cause of malpractice claims in the U.S., and that testing-related mistakes can lead to serious problems.

"There are many steps in the testing process, which extends from ordering a test to providing appropriate follow-up," the authors write. "An error in any one of these steps can have lethal consequences."

Art Hopkins, MD, an internist at Montefiore Medical Center in New York, says he doubts miscommunications are as common as the study suggests, but such incidents are bound to happen because internists are so busy.

"The biggest mistake we see when we see these things not dealt with is when the doctor knows the patient has an appointment in a month and plans to deal with it then, and then the patient doesn't show up," Hopkins tells WebMD.

And in many cases, doctors may choose not to call patients "because we know that they know we know what's going on, and they trust us, so we don’t call unless it's necessary," he says. "We have found when we call patients about lab results, they give us better patient satisfaction scores. But we don't want to call with information that could confuse them, give them more information than they need for some minor change. You can create anxiety. If the result is expected or not relevant, we don't call."

Fryhofer agrees that patients must trust their doctors, but tells WebMD she's "glad they did a study like this that uncovers this problem. It's a wake-up call to doctors and patients."

http://women.webmd.com/news/20090622/patients-not-always-told-of-lab-test-results?page=2
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Deanne
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« Reply #1 on: June 25, 2009, 07:53:28 AM »

I'd love it if my lab could have my results emailed to me. I hate the suspense in waiting for my aapointment for my neph to go over them with me and I don't always remember to ask about things when I talk to her, or I forget later. If they were emailed, it'd be perfect!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Romona
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« Reply #2 on: June 25, 2009, 01:50:53 PM »

I'd love it if my lab could have my results emailed to me. I hate the suspense in waiting for my aapointment for my neph to go over them with me and I don't always remember to ask about things when I talk to her, or I forget later. If they were emailed, it'd be perfect!
Ask your doctor to write on your lab slip "Fax results or mail results to patient". Many times I get results before my doctors do. I have learned what values to be concerned about and I call my doctor. After my results went to a chiropractor in a another state three weeks in a row and I ended up in the hospital, I learned what to watch for.
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monrein
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« Reply #3 on: June 25, 2009, 02:05:49 PM »

I have a patient portal that I check online for all my reports, blood work, ultrasounds etc etc that are done at the hospital.  I get blood results in about 4 hours, before my doctor and have often called with questions that make my transplant coordinator have to go take a look.  I appreciate seeing exactly what my doctors and team see.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
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(2 1/2 hours X 5 weekly)
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MiSSis
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« Reply #4 on: June 25, 2009, 03:22:48 PM »

My monthly appointment with my nephs are always on the first Tuesday of the month and labs are drawn then.  By Thursday, I'm getting a call from the dietitian with the results and any changes in medication, etc. that might be involved.  She's already met with the doctor and nurse prior to calling me.  She also then mails me a paper copy of the results. 

Our primary doctor on the other hand isn't quite so prompt.  We've had to called several times to get results as much as 3 weeks following a blood draw. 
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
MIbarra
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« Reply #5 on: June 25, 2009, 03:26:55 PM »

My doctor's office emails them to me when I request it. If I forget to ask, they give me a copy of it when I go to my appointment.
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Cadaver transplant April 29, 2007
okarol
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« Reply #6 on: June 25, 2009, 03:41:07 PM »


I have a notebook of all Jenna's lab slips from the last 5 years.

I requested they be routinely faxed to us .
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
glitter
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« Reply #7 on: June 25, 2009, 05:01:27 PM »

I have a patient portal that I check online for all my reports, blood work, ultrasounds etc etc that are done at the hospital.  I get blood results in about 4 hours, before my doctor and have often called with questions that make my transplant coordinator have to go take a look.  I appreciate seeing exactly what my doctors and team see.

thats how it should be for everyone
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Jack A Adams July 2, 1957--Feb. 28, 2009
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thegrammalady
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« Reply #8 on: June 25, 2009, 08:33:59 PM »

i see my neph once or twice a month at dialysis. i ask for lab results at the treatment after they are drawn. i get the results  before the doctor or the dietitian. if there are any problems i start making phone calls.
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RichardMEL
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« Reply #9 on: June 25, 2009, 09:46:29 PM »

We have labs done monthly. I notice a very small percentage of patients in our unit ever care about their labs which is sad, but that's life I guess. I *always* ask for my labs when they come through and the staff usually print them for me.

Lately though they've also instituted a new system where everyone's labs get printed and put in their folders, so even if I forget, or I want to check later they are usually in there within a week.

I would be very annoyed if I could not get my labs as they tell me how *MY* body is going and I know I deserve to know.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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