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Author Topic: Hello from Louisiana  (Read 2367 times)
wiredwilly
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« on: June 26, 2009, 02:53:44 AM »
Just found this site when I was researching some info on side effects from some new medicine. I am 49 years old, married with 2 children and living on dialysis for two years. I have as most everyone here has gone through the trials and tribulations of living on dialysis so I wont go into any details with this thread. I have read some of the post and I like what I see, people helping others that might be scared, needing some information or just an ear and consoling.

 Look forward to talking with y'all soon
  -Mark-
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Maxridex
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« Reply #1 on: June 26, 2009, 03:42:11 AM »
 :welcomesign; nice to have you here :) Keep exploring and keep posting ! :D
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'' Never give up '' & '' You will never walk alone ! ''

* ARSENAL FC for life *
* AVRIL LAVIGNE FAN *

Feel free to contact me on my msn.
matthew_as123@hotmail.com
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: June 26, 2009, 05:29:46 AM »
Hi, Mark.

I found this site in a similar way. I can't tell you how often having this resource has helped me through tough times.

Welcome to the family!  :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MandaMe1986
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« Reply #3 on: June 26, 2009, 05:51:22 AM »
Happy to have you Mark.  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monrein
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Might as well smile
« Reply #4 on: June 26, 2009, 10:10:45 AM »
 :welcomesign; Mark.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!
« Reply #5 on: June 26, 2009, 11:00:00 AM »
Welcome aboard, Mark.  You're right, this is a great place for information and shoulders to cry on.  Come on back and post often.
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Romona
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« Reply #6 on: June 26, 2009, 07:52:39 PM »
 :welcomesign;
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Rerun
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Going through life tied to a chair!
« Reply #7 on: June 26, 2009, 08:52:24 PM »
Hey Mark, glad you found us.

                            :welcomesign;
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #8 on: June 26, 2009, 09:43:24 PM »
Hi and welcome.  Nice to meet you.  This is a great place to be and a great place to get answers.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Joe Paul
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« Reply #9 on: June 26, 2009, 11:57:50 PM »
Welcome Mark, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
TeenHatesDialysis
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WWW
« Reply #10 on: June 27, 2009, 12:27:19 AM »
 :welcomesign; Mark,

I am glad that you joined the group. I wish that Nephrologists or Social workers or somebody was required to inform all dialysis patients or future dialysis patients about this site. It is the BEST!

I am sure if you were googling a new med that several members here have already tried it and can provide more reliable personal information than you would find anywhere else.

 :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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