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Author Topic: Introducing myself......  (Read 2312 times)
jbrock
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« on: August 10, 2010, 06:03:36 PM »
Hi Everyone!!

I am Joy and was diagnosed 3 months ago with kidney failure. I have read some of the post from a lot of the members and felt "relief" knowing there is such a huge family of people that have gone through this very thing.
I am scheduled for my fistula surgery next Tuesday, to say I am scared to death is an understatement!!
I am married (27 years now) and 3 grown children.
I have a good support system but WOW...what a great group this seems to be here in "I Hate Dialysis's".
I have been through a liver transplant 4 years ago....So one would think I wouldn't be scared but dialysis really worries me. I suppose its the unknown, I sure hope to find some answers to my fears here.

Thank You to the staff for accepting my registration.
Joy
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Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
Dianejt
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« Reply #1 on: August 10, 2010, 06:33:55 PM »
 :welcomesign;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
chook
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Born to be a Granma!
« Reply #2 on: August 10, 2010, 06:38:45 PM »
 :welcomesign;  jbrock!
I am sure finding this site will be a great benefit to you, as a source of knowledge and also support.
All the best
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Phil
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What doesnt kill you, makes you stronger

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« Reply #3 on: August 10, 2010, 07:49:28 PM »
Welcome to IHD!!! Dont worry about your fistula surgery....I was worried about it too...but then after I had it, I realised it wasnt worth all the worry! lol :D
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1993 - Diagnosed with Alport Sindrome
April 2010 - Fistula surgery on right forearm
May 2010 - Started HD
Still waiting for the call!!!!!
Zach
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"Still crazy after all these years."
« Reply #4 on: August 10, 2010, 08:25:31 PM »
It's good to have you join the community of IHD!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Jean
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« Reply #5 on: August 10, 2010, 11:12:42 PM »
Welcome, we are glad to have you with us.
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One day at a time, thats all I can do.
kellyt
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« Reply #6 on: August 11, 2010, 12:04:58 AM »
 :waving;  Welcome!  You will love it here.  Good luck with your fistula.  Mine was uneventful (the first one, anyway).  The 2nd was a month later (first didn't work) and it was a little more complicated.  But nothing to be worried about.  Good Luck.  Check in often.   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MooseMom
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« Reply #7 on: August 11, 2010, 12:48:18 AM »
The day of my fistula surgery was the worst day of my life.  I'll be honest...I was sobbing as they put me to sleep.  The surgery actually went very well...it was just the idea of it, that knowledge that my life would never be the same again, that I was crossing the Rubicon, [insert other cliches here].  The surgeon wanted me to just have a shoulder block, but when the anesthesiologist told me this, I told him in no uncertain terms that this was the worst day of my whole damn life and I didn't want to remember a bit of it, so you'd better just knock me out completely!  And he did!  I'm no hero, and I won't pretend to be.  So I understand your fear and don't blame you one single bit.  And that's the thing about IHD...you can talk about your irrational fears and no one will tell you to stop being so silly...
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #8 on: August 11, 2010, 12:52:43 AM »
Welcome Joy!

Try not to be too scared about the fistula surgery - with all you've already been through that will be a doddle and you'll be wondering what all the fuss was about :)

Hopefully we can help you along this kidney failure journey - it's all so new to you and I'm sure you have many questions - hopefully we can help answer some and alay some fears.

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #9 on: August 11, 2010, 02:19:43 AM »
Joy Welcome to IHD. Don't worry about the fistula surgery it'd not half as bad as you may fear. Good luck and keep us up to date with your dialysis journey. :cuddle;
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Ken
Rerun
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Going through life tied to a chair!
« Reply #10 on: August 11, 2010, 05:39:19 PM »
Hi Joy, so are you on dialysis now or waiting for a fistula?  Stick with us and we should be able to answer your questions and ease your fears.

I'm so glad you found us.     :waving;

Rerun, Moderator     
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jbrock
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« Reply #11 on: August 11, 2010, 07:38:48 PM »
WOW!!!  :)
You ALL made me smile with your warm welcomes!!! Believe me...I will stick right here with you all through this journey. Thank you for your input.

Rerun..I am not on dialysis at this time but my Neph told me "I needed to be prepared" in the event I will need it. He said my "clearance" is about 17. I assume he meant my kidney function?? I have asked him about a transplant verses dialysis. He told me that was an option BUT I still had to have the fistula done.

Richard...I do have so many questions and I will try to keep them under the correct topic.

Again....Thanks to all of you for the warm Welcome!!

Joy :thx;
Logged
Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
galvo
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« Reply #12 on: August 11, 2010, 11:49:57 PM »
G'day, Joy and  :welcomesign;.
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Galvo
GoingThere
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« Reply #13 on: August 12, 2010, 12:51:20 AM »
Welcome Joy. It's the fear of uknown. I also was scared, but I can tell you, now I have full of energy. 4 weeks into D I manage to ride 110 km with my bike.

Take care
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: August 12, 2010, 10:26:12 AM »
Welcome to our community, Joy!  We all understand what you are going through.  The truth is, the unknown is much harder to deal with than what we already know.  But the thing about it is, sometimes when we do face it, we find out we stressed for nothing.  I hope this is what will take place for you.  I am so glad that you said you will stick with us.  We are a great family here  :grouphug; caring and sharing.  YOu will soon find that out.  Just keep on reading and keep on posting.  We are with you for the long haul!




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jbrock
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« Reply #15 on: August 12, 2010, 09:08:07 PM »
Thanks again for the very warm welcome and you guys have no idea (well, maybe you do)  how much BETTER you all have made me feel with your knowledge and words of encouragement!!!
big hugz  :grouphug;

Joy
Logged
Save A Life....Be A Donor!
Liver Transplant Recipient ~ 5 Years Ago ~ Blessed :)
Diagnosed in Kidney Failure ~ March 2009
Fistula Placement ~ Upper left Arm ~ Aug. 17th 2010
PD Cath placement - 5 months ago
D started 3 months ago - Manual's 3x a day. Going to try the cycler in a couple of weeks :)
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